Mirtazapine withdrawal horrendous

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Hi!  I have been off and on Mirtazapine several times over the past 14 years.  I have also taken Gabapentin (off 2 years), Zoplicone (off 2 years), and Seroquel (off 11 months).  I have now been off the Mirtazapine for 4.5 months and the w/d symptoms have been horrific (chronic insomnia, burning, tingling, numbness, vibrations throughout body and head, adrenaline surges, depersonalization/derealisation, myoclonic jerks, burning brain, feeling like I'm either going 2 drop dead or go insane at any moment and the list goes on.  I have had a few windows the past couple of weeks, but it very soon goes back to being extremely debilitating, painful, terrifying and horrendous).  I am feeling extremely weak, exhausted and hopeless. 

Has anyone else suffered so horrendously getting off this poison and if so what did you do to manage your symptoms so they were at least tolerable?  As I am extremely paradoxical to almost all psych meds and a ton of other pharmaceuticals, going back on any drugs is out of the question.  I don't want to have to live through another w/d like this for as long as I live which may not be much longer if I soon don't start getting some regular sleep.  At best now I might get 2 hours per week.  Please answer as I am desperately in need of some advice and support as I am getting weaker by the day.  Thank you.

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    I would suggest you see a specialist as you cannot go on like this.You may need Temazepam  or something similar to get your body back into a regular sleep pattern. I really feel for you but I take Lexapro and that is very good with little or no side effects.See your doc ASAP. Best of luck.
    • Posted

      Hi Alison46649!  Thank u 4 responding 2 my post.  Unfortunately, I react badly to almost all psych meds and most pharmaceuticals.  As I have had some windows while coming off these drugs, I am hoping that my sleep will eventually get back to normal.  I have seen on some other forums where people have gone 4 months without sleep while w/d from these poisons and have been o.k. in the end.  If I were to start on another drug it would just mean I would have to go through this all over again as all these psych meds have horrendous side effects and w/d symptoms and I am not prepared to do that.  I am currently seeing a really intelligent, knowledgeable, caring and supportive herbalist who knows about these drugs and has helped quite a few get off them safely. 
    • Edited

      I react badly to all drugs as well. I'm one month off mirt and feeling absolutely horrendous. I'm not sure what to turn to next. I have had windows but this week I think is the worst I've felt mentally. Let me know if you find anything to help. I cannot take another AD as the start up effects are so bad for me and also they usually make me more depressed. Please let me know how you are doing.

    • Posted

      Have you tried CBD oil or paste?

      I’m withdrawing from this horrific drug to and it’s hell I started raking CBD oil as they say it relaxes you I’m not sure if it’s working but I’ll try anything natural as never want to go back on prescribed medication again 

  • Edited

    Hi Barbara, I'm sorry you are going through what really does sound like hell.  How long have you been off the mirt?  How was it coming off it in the past and how long did you go before going back on?  Did you have trouble going back on?  What dose did you come off this last time and did you do any tapering or cold turkey?

    There is nothing that can hasten healing from withdrawal other than time.  Believe me, I've been around the withdrawal boards and if there were anything that really did it, I'd know about it.  Very reluctantly, I will say that there is one doctor on a website which I'm not allowed to mention who will use benzos very judiciously to help people weather the worst withdrawals (better than taking your life!) but taking z drugs or temazapam may go paradoxical on you and certainly would cause a new dependency if used with any regularity.

    Two small things to do to support yourself in WD are to take magnesium and omega 3 fatty acids (fish oil), both good for the neurons. Reinstatement is really the only thing that can fix the symptoms, but it doesn't always work once in the throes of a horrible WD.  If you did end up wanting to try it, you'd not want to go back to a full dose in case it does trigger an adverse reaction; you'd do a few mgs to start.  

    It sounds by what you've offered that you've been around the wd boards, too.

    The main thing is to do whatever you need to do to be gentle and kind to yourself.  If you need to be on the couch all day, that is fine.  Be kind to yourself.  Some find mindfulness helpful.  I can never get my brain to quiet down for it for very long but I find telling myself that I can take one moment at a time.  Try not to think in terms of weeks and months.  Try to be present and not allow your brain to engage in rumination which causes more suffering during WD.  Allow yourself to be distracted by any means.  An epsom salt bath may be soothing, especially before bed.  I always find a cup of warmed milk before bedtime to be helpful. Finally, I've found "tapping" to be helpful when having a bout of insomnia, otherwise known on the web as emotional freedom techniques.  It takes a 3 or 4 rounds of tapping before I fall back asleep, but I always do!

