Migraine for 18 days straight - help :(

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Hi All,

I'm at the end of my tether and I really need some help/advice.

I have had migraines for 10 years now, usually stress and hormone related.

Tried about 4 different preventative treatments, none worked so I 'manage' on triptans. ...

On the 23rd Nov 15 I had an attack - I put this down to the fact that my monthly cycle was due in 1 week so I began to rife it out with my symatriptans.

But it kept coming back every 4 - 6 hours later.. its now the 12th December and im still here in the same place. Iv had about 12 hours of pain reflief at most. Because it's been continuous, I have been taking a mix of ibuprofen and co codamol which I'm aware probably hasn't helped the situation.

This happened exactly the same time last year so I'm beginning to wonder if the weather/season is playing a strange role. I live on London. When it happened last year, the doctor changed my triptan for a month to Rizatriptan which after the 12 tabs, the migraine started tapering off and I ended up with my usual cycle. I could have sworn it was not as drawn out as this migraine though.

I'm currently lying here, in so much pain and I'm trying to hold off taking tablets because I'm worried about medication overuse but I jus can't handle the pain.

I'm stuck in a cycle which feels never ending. It's 85% in my right side - my face feels bruised from where I've rubbed my temples and also my face as it felt like I had a migraine in my face.

That feeling I take when I have a triptan is amazing as it starts to subside but then I spend the rest of the day worrying when the next one is going to hit me...

I have been reading about the daith piercing but have not spoken to someone who has said it actually works.

Has anyone has such a long episode before ? I could really do with some advice as I feel so depressedsad

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  • Posted

    Hey hun. I'm not on your scale but I've been dealing with increased and longer migraines and I've been miserable as a result so I kind of know where your going. I've recently tried an osteopath - have you investigated? Apparently there are no nerves around your brain but they are all channelled through your brain stem at the base of your head/neck and my osteo (not sure how much I believe but can't hurt) detected a lot of pressure there which would explain increased migraines. Today though he detected a pain in my left wrist by treating the base of my head and I didn't tell him that hurt....? I'm certain mine are down to childbirth and lifting my heavy second child, I had pains in my hips after having him and this seems to be what he's noticing too.

    I've heard there's no scientific evidence to support faith piercing but if there's no harm in trying...? I've noticed and difference in myself following my osteo appointments such as less sensitivity to sunlight which I thought was the cause of my migraines - whether that difference is confidence and psychological I don't know but if it is does it matter as long as it helps?

    Good luck babe xxx

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    • Posted

      Thanks for detailed reply LouP smile

      I hate to think of others in as much pain as myself but happy that people understand as doctors don't tend to.

      I have not tried to see an osteo but what you said makes perfect sense. I'm always rubbing my neck as if the pain is originating from somewhere around there, though I know of the trigeminal nerve that's near the temple which seems to be linked to migraines. I will look into the osteo, thank you and I hope you are not in too much pain xx

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  • Posted

    I'm so sorry you are hurting & suffering. I have had migraines since my early 20's. I'm in my mid fifty's now, I had hoped & prayed that they would have dissipated but unfortunately they are now chronic. I am not writing to discourage you but to encourage you to keep looking for an answer. I have not tried what you mentioned. I have tried all the migraine med's, they worked for a while but then they find a way to work around it & on & on. The only thing that has helped me has been hydrocodone, but now they won't prescribe due to the new laws. Yes I have had migraines last as long as five days. Yes they are awful, my roommate has told my neurologist the best way to describe me when I have a really severe one is that I'm a corpse. Not very encouraging I know, but I have not given up. I have recently gotten an injection in the facet of my cervical vertebrae between 3 & 4. I got it today & it has taken me from an 8 to a 2 on pain scale of 1- 10. I had 2 previous injection's in September & October. They were injected in the posterior cervical vertebrae by 3 & 4 by the occipital nerve, my doc's thinking was it could be occipital neuralgia. I dont know nor do I care at this point. Probably like you, you would like doctor's to listen to you & have some empathy for the pain you are enduring. No one should have to endure this pain consistently thru-out one's life & have to go to doctor after doctor with little or no help, but of course they charge you exorbinant fees, its freakin crazy!! Have you tried any naturopath's, or pain management center's. Thats where my neurologist is sending me this next week. I'm literally trying every new thing available. I listen to meditation mp3's, hypnotism cd's, I am listening to Dr. Wayne Dyer's cd about manifesting, very interesting. I'm even trying what he suggests, which I should of tried before I took all these medications the past 20 odd years. I'm sorry I apparently needed to vent! But keep tryin & reachin out. I can't stop your suffering but I can listen & be supportive, but definitely learn all you can about treatments negative & positive side effects &~keep reaching out to other migraine sufferers. My current rant is "I'm migraine free" & Im gonna say it till I heal! As my son use to say, "Yeah"! Llf7860
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    • Posted

