Microvascular dysfunction diagnosis

My cardiologist says that I suffer from micro vascular Angina.

Could you please introduce me to this group on Facebook?

Thanks

Hi Sean

This is the info page link

If you send a message Annette will reply and ask to join the heart whisperers group. (Its secret privacy group).

I will mention it to annette.

Michelle

Moderator comment:I have deleted the links to the images as they went to a site unsuitable for inclusion in the forums. Users can upload images directly to this site, see below for more info.

https://patient.uservoice.com/knowledgebase/articles/402861-how-do-i-add-an-image-to-my-post

https://patient.uservoice.com/knowledgebase/articles/398390-why-can-t-i-use-formatting-or-add-an-image-to-my-p

on the following facebook groups many have both Coronary Microvascular Disease (MVD or CMVD)

& CAS Cornary Artery Spasm

'Coronary Artery Spasms' 'coronary artery spasm (prinzmetal's angina) support group'

 

Hi Michelle,

I would like to be added to the Facebook group - how do we make that happen?

Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

Are you referring to the same Facebook group as Michelle?

Many thanks

all done

sean

No I coudl nto fidn the one she mention when I searched. These two are other oens I belong to. I have both CAS & CMVD

No I could not find the one she mention when I searched. These two are other ones I belong to. I have both CAS & CMVD.. I flip letters when typing

You wont find it when searching on facebook as the privacy setting is set to secrecy by the admin.

Thats why im having to do it this way.

I am a member of the group

Wow they can prevent anyone form seeiing posts but make the group information searchable for all the people all over the world to find it that suffer from disease.

Hi Michelle

I have microvascular angina, and would really love to join the Facebook group. I don't know how this is now possible if the link was removed?

Thanks

hi michelle plz can i join this facebook group i have this microvascular angina nd am struggling with this at the minute

Hi. Il pm you the info.

Hi Michelle

Can you please do the same for me? Thank you

Hi Michelle, I just joined patient.info-how do I join the MVD group? I would like to ask Annette to join the heart whisperers group. My cardiologist and dr. say that my coronary arteries are fine and clear and that I no longer have to see a cardiologist. I have all of the symptoms of MVD that my wife and I have researched on the internet-yet they say my arteries are clear even though I am still having headaches, chest pain, pressure, breathlessness, icy cold sensation in throat. All these reactions from everyday actions or any emotional stress/tension. I feel that I will have a hard time getting treatment for MVD if it is unknown or not acknowledged. Does anyone know of any coronary microvascular disease cardiologists in southern Ontario? Thanks, Alan.

Hi i will pm you with details alan.

Michelle

Could you send me the link/add me too please Michelle? I have had coronary artery spasm for many years now and have recently also had a confirmed diagnosis of CMVD too. Thank you so much xx

Hi

I will pm you wih the details later.

Michelle

I have been recently diagnosed withmicrovascular angina/cardiac syndrome x and would very much like to join the Facebook group you mentioned.. am struggling with getting my BP/pulse regulated 

I will private message you

Hi

I also have microvascular angina and am being treated for the condition. Can I ask if you had a test that formally diagnosed you, or is this diagnosis made due to just your symptoms?

I'm asking because I haven't had a test that has detected the condition myself yet, but it is presumed that I do have microvascular angina. I'm really just curious to know if this condition can actually be detected and the type of tests that best detect it.

My body is better controlled now , but my pulse gets high so I struggle with this also.

Thanks for any help you can give.

Regards x

My bp is better controlled now (sorry my keyboard changed my wording)

I had a heart cath which resulted in my diagnosis 

Hi

Yes there is a test called a challenge cath or provocative cath.  the substance they use in the angiogram is acetylcholine.

 

I see. Thank you!

Thanks Michelle that's really helpful x