    I'm sorry I don't have any magic bullets.  You know that healing happens in windows and waves (you've alluded to windows), and as bad as you're feeling now, you know "this too shall pass."  A mantra that I've used that can make one feel better is to repeat "Do not judge; minimize harm; know it will pass."

    Keep us posted!

    • Posted

      Hi Betsy

      Your advice sounds comforting to me at the moment.  Can I ask you what your situation is/was with mirt?  

  • Edited

    Hi Barbara

    I'm really with you believe me.  I'm in the same boat as you.  I stopped mirt nearly 5 months ago, end of May.  I was on 15 mg and on it for less than 6 months.  I just went cold turkey because I didn't realise how evil the withdrawal symptons would be.  I've had not much support from the GP and the worst bit is the crippling insomnia night after night.  Some nights I might get 2 hours, others, I'm awake the entire night.  I can't even manage to fall asleep when I go to bed, so if I fall asleep in front of the TV for 2 hours, I take that as a positive.  This drug is renowned for its windows and waves and whilst you are really battling right now you have to hold on to the belief that you will get through it.  I know it's hard.  It's certainly one of the hardest things I've ever experienced.  In month 4 free of mirtazapine, I was fine.  No anxiety, no low moods, and I was sleeping without Zopiclone (I would take small half doses when I was desperate). I really thought I'd cracked this drug.  Then about 2 weeks ago the insomnia was back with a vengeance along with the headaches, churning guts and anxiety.  Like you I've felt I just can't go on like this, I cannot believe that a drug can have such a stranglehold over a person's mental and physical health after nearly 5 months.  I'm not on any other AD.  I take magnesium supplements, get walking every day and have now started a mindfulness course.  Like you I will NOT go back to taking these head drugs.  However feeling in the depths of despair through lack of sleep, I'm going back to the doctors to insist on some tests.  I'm drug free, look after my diet, exercise every day and am on week 3 of an NHS mindfulness programme.  The GPs don't acknowledge there are protracted withdrawals from mirtazapine so going back and insisting upon further investigation is the only way forward for me.  The regretable thing is.......before I took this drug, I never had a problem with sleeping.  What I'm saying in a really long drawn out way, is stick to your guns, go back to your GP.  I really feel for you Barbara because the pair of us have stuck this out for so long and it is soul destroying to see hardly any improvement.

     

    • Posted

      I am not quite at your atage yet, down to 3.75,tried tomget down to 1.87 but was so bad had to reinstate.

      i feel for you and just want to get off this.  I am waking in night internal,shaking and need to take diazepam to try to stop it.  Have you any help in advising me how to get off this, should i go cold turkey or keep slowly dropping.  I know as i get worse the pdoc will,just throw some other drug at me and like you i dont want to go down that route.  I feel,like my whole CNS has beeen assaulted and cannot recuperate, i was on 7.5 cor rwo years, never really worked either.

    • Posted

      Hi Ann

      I wrote you a message earlier and it got lost in the ether.  You are right when you say your central nervous system has been assaulted.  That's exactly how I feel right now.  The trouble is mirt has a very protracted withdrawal and most people don't realise it takes months and even years sometimes to get off this drug.  I wouldn't advise cold turkey.  You have to be gentle with yourself and taper slowly.  I know that sounds very frustrating but believe me when I say that I am 5 months into cold turkey right now and I will be honest and say it is dreadful.  In month 4 mirt free, I was feeling great.  I'm not on any other ADs and I was getting along with just supplements.  Two weeks ago and BANG the withdrawal is back.  Insomnia is the worst and I'm really struggling.  I would advise that you taper by 10% per month.  I'm so desperate at the moment that I've just begun a mindfulness course.  I exercise everyday, I've seen a counsellor and my diet is good.  After 5 months I would expect to feel much better than I do. But I'm not taking anymore ADs. As the doctors don't recognise withdrawal on these drugs, I've made another appointment with the GP.  This time I will present them with all the things I have been doing to help myself and firmly request tests be done or referral to a specialist.

    • Posted

      We spoke a while ago.  I am now almost off mirtaz but having w/d symptoms already.  I am so over anxious and feel like death.  I am trying to keep a routine up but its very hard. Appetite is starting to suffer too.  I have been slowly dropping since August but this is the worst. I feel like im going mad sometimes. Dr gave me valium and i take 5mg to sleep. Another detox needed if i ever get over this

      how are you getting on now, happy to hear even the bad bits.

