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migraines?? Other symptoms/side effects???

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kate11944
kate11944

I've recently started to have burning sensations shooting through my body, it can be in several places but doesn't last for long. I wake up with numb hands, numb areas on my face including my tongue. I've also started to stutter or my words come out completely jibberish. My vision will go almost completely in my left eye and I do get a bad headache with it but it isn't throbbing or near my eyes, it's normally constant at the back side of my head. My neurologist said he thinks it's migraines without really listening to me symptoms and has ordered an MRI. So my question is does anyone else have all the other symptoms with their migraines? My symptoms last for weeks (apart from the temporary blindness, that lasts around an hour) I developed raynauds a couple of months after the burning a numbness started. Thanks in advance for any information.

1 like, 24 replies

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  • DiddyC
    DiddyC kate11944

    Posted

    Kate, it sounds like migraine, I too have it on left side in the back of my head and in neck, with blurred vision and drooping eye, the top of my head goes numb. My teeth even hurt at times. I got diagnosed with fibromyalgia today that I was told it contribute to my migraines.
    • kate11944
      kate11944 DiddyC

      Posted

      Thank you for you for replying DiddyC I completely get the diagnosis of migraine for the most part. But these burning sensations go in my back, legs, stomach, bottom all over the place and I get them for weeks everyday continually and they started a few months before the vision, numbness of face and headache started so I'm not convinced they are connected but was curious to see if anyone else gets this also. My speech can be terrible somedays. I guess I just don't think it sits with the 72 hour criteria but then again I don't know a great deal about it all... Yet smile
  • margarita95351
    margarita95351 kate11944

    Posted

    Kate? listen hun ...if your Doctor is not really paying atttention to your symtoms..you do need to sick another Doctor..I have Migraines and I do get the blind spots and the Auras in my eyes which always last only 20 mins....but I have never had the symtoms that you are describing..I will say that a lot of it does sound like it could be Migraines..the numbing? could be poor circulation also..but we all do need to find us another Doctor if ours is not paying attention to what we are feeling...I do know for a fact that our minds? and also our nerves can make us feel things that don't really mean that we have anything really bad wrong with us...but I just feel that too many Doctors are getting richer out of our complaints and they are not even paying attention..Good luck Kate..please keep us informed here when you hear something..bye hun..
    • kate11944
      kate11944 margarita95351

      Posted

      Thank you for your reply. I think it's so scary when I get the blindness, it's happened when I was driving with my young children in the car so we had to sit at the side of the road for ages until it went off. Hopefully will get some help soon.
    • margarita95351
      margarita95351 kate11944

      Posted

      Kate, how long does this blindness less hun? I too have gotten while driving..it is really scary...I have been getting these for 50 yrs..and even now? when I feel one coming on? it does scare me to death..but mine always only last 20 mins..

       

    • kate11944
      kate11944 margarita95351

      Posted

      Hi the most it has lasted is for an hour but almost have after shocks of it where it'll go funny for brief periods after the main one, drives me crazy and scares the hell out of me. I always ring my mum crying. My mum offered to pay for me go private so think we'll wait to have the MRI and then go and hopefully will have the opportunity to explain everything properly and feel like I'm being listened to better.
  • Againes
    Againes kate11944

    Posted

    I have pretty much the same symptoms with my migraines. I have been seeing a neuro for over a year. He still has yet to give me a diagnosis. .just says I will be one of those people that has them. I had an abnormal MRI with white matter on my brain. He said that was normal, showing years of migraines and excessive smoking but I didn't have migraines for years lol. I have facial, tongue and arm numbness also during my migraines. I can actually tell when they are going to start bc they go numb before I get my migraine and I get a warm sensation all thru the bottom part of my arms. My meds have helped some thank goodness but have not cured them for sure..I doubt anything ever will. As nutty as my neuro is I believe he is the reason I'm still alive today because I was at my point of desperation when I came to him. Good luck to you and to the rest of us smile
    • kate11944
      kate11944 Againes

      Posted

      Thanks for replying. It's horrible isn't it. I get the 'migraines' a couple of times a month but the rest of the symptoms ar everyday for weeks then I had nothing not even a headache for weeks then it's just flared up again!
  • mommasmigraine
    mommasmigraine kate11944

    Posted

    I get Hemiplegic migraines. More so as im late 40's and in preparation menopause. I get new and changing symptoms monthly. Speech, numbing. Walking is affected, tingling sensations in face, tongue, hands, auras, stomach migraines, confusion and memory loss. Read up on it and have an idea if this is what you may be dealing with. Find a doctor who listens. Some migraine abortive medicines, like the Trip tan family can be worsen to systems if you do have Hemiplegic migraine.
    • kate11944
      kate11944 mommasmigraine

      Posted

      Thanks for your reply. It all sounds very similar to mine, awful isn't it. I just don't get a break some weeks with mine and the burning drives me crazy.
  • sunni13905
    sunni13905 kate11944

    Posted

    You are discribing my migraines to a tee.  I've got both Classic with Pain and Alphagic (without pain).  get pretty much the same auras for both.  First time I got one without the pain I thought I was having a stroke.  very scary. 

