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Migraines being *caused* by bouncy feelings?

Posted , 9 users are following.

dee50000
dee50000

I was just thinking, to people who have MAV who have a feeling of being "bouncy" or floaty, like on a boat (where your eyes take in second to catch up to where you head is pointed) - could the overuse of your eyes trying to keep you balanced/steady be CAUSING the migraines? Just a thought, thinking outside of the box.

Professionals, care to comment?

But then, what else would cause the bouncy feeling? Maybe I am missing something?

0 likes, 30 replies

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  • DizzyLizzy68
    DizzyLizzy68 dee50000

    Posted

    For me. I think no. The process of the migraine causes all the weird events including the dizziness. My Dr explained that the migraine was affecting the cerebellar and or brainstem area of the brain causing my dizziness. Other drs think it's a migraine of the inner ear, a vestibular migraine. There doesn't seem to be 100% agreement on where all the dizziness originates, but there seems to be agreement that it is the neurological condition called migraine that causes the dizziness. MAV is usually termed a migraine variant, since it isn't the common or classic type, but I get those too. When I get the "normal" migraines, I don't get dizzy, but I do get tinnitus. When I am having the dizziness or vertigo, I, many times, also get pressure in my face, sinus, jaw, neck, tinnitus, but not a true headache. Seems to affect the trigeminal nerve with the dizzy spells for me.

  • eleftherio33095
    eleftherio33095 dee50000

    Posted

    No.  The presence of migraine in MAV is not related to eye use.  The bouncy feeling is caused by the migraine extenting its effects either to the inner ear or to the vestibular areas of the brain.

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

    • edward76742
      edward76742 eleftherio33095

      Posted

      Hey Doc! First thing I really appreciate you commenting on multiple feeds.. That's very nice of you to take time out of your day and help so many people in need.. I was wondering if you ever heard of this happening before.. Last mid September I had a real bad sinus cold.. I remember I was irritated because I was so stuffed up and purchased "Affrin" nasal spray and went to town on each nostril. I remember after squeezed liquid in nose I realized I probably put too much.. Definitely did way more than I was supposed too because of the pressure I instantly felt above eyes.. A few days after that, I was at work. I got there at 6am and felt great. Around 8 am, I got hit with the craziest blow of dizziness/lightheadedness.. I believe I blacked out for a couple of seconds and couldn't believe I was still standing.. My legs felt like jello and had zero strength and could barely stand up.. I instantly started dripping sweat on my forehead.. I thought for sure I was having a stroke or heartattack.. Somehow I finished my shift at 11 am.. I didn't say anything because it was my first day at new job and was scared I would lose it if I said I had to leave.. I called in sick later that day to other job and went to a clinic. They noticed my EKG was off.. But didn't know what was going on. I went home to rest then later that night I was so stressed about this affecting my work I forced myself to walk around a lake.. I remember it felt like I was teaching myself how to walk again. Legs were really stiff and it was almost like I had to really focus on how to walk. I kept falling to the left for some reason while I was trying to walk in a straight line. Few days later I went to ER and they did a quick diagnosis. Said I had Labrythinitis/Sinus infection. They gave me amoxicillin and Prednisone. The Prednidone was a dream. After 3 days of that I felt 100% percent back to normal. Like it never happened.. After a couple days of finishing the prednisone prescription, the dizziness/lightheadeness/headaches/foggy head and ear fullness came back and has never left. It's now 7 months later and still dealing with but the first 3 months were definitely the worst. Those symptoms were 24/7 everyday. Now I have a few good days(mild dizziness but still very much there) and then a few bad days and will switch back and forth. Dizziness symptoms are bouncy, swaying, sometimes I feel like I'm falling standing up like I can't feel the ground. Like I'm on a boat all the time. Sometimes I will get a head rush like your in an elevator going down and get that head rush when you hit your floor.. Have you ever heard of this before? If so, what do you think it may be?
    • edward76742
      edward76742

      Posted

      I do notice too at times I have black dots in my vision.. Not sure what that is.. It's not all the time. That may happen for 10 minutes each time and will later go away
    • eleftherio33095
      eleftherio33095 edward76742

      Posted

      Dear Sir,

      Thank you very much.  You are describing a vertical type of vertigo which may be affecting a specific part of the inner ear (the otolith organs).  It all sounds like an extension of your original sinus problem that has not completely gone away.  The next step is to see an ENT specialist.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • edward76742
      edward76742 eleftherio33095

      Posted

      Thank you for responding doc.. The dizziness comes only when I'm up and moving. I've never got the spinning sensation thank god. I've never gotten the dizziness when sitting or laying down only when standing and walking
    • edward76742
      edward76742

      Posted

      These last 7 months have been the hardest months I've ever lived.. But I'm very strong mentally and physically. I continue to go to the gym 5 days a week. I have 5 jobs which I've worked extremely hard over the years to get. I won't let this take anything away that I've earned and waited for. The only thing I have had to put on hold is being a musician. The last 2 shows I had, I felt like I was going to fall off the stage at any moment. I had to stop doing shows because of the possible danger and not being able to give the audience my best. But every time these symptoms hit me, I tell it to bring it on. Go head and come your hardest and I will keep walking forward
    • edward76742
      edward76742 eleftherio33095

      Posted

      Hey! Hope all is well with you doc. I had a couple questions for you if you don't mind. I know you have very little to go off of. I took a hearing test and that looked normal in both ears. I've been dealing with dizziness all day long for last 8 months now. Can you have meneires if you have good hearing and no tinnitus? Does Ménière's normally gradually come on or does It just hit you at the start? I looked up the BPPV and I don't think I have that. It mentioned that just last minutes but mine is all day everyday.. Could it be vestibular neuritis possibly? Came after sinus infection and hit me with a major blow of dizziness and never left. Symptoms include 24/7 dizziness( no spinning), vertigo that feels of swaying motion, occasional dropping or falling feeling, headaches are the 2 major symptoms. Occasional ear popping and fullness with black spots in vision that last usually about 5 mins.. If you had to guess what do you think it could be?
    • eleftherio33095
      eleftherio33095 edward76742

      Posted

      Meniere's disease (endolymphatic hydrops or excess fluid in the membranous part of the inner) by definition usually involves the cochlear (hearing part).  You can have good hearing and no tinnitus if this specific hydrops does not involve the cochlear.  I suspect that the hydrops in your case is affecting the otolith organs, specific structures that are involved in detecting head acceleration in a linear (straight) direction, either up/down, left/right, or front/back.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology.

    • eleftherio33095
      eleftherio33095 edward76742

      Posted

      Nothing but success stories with intratympanic steroids.  It is now preferred over betaserc.  If it is hydrops, it will cure the vertigo either completely or at least for a very long time.  No hearing loss with steroids.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • edward76742
      edward76742 eleftherio33095

      Posted

      Also, if it's a build up of fluid, do you think the nasal drops I took could of affected that fluid in inner ear? I remember when I did it, i injected way to much fluid in each nostril. I could tell by the pressure/pain in head above eyes after I did it
    • eleftherio33095
      eleftherio33095 edward76742

      Posted

      Probably indirectly via inflammation.  The pressure above your eyes was because the fluid from the nostril went into the sinuses.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • edward76742
      edward76742 eleftherio33095

      Posted

      Finally some good news!! You have no idea how much I appreciate you on these feeds. We are all blessed to have you around
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