    • Edited

      Hi again Ann

      Hang on and do what you need to do because it does get better.  I have been off mirtazapine now for 7 and a half months and can finally say I feel so much better.  It has been a very long and difficult journey.  No withdrawal support from the medical profession whatsoever.  They just wanted to give me more ADs.  I stopped taking mirtazapine and went cold turkey in May 2017.  I'm completely drug free apart from taking HRT for the menopause.  I felt exactly like you at month 5 and 6 of withdrawal.  And my main issue was horrendous insomnia; it was torture.  I would take Zopiclone for this.  The GPs do not want to give out sleeping tablets.  They say they are addictive!!!!!!!!!!!  And ADs are not?????????????  Absolute rubbish.  It's no coincidence that as I write this to you government ministers are investigating a Britain hooked on prescription drugs.

      I have been sleeping much better at night but it has taken me 7 and a half months to feel normal.  All the other withdrawal symptoms have long since gone. 

      Please feel free to message me if you want anymore information.

      It really does get better

    • Posted

      So good to hear you have cracked it. Its just so hard when youre in the middle of it all and the fact that your gp and psych says there is no withdrawal!   I am trying to keep going and hoping the days will get better.  I still will have the diazepam to taper, oh my goodness!
    • Posted

      One thing I have learnt going through this is; be kind to yourself.  Do not beat yourself up or focus on the fact that you have the diazepam to conquer right now.  If diazepam helps you, you take it.  You can only work on one drug at a time.  In my experience mirtazapine was far worse than worrying about being addicted to Zopiclone.  I did see a counsellor during my withdrawal who put me on a mindfulness course.  Mindfulness does help with anxiety but you have to try to be disciplined about practising.  I understand your feelings of despair after such a long time battling this drug withdrawal and you often feel completely alone.  I was at my wits end.  My life was on hold, I had suicidal thoughts being awake every night and nobody got it nor understood.  It will pass.  It will get better and it's not you; it's this nasty, evil drug withdrawal.  Bear in mind that there are very many people all battling this.  We are not attention seekers or flakes.  Some people struggle for years to be free from mirtazapine.  I told myself that if I had to mend a broken bone, stop smoking or lose weight; these things take time, at least 6 months and longer to feel and see  results.  This drug is renowned for its protracted withdrawal so take it one day at a time.  

    • Posted

      Thank you for your advice.  I am hoping to be free of this mirt in the near future, but i think the psych will try to use something else and from my track record i just cannot take so many of them.  I am trying to stay strong but its been so long that i am finding it daunting.  Even the thought of going on a course for mindfulness is a terror to me just now.  I am also,having stomach problems which doesnt help.  Imdont understand why my psych said just take a few weeks to halve then quarter it when its known everywhere i look that protracted withdrawal is the norm.  
    • Posted

      I completely understand Ann.  I was terrified of joining a mindfulness group which I think initially pushed my anxiety higher but I was so desperate for anything to tackle the insomnia that I told myself I will just go once and try.  If I can't cope I won't go back.  I know the medical profession can't or won't admit that these ADs present with protracted withdrawals because they must have been told to push them by the drug companies.  I know it's very hard for you right now and it's hard to find comfort in anything but remember it will not be like this for ever.  

    • Posted

      How you getting on with your sleeping now. I am going through hell now can't sleep everything you've said I've got it now stopped mitrazapine about 8 weeks ago n I'm suffering for it now x

    • Posted

      Hi Karen

      How long did you take mirtazapine and what dosage?

      Generally my sleep is better.  But I still get days when it is very poor.  For example in the last week, I’ve had two nights when I’ve had only 3 or 4 hours sleep.  That is very upsetting and I know it’s all connected to taking mirtazapine.  My sleep is not as good as it was before I took them.  But much better than say 4 months ago.  

      I take zopiclone if I need to.  They don’t give me side effects and I can take one for a couple of nights and then just leave them.  I find they are far less dangerous than mirtazapine and have helped me cope with 10 months of withdrawals.

    • Posted

      Hi all....

      I posted on this subject some time ago now after a horrendous journey on and and coming off mirtazapine... After Year's of utter hell, I discovered several things..... Firstly why we suffer from thease conditions in the first place. Secondly why our bodies react the way they do to thease horrid toxic pharmaceuticals and thirdly how to fix it. I strongly urge you all TO watch the following video and feel free to contact me for more help. God bless.... Time to know the truths...

      ...

      ....... Dr Robert morse YouTube.. Deppreshion anxiety and insomnia...... This is just the tip of the ice berg but very simple to fix

      Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

    • Posted

      hi christine, I know this is an old thread but reading your words is like reading my story exactly. I've been off nearly 5 months but feel I'm getting worse not better. I was wondering how you are now, can you offer any encouragement. I'm beginning to feel quite desperate. I was on 15mg for less than a year.

