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Methotrexate( I think that's how to spell it) I have stopped it.

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louslatts
louslatts

i have ra and oa meth is not working for me so I stopped it. I feel tried enough without having tablets making it worse some days I can't move its that's bad. Has anyone else stopped taking this drug. Thanks in advance 

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  • peter_webb
    peter_webb louslatts

    Posted

    hello  i can sympathise with you as i was diagnosed with RA  in 2008 and my first thought was my life is over and i am going to be crippled in pain and unable to work but i was put onto Methatrexate and Prednisalone  at quite a high dosage  and it worked as i did not have pain or flare ups and no sickness and i could still work so after a few years i started to come done off both drugs  but needed to have Leflunomide as well and i managed to get down to 2.5mg of Methetrexate and only 1 mg of Prednisalone  but in 2014 i started to get flare ups and needed Cortisone injections for the pain and was advised to increase my Methatrexate back up tp to 20mg a week  this worked for a while but recently i have had the mother of all flare ups and was in so much pain i could not sleep for 3 nights and my hand and wrist was agony and like a claw i could not get a injection in time so they increased my Prednisalone up to 20mg a day and the pain is gone so its worth taking any drugs to help the pain and to try and live a normal life and work as long as possiable i must be very lucky with my symptoms after reading the comments on this site or the meds are working for me

    its just a case of trial and error with the amount of meds you need

    good luck with finding your level you require

  • don09442
    don09442 louslatts

    Posted

    Hi, I started with RA in 2010 with upper body symptoms, arms, wrists, fingers etc....It quickly developed to the point of hardly being able to get out of bed.....the pain was horrendous!! NO painkillers worked....

    This was in the space of a month, blood tests showed my inflammation factor was 147, should really be below 14.

    I had a steroid injection in my butt, in 3 hours I though I was cured.....no such luck, I was put on Methotrexate, Sulphasalazine and Hydroxychloriquine in gradually increasing amounts!

    It took 6 months to get under control and at the moment fatigue and some slight pain in hands and wrists occurs periodically.

    My doses are, Metho 25mg p/week injection, 400mg Hdro and 3000mg Sulphaz. per day.....

    My Rheumo guy at my request reduced the drugs by 20% as I was feeling so good twelve months ago.....big mistake! I'm back on full dose now and 'managing'...

    so louslatts, my suggestion is stick with it if you can, also the quicker you are dealt with the less chance of your joints being disfigured!!!!

    Hope that's of some help.....

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