      Hi Llf860

      It's so nice to have other people understand bit saddens me that they are also in pain sad

      I have considered going to a pain clinic but it's just meds after meds and I have had some bad experiences with quite a few preventatives. I'm going to look at the meditation cds you mentioned as it definitely cannot hurt. I think I'm so wired to believe om destined to have migraines as it's becoming my life, that we forget how to undo that so the cds sound like a good idea. Thank you. 13 hours since last attack , hoping it stays that way and tht I can sleep tonight. Thank you for your suport and advice xx

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  • Posted

    I don't want to scare you but I have had a migraine for 8 months and counting. I went to a neurologist who said that it was a severe tension headache and he put me on Nortryptaline, Vitamin B, and Magnesium none of which has helped. I suggest seeing a neurologist and seeing what they can do. I have double scoliosis and I think that might be the biggest benefactor for me and the only way for me to get relief is surgury and I do not want that. I hope you can find some relief for more than just a day
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    • Posted

      Hi, sorry to hear this.  My advice is to try alexander technique classes for the scoliosis and botox for the migraine both should help especially the botox. 
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    • Posted

      Hi 2shay46040

      I'm so sorry to hear the amount of pain you are in - I thought my duration was bad but that's just ridiculous sad

      Have you tried triptans for short term pain relief. As much as im having this constant bout, if the triptans were not available , if probably cut off my head !

      There's research about taking co enzyme q10 supplements also... I guess it's diff for everyone. I pray for a solution for us all..

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    • Posted

      I honestly have never heard of Triptans. I will research them and see what I find. I pray for a cure one day for all of us!
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  • Posted

    Hi, sorry to hear this.  My advice is to try  botox for the migraine, it does help.
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    • Posted

      flexi31,

      I think that's going on the list of things for 2016. Did you find it to be effective ? Have heard many mixed reviews....

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  • Posted

    I am so sorry that you are suffering in this way.  It seems as if you are really concerned about taking too much medication.  I take about about about 9' prescription medications per day plus 5 different those of vitamin medications.  I see a headache specialist who is wonderful and is always willing to try different types of treatment.  I still suffers with chronic migraines and hemiplegic migraines.  I am better right now than I have been in the past but I think most if that can be attributed to my own state of mind.  My started 10 years at the age of 58 which is unusual for most people.  I no longer drive and often times I cannot walk. 

    For you I would suggest that you find a meurologist who specializes in headaches because they are really up to date on treatment options. Don't be worried about taking too much medication unless they are narcotic based which can lead to dependency.  I have found that medications have their own ability to work for a period of time.  Some longer than others.  Keep pressing your doctor to work with you to help find some relief from this constant struggle.  

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    • Posted

      Hi Susanne,

      You have a valid point - I don't know why I have a problem with meds , I guess I hate to be dependant. It's not fair that we have to be. I don't think migraines are paid enough attention like other conditions hebe why there is no solution.

      I will be organising a visit to the neuro in the new year as I have not been for a long time...

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  • Posted

    I know how fearful it can to take so much medicine. The neurologist that I see specializes in headaches, etc.  he has said that most neurologists are not that trained in migraine treatments.  I have tried many different things and have gone to 5 different neurologist before I found my current doctor.  He has really been the only one I have found that has a true understanding of migraines and doesn't" make you stupid for how you are feeling. When you see a neurologist, please keep pushing for commuted treat,emt.  Of so,etching doesn't work, try something else. For me I can't take the Tristan medicines because of the hemiplegic migraine.  I also have sjorgens which is an autoimmune disease and thyroid issues

     so I have to be careful of medication.  Keep trying .  I know how badly you feel.

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    • Posted

      Oh I so very much feel for you and totally understand and I'm definitely going to take your advice. I have actaully felt a little better today after talking thru things with everyone on here.

      Thank you smile

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