    • Posted

      hi Christine, that's great you're on the mend from those evil mirt withdrawal symptoms. thats given me hope, & as you say no support from GPs. they're ok when they can see something physically wrong but they cant seem handle psychiatric issues just easy to give out prescriptions. all I take now occasionally is zopiclone about twice a week, pace them out as the body can get used to them & lose its efficacy. I think I could tolerate the headaches & nausea. but the burning paresthesia & insomnia is hell right now.

    • Posted

      Hi, I just read your post, most of these posts are years old so I'm not seeing how people are doing now. I really need some encouragement as I have come off mirt for the second time nearly 7 months ago. I'm still suffering withdrawals and anxiety, feel like I'll never get better. How are you, are you off the mirt now?

    • Edited

      hi Vivienne, this was the only forum I could find that I could relate to. and I'm similar to you losing my mind now. been off mirtazapine nearly 4 months after 5 years & i think before 3 years sertraline. still suffering especially early mornings worst time with this horrible burning sensations in arms & legs. sometimes I get anxiety attacks during day if I get stressed then the burning pains kick in. I havent seen anyone yet saying they have come out the other side with no more nasty symptoms. 7 months is long time but then depends how long you have been taking it. I have good moments then waves of attacks. never had this before except once briefly when stopped mirt then doctor put me back on again all the symptoms disappeared. but I'm determined not to go back on them got to keep going. I've been told they do eventually but everyone is different when. keep positive if you can, think of the good moments & the nice things to come. I know easier said but got to be strong. let me know how your doing. V

    • Posted

      Hi Vivi, Thanks for your reply. it really is an awful drug. I was only on it for 1 year before coming off, managed to stay off for 9 months before stupidly going back on for 6 weeks. Another lady I talk to came off after 10 years and is ok now after 1 year of withdrawal, so there is hope out there. try to exercise and lots of water, sometimes it feels not getting better but it's a long slow process. it's frustrating not reading any recent posts, they're all old ones so maybe people have recovered hopefully. can we keep in touch? take care, Vivienne

    • Posted

      Hi Vivienne, that's a bit of hope if someone after 10 years was back to normal after a year. Although it must have been one hell of a year for her. Im starting to find my ways of coping & managing the torture. Well it is absolute hell like endurance test. Bad enough we go through covid pandemic now this mirt withdrawal hell on top! yes exercise is great help like running & swimming daily. I plan to start yoga & meditation in couple weeks. I hear that's supposed to be very good for this. Also deep breathing just take time out think of nothing empty your mind & just take deep in breaths & slow exhales. I've been doing this at 4am in mornings because that's my worst time. Do you have a set time of day where it peaks? Are you relying on any prescription or OTC medications? I've started taking OTC melatonin not sure if working or not yet as still awake 4am. Let me know how you are coping & managing? take care, Vivi

    • Posted

      Hi Vivi, Thanks for reply. I am in the UK, dont know if you are also. I dont take any otc meds only occasionally sominex if I cant sleep, but my sleep is getting a bit better but I wake all the time, I get hot sweats. yes I agree with the deep breathing and also practice this, I walk every day and use an exercise bike. I just get spikes of anxiety followed by a hot sweat at any time. I've tried melatonin in the past. I'm planning on starting yoga too. it really is awful being awake at 4am, I know. take care. vivienne

    • Posted

      Hi Vivienne, I'm in UK also. I've just phoned doctor about this and I explained all the symptoms. I was advised to persevere keep managing it, there is no other way except back on those drugs 😱 and no way I'm doing that. Doctor advised need to learn to take control of the mind eventually the symptoms will just fade away gradually. timescale varies with everyone. they think the yoga & meditation is an excellent start. and not to rush anything, do things at a slower pace. problem is with pace of life today it's all rush, rush, rush, trying to do things as quickly as possible in the shortest time. Well, that's one thing I'm doing from now on, slowing down, learning to chill, train the brain or mind to this slow way of living. Anxiety should be under control eventually. also if you are of a certain age anxiety and hot sweats could be symptoms of menopause could try HRT. And there are no nasty withdrawal symptoms from that I've found when stopped before now back on it. I hope you get through this and see how the yoga classes help. Vivi

    • Posted

      Hi Vivi, Sounds like you have a good doctor with good advice there. Hopefully the symptoms will fade for us in time. Do you find that some days are worse than others, some days I feel extremely nervy. I'm past menopause, I'm 67 didnt suffer much , but since coming off mirt have had all these horrible side effects. Never took HRT and wouldn't start now at my age. I hope your sleep improves, mine has got slightly better,but still wake alot through the night. take care Viv