    I'm currently on day 38 with a constant headache and have had 3 major migraines in this time.  I've been on Frovatriptan for the past 4 years and it worked at the beginnning but seems to have become ineffective.  The MRI is a good start.

    Let me know how you make out.

    Sunni

     

    • kate11944
      kate11944 sunni13905

      Posted

      Wow Sunni that's some going! Hope it eases soon. I'm glad I'm not the only one with all these messed up symptoms/issues. It is all so scary isn't it, I blacked out over Christmas also and that was scary I came around covered in sweat. I don't drink alcohol very often but I had got a bit merry the night before so I put it down to the alcohol. Just all really difficult for me to get used to because I'm never ill hardly ever even catch anyone's cold and now all of this!
    • sunni13905
      sunni13905 kate11944

      Posted

      It's getting to the point that I'm trying alternative remedies..I've done acupuncture, chiropratic adjustments, herbals...works for a bit but they are so expensive it's not always easy to afford them.  I've heard about this piercing you can get in your ear (daith) and have been googling the crazy out of it.  lots of positive and negative info.  But it only cost like 60 bucks so I think if there's even the slightest chance it could work it's worth a shot.  If it don't I can always take it out.
  • manda08392
    manda08392 kate11944

    Posted

    I started having those symptoms out of the blue December 2014 and I didn't really feel like it was migraines because I had several before and they were completly different but my doctor insisted and once I was referred to a neurologist they explained a little better that there are LOTS of different types of migraines and the ones I was suffering from were just a different kind than I was previously used to. An MRI is standard operating procedure. In fact my doctor had done a CT before sending me to a neurologist who did an MRI.

    I don't want to be the bearer of bad news but yes, they can last weeks. I actually went from Dec 22nd to July 9th without a migraine free day but everyone is different.

    What I can tell you is there may be various reasons so this is the typical procedure: you go to your doctor, get a CT, if clean you go to neurologist who gets you an MRI, if clean they will try various medications and probably have you do a headache diary, if over a period of time none of that works you will be sent to an ENT, an ENT will do a physical exam of your reflexes and various hearing tests, if those are clean you get to do a really fun ENG where they make you dizzy on purpose, if those are clean you will most likely be referred to another specialist who may want to do the same tests more in depth.

    Anyways, for a lot of people a neurologist ends up helping a lot and they find the right medication for your migraines. For me personally none of the medication helped (in some cases made it worse) because it turned out to be derived from my neck which unfortunately took 10 months to discover and I'm getting physical treatment and don't need any medication.

    I hope your MRI goes well and comes back clean so that you can get on to the next step. Take care!

    • sunni13905
      sunni13905 manda08392

      Posted

      Hi Manda,

      I know what you're going through.  Im on day 40 with headache..have had 3 migraines during this time..not fun.  I too have ran the gamit of testing and have had the test where they make you dizzy. Don't know if your test was the same as mine.   My GP said it was to re-align the crystals in my ear.  First time he did it I was like "what the hell?" He never pre warned me.  Just took my head between his hand and threw me sideways...  I usually take Frovatriptan but have found it hasn't been as effective lately.  waiting for another appointment with the neuro.  I also get really wicked neck spasms that last for days.  I'm on methocarbol (muscle relaxer) for that.

    • manda08392
      manda08392 sunni13905

      Posted

      My diagnosis came after a little more than 10 months of migraines and dizzy spells every day and it turned out to be physical and not neurological; but that's just my case. For a lot of people a neurologist can help, just not me. For that reason all the medications including the muscle relaxers either didn't work or made things worse. I'm currently undergoing a cocktail of massage therapy, chiropractic adjustments (with plenty of warning!) and physical therapy. It's slow progress but it has been progress just the same which is something I got zero of before getting properly diagnosed.
    • kate11944
      kate11944 manda08392

      Posted

      Gosh Manda I wouldn't cope for that long like you have!

      I was at ENT before Christmas and had a camera up my nose due to my glands not going down for months now, had an ultrasound after and they just said my glands are reacting but show nothing nasty which is good. Never want the camera up my nose again either! The neuro did re reflex test and had me holding my arms out which he's said shows some sway or something like that and he's also said he thinks my numb hands are due to Raynaud's phenomenon. Just got to wait for the MRI now and hope that's all clear and I can get started on some medication to help get back to normal smile

    • manda08392
      manda08392 kate11944

      Posted

      Good luck! If it's clean get checked for any neck or spine problems like loss of degrees, slipped discs, etc. just to be sure.
    • kate11944
      kate11944 manda08392

      Posted

      Thanks I will ask the question. My mum has arthritis of the spine which has caused her to have two bulges so she's got a disk missing now as its snapped twice and my nan has rheumatoid arthritis don't think it's connected to my issues but I will see smile
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