    • Edited

      Hi Vivienne, I'm same have normal moments with no symptoms like as if never took the psycho drugs but then the anxiety attack can just strike usually there are triggers but then sometimes none. then the physical symptoms kick in which are absolutely awful. although I dont get the intense panic attacks with chest pain anymore. I had ambulance call outs twice to hospital thinking it was heart attacks. The worst symptoms are the paresthesia & nausea. What has your doctor advised? I was in Boots today & got vitamin B12, I read somewhere that helps & also cannabis hemp bath salts - read that was very good. I will try these see if these work to ease the symptoms. I do take the odd zopiclone but only if need to get up early. And only take it if wake up 3am. I have no problem when go to bed I can sleep straight away it's the 3 - 4am wake ups then anxiety start & just cant get back to sleep. do you find it even more stressful? I do just lying there the see the dawn , hear birds singing, heavy feeling around the eyes. never had that before. I must say 2021 is the worst year I've experienced for health issues all because of that mirtazapine. that sounds good sign your sleep pattern is improving. My doctor said it does over time. take care & be kind to yourself. Vivi

    • Posted

      hi vivienne, I did send reply but for some reason its delayed due to moderation. not sure why, maybe because it was an essay! yes I have good spells then horrible nausea & paresthesia. like you have, waking up at 3am all the time so tonight if wake up I'll take zopiclone. What advice had your doctor given you? Vivi

    • Posted

      Hi Vivi, Thanks for your nice message. I also have parethsia which wakes me up, never had it before not even when I came off last time. Have you tried magnesium suppliments ?, I also use magnesium cream which I think helps a bit. yes when I cant sleep I get more stressed which makes a vicious cycle. yes this year has been dreadful on top of the pandemic also. I havent much faith in doctors, dont think they recognise withdrawal as a serious issue. nice to hear from you. take care Viv

    • Posted

      hi Vivienne , I get more burning in legs & sometimes arms, not really feet or hands. its causing me more stress. work doesn't help. and I took a rest from running 5k 3 times week but this weekend I'm starting again. also next week start yoga sessions. I wont take zopiclone until Sunday night then none until Thursday. all other nights I have melatonin and depends on how bad paresthesia pain is then take PararelieF night paracetamol. they are the best for sleeping if in pain. I will try get magnesium cream - I've got too many oral meds OTC with the odd zopiclone on the go! I agree doctors don't know how to really treat withdrawal symptoms. I felt like screaming today thinking how long more of this. its not just anxiety but now depression. I've also found I've lost my enthusiasm for things, or everything is stressful chore. got this 'cant be bothered' attitude. Does your paresthesia wake you up? I find it's the vivid dreams wake me up, then because I start thinking after 2 minutes the paresthesia kicks in but it doesn't wake me up. it's strange. during the day if I have negative thoughts it also starts. have you noticed if your symptoms have eased over time? Vivi

    • Posted

      Hi Vivi, Did you taper off the mirt or quit cold Turkey? I only tapered to 3.75 this time and have suffered more. I dont think the burning and tingling wakes me but I get it more in the night. I think the sweats wakes me more. I feel depressed too. I have never suffered with the nightmares but have read of others doing so. Hope it all gets better as time goes by. The pandemic hasnt helped at all. I cant believe what this drug unpacked on people! keep in touch, best wishes Viv

    • Posted

      Hi Vivienne, I cant really remember exactly but was advised by a doctor to taper off 30mg & then 7.5 over a month. 1 every 2 nights for 2 weeks then the rest every 3 nights. I felt ok then all nightmare withdrawals got intense after 2 weeks of last dose. that was 4 months ago. it's not getting any easier. last night and today was really hell. woke up 5am then the burning started, it was bad this morning. need to find why worse some mornings than others what the triggers are. I took 2 paracetamol. didn't work, the took a zopiclone which gave me 2 hours sleep til just after 7am. cant keep doing this. nearly in tears at times. I notice some hope for us sufferers on this forum. a lady said all the horrible symptoms went after 7 months cant remember how long she was on the mirtazapine. have you noticed yours at 7 months not as intense as previously? even there are longer gaps between symptoms? I'm 4 months and not much improvement although some nights haven't been as painful then get worse again. ive thrown out the rest of the melatonin pills I took last night. I've got different pack to try. I think there are certain triggers it's a case of process of elimination. have you started yoga? Vivi

    • Posted

      Hi Vivi, Sorry to hear you're having a bad time. I'm the same but with lack of sleep and feeling very low. some times feels like I'm getting better then reverts back again. the y say healing comes in waves and windows but I dont seem to get any windows, only fleeting moments. Healing can take months, hope we both start to feel better soon. I havent started yoga yet, have you? i go out walking every day though. take care keep in touch. Viv ps how long were you on the mirt?

    • Posted

      Hi Vivienne, it seems to be getting worse, 4 months now. I've taken zopiclone every night 2 - 3am when wake up then the electric burning zaps & horrible nausea starts 😰 if didn't have to work it wouldn't be as bad. I've got another blood test next week. I'm crying over things, then angry this is happening, then terrified & anxious. I've been on mirt 4 years & before that 3 years sertraline. like you I keep thinking its getting worse. I go out walking & running every other day. maybe by Xmas we'll by fully back to normal. do you wake up at 2 or 3am & what symptoms do you get, how do you cope with them? do you need to go to work in the morning? Vivi

    • Posted

      Hi Vivi, yes I feel it's getting worse, going through a bad patch now, I wake constantly through the night mainly just insomnia, sometimes pins and needles , I wake up very nervy feeling, dreading the day almost. I just lie and try to do deep breathing, sometimes get up and have some horlicks, sometimes take sominex but try not to. I dont work, I'm retired so it must be very difficult for you going to work also. Keep going and try to stay strong, we will get there one day, I made the biggest mistake by going back on after 9 months😪. take care Viv

    • Posted

      Hi Viv, this is not good. is yours 7 months of this hell? I'm hoping you will be posting here saying it gradually easing etc. it probably just wont stop overnight. I signed off work lunchtime today, couldn't cope anymore, felt overwhelmed, dizzy & anxiety attack. I know wont get paid but hey ho one's health is more important. I phoned a doctor, was more or less told all in my head & need to control my anxiety and cant be withdrawal symptoms at this late stage. and told its just me needing to relax, told to stop taking my OTC drugs & learn breathing techniques. i going to struggle. Easier said than done. yes, I can relate to the insomnia but worse is the burning paresthesia - not getting any better. cold water on arms helps. I'm going to have to practice deep breathing. you're so lucky not having to work. do you find breathing exercises work? Vivi

    • Posted

      Hi Vivi, I am so sorry to hear you're suffering so much. No it hasnt been 7 months of hell, it is gradually improving as I know this is what everyone says and it's TRUE, but a long journey. Last night I actually slept right through first time in months. I've heard before what the doc said to you, and many many people are suffering protracted withdrawal from this terrible drug. we cant all be imagining it!! Docs just dont acknowledge withdrawal. It's so annoying to hear that from them. What otc drugs are you taking? Yes the deep breathing helps at night. All I can say is keep going, it does get better, I have wanted to go back on many times when going through a wave but glad I'm sticking it out, otherwise you have it to face all over again. Good days will come, I have found omega3, vitd and magnesium glycinate to be very helpful. Hope you enter a window of calm soon. 🙏Take care Viv

    • Posted

      Hi Vivienne, that's good news, light at the end of very long dark tunnel for you. the anxiety waves should be getting less frequent then will eventually disappear hopefully. I'm off sick today had another awful anxiety attack 2:30, then 3pm & took pararelieF night. they help. I'm only allowed paracetamol by doctor. I was told to stop taking my prescription zopiclone. also stop my OTC melatonin & anything other sleep aid I've been planning to try. Because symptoms have lasted so long now, doctor thinks it's not withdrawal symptoms anymore but something I need to learn to control in my brain. I'm not convinced! I never had intense symptoms like this before in my life. and coincidence symptoms appear after stopping long term mitrazapine. I'm taking vitamin B12 and after I go for fresh air therapeutic walk later today I'm going to pharmacy to buy magnesium. I'm finding deep breathing help but my problem is I must learn to be more patient with it as it takes a while to work. I was thinking of seeing private psychiatrist doctor for 2nd opinion. have you seen any other doctors or psycho therapists? Vivi

    • Posted

      Hi Vivi, I would definitely say that it's the mirtazapine that has caused all the symptoms we are experiencing. Before mirt I never knew what anxiety was!! I was given it because I wasnt sleeping too good and feeling a little low, If I had known how much suffering it would cause me coming off, I would have run a mile! No I have not seen any phycs or other doctors, not got any faith in them at all, from what I've heard all they want to do is try other a/d 's, which I will never touch again. My husband and daughter both tell me I'm getting better, it's o hard to see it yourself, but generally think im improving mostly. My doc wouldn't give me zopiclone so I managed with valerian or the occasional sominex, some people take benadryl for sleep I read. Hope you have a better day tomorrow. Viv

    • Posted

      Hi Viv, really strange last night, 1st time in ages not sure what happened but the usual wake up 2:30am. I thought oh no the paresthesia pains will start, but nothing just insomnia, it was really weird. I hope this is sign its abating. maybe it's because I took no melatonin as doc advised, also had lavender tea, magnesium & dark chocolates before bed. As I didn't want this paresthesia to start I went against doctor advice & took zopiclone because I needed sleep to get up for work. I slept till 7am when alarm went on. I hope for same again tonight but I wont take zopiclone & hope it just improves over the next few nights. thats good that you are starting to feel better, just hang in there its probably gradual process to full recovery but I absolutely agree that drug is evil. there should be government health warning with them. I never ever want to see them again not alone take them! I'm starting my 1st meditation class next Tuesday. It's a lot cheaper than seeing a private psychiatrist at £120 p/h which probably wouldn't make any difference & try put me back on those meds. how do take the valerian? is it like a tea or pill format? Vivi

    • Posted

      Hi Vivi, glad to hear the parethsia has waned, things do seem to come and go, my insomnia is back again, good days and bad. Have you tried magnesium for sleep from"better you", I think it helps. :You can get valerian from boots in tablet form, helps with sleep. Do you work full time? it must be hard. Exercise and fresh air are all helpful I try to do each day. let me know how the meditation class goes. Take care, Viv

    • Posted

      Hi Viv, strange how these anxiety symptoms taunt us. it goes away for a while giving false sense of security of peace then after a while strikes. it's so nasty & evil to keep coming back. Last Monday I did 5k run non stop felt great no aches like I had before. maybe the vitamin B12 is working. I did 5k walk today. I've been taking Boots vit B12 for 2 weeks & just got MagCitra magnesium 2 days ago from local pharmacy. also take tumeric 2 months from Holland & barrett. I work full time 40 hr week, its stressful so happy its now Friday & can chill out at weekend. tonight no zopiclone & I'll just do deep breathing get into the habit for natural methods. I'm looking forward to the medication. do you exercise every day ,& what do you do? Vivi

    • Posted

      Hi Vivi, That's good you are doing 5k run and walk! I try to walk each day twice around the park and exercise bike 10km. Do you still wake alot through night? that's my biggest problem, would feel so much better if not for insomnia. Trying to stay positive but very hard at times. I'm caring for my granddaughter today, bad weather here in South West. Enjoy your weekend and chill. Viv

    • Posted

      Hi Viv, yes still have horrendous insomnia. I thought it was getting better but last night woke 2:30am. because I did not have to get up early for work i didnt take zopiclone. but the anxiety kicked in with the awful burning paresthesia. I had window open to keep cool and could hear mungjacks howling in the distance. most nights they are quiet. I must have eventually fell asleep then 6:30am woke again with same. I had mild anxiety & headache all day & walk to local shops helped a bit even in miserable rain. it's nice you have grandchildren to look after & keep your mind occupied & happy? I dont have children, too old now at 62. I would love to know what other cases of severe mirtazapine withdrawals doctors had on their records and what the outcome was? I'm out for usual Sunday 5k run tomorrow with friend then we go for couple drinks afterwards. I hope when start meditation Tuesday it will help. Hope you have nice weekend. Vivi

    • Posted

      Hi Vivi, How are you doing today, did you have a good run? the patient website was down yesterday when I tried to reply, I thought they had blocked me because of being on it too much lol ! I dont know if you would like to chat on messenger if you have face book? I dont think we would ever know about outcomes of other cases but there seems to be lots of people suffering from this evil drug. Mu sleep seems to be improving but other symptoms come back again. I feel quite depressed at times. Are you still able to enjoy a little drink? I have totally lost taste for it and I loved my wine. Take care, best wishes Viv

    • Edited

      Hi Viv, I did notice the website was out of action, as I use my phone most of time to do internet I initially thought it was my phone or had broadband problem. I just did 5k run now but getting dark so quick now I'll have to start run around town for winter again as I normally go out to the lakes. I live in Buckinghamshire, there are lots of lakes. I'm exactly the same as you, have moments where I feel normal again (I wish). then the the headaches return. insomnia is the worst. 2am again this morning - horrendous. Yes, I can do Facebook although I had an account I can see if I can resurrect it became I haven't used FB for long time. As for wine consumption its got worse with this these withdrawal symptoms. strange all the symptoms go away when I'm out socializing or in the bath or exercising. How do I use messenger? Vivi

    • Posted

      Hi Vivi, just noticed one of your replies has been deleted by moderator. messenger is through fb, I can send you a friend request or you can send me one. anyway. you live in a lovely part of the country as do I in Devon, although I'm a northern girl, have been here 39 years. Hope your meditation class is helpful, we just want to see light at the end of the tunnel? Take care, speak soon. Viv

    • Posted

      Hi Viv, how are you? I had sent the last message twice because the 1st one didn't send. I sent it again so the duplicate must have been deleted. I had horrible panic attacks all day yesterday & the night before. Also early this and all this morning working. I took 2 propranolol, not sure they worked. the headaches are annoying, always there in the background. I must say the meditation yesterday was interesting. there are 5 of us. I was still having headaches during 1st half of session but I felt lot better when I left. how to we communicate on fb? I haven't forgotten my login details as just logged in ok. Vivi

    • Edited

      • Hi Vivi, Nice to hear from you and so sorry to hear of panic attacks, fortunately havent suffered them but feel very anxious and sleeping badly again. It would be nice to chat on messenger. I've tried propranolol before supposed to slow heart rate I believe. Take care. best wishes Viv

      Moderator comment: I have removed the personal details as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

    • Posted

      Hi Vivi, my name and contact details have been removed by moderator 😞 Viv

    • Posted

      Hi Viv, I suppose it depends on what the personal details contained l, as the public can see it. was it full name, email etc? I had doc appointment this morning for blood test. I asked to include Thyroid. these symptoms are starting to make me more anxious, its chicken & egg situation. i wonder what's happened to all the other sufferers on this forum? like they've all disappeared, have they all fully recovered, are happy back to normality (I hope) etc? it's really strange we havent heard of any outcomes yet. surly there must be some research, stats & trends from cases? how do we communicate via this private messenger? I dont know what or where it is? 🙄 Vivi

    • Edited

      Hi both,

      To use the Private Message service just click on the envelope/Message link under the username as highlighted in below image. This will let you send PMs that will not appear on site.

      NB you will not see the link under your own name, it is only visible under other users' names.

      Regards,

      Alan

      image

    • Posted

      Hi Alan, I'm struggling to find any Envelope link/icon under a username. It just shows blank? Do I need to click on anything else first?

      thanks, Vivi

    • Posted

      it looks like the icon had appeared now. not sure why I couldn't see it 1st time. I need Specsavers!

    • Edited

      hi there...

      i wanted to reach out for some hope. i know this post is from a while ago but if you get this message can i get some encouragement. i was on 7.5 mg of mirtazapine for around four months. my doctor pulled me off of it to switch to trazadone so i went off basically cold turkey. when i got wd symptoms i didnt even know what was happening. i stopped all my medication immediately. it took me a month to even realize i had been having WD symptoms.

      i went to see this holistic doctor and she put me on a lot of vitamins, but one she put me on was this stupid all natural Mood Joy which has 5-htp in it and St. johns worts which naturally increases serotonin. now before everyone comes to bite my head off for doing that i had no idea. i am now weening myself off of this too as i want to be off any medication that i can. i am also now on 12.5 mg of hydroxyzine (which i have been on in the past for my eczema) but im using it for sleep. i plan to ween off this as all eventually too. a pharmacist told me it can take months to get off this medication and that some people he knows uses 5-htp and hydroxyzine to help them as a they withdrawal. obviously i wish i didnt take them but here we are folks for now.

      i understand the waves thing. this is how its been for me and maybe for someone else? Its like i go through some withdrawals for a week then ill have a good two days then withdrawals but shorter this time and lighter, and then another few good days, and the cycle keeps going. was it like this for anyone else? im sure a lot of people on the other side of this probably stay off the internet now and dont look back and i dont blame them. each month i feel myself slowly getting better, but always need reminded of hope.

      some symptoms i have are: lack of appetite, rush of energy in the morning and usually diarrhea (sorry tmi) too. has this messed up anyone else's stomach? its scary eating sometimes i feel like it gives me a surge of energy i dont want. ive had to eat small portions. my CNS feels jittery and wired. my heart feels like its pumping hard especially in the morning or after eating. each month it feels like my head gets lighter and lighter which is nice. like i cant describe it but if i had to like someone lifts some of the fog. tremors sometimes but that has mostly stopped. temperature control sometimes im very cold at night usually im very hot. sometimes ill also get a lot of mucus draining too.

      also did anyone reading this have stomach issues while ON mirtazapine?

      anyways, i hope youre still doing well Christine. if you see this could i get some encouragement?

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