Misdiagnosis or just a horror case?
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One day I woke up with light red dots all over my wrist and palms. It looked like someone took a pink highlighter and made dots all over. That went on for a good 1-2 months. I didn't have scabs, they didn't hurt, they just itched. When I scratched the ones on my wrist enough, it would become extremely pink/red (i'm super pale btw) and kinda raised. 99% of the time, the dots/spots were flat, not raised like hives although a few times one or two were hive like. I checked my bed for bugs, washed all my bedding and clothes and nothing changed. I went to my doctor to see what it was because it had worsened to the point my wrists were COVERED and it started spreading to my knees. She told me to go to a dermatologist.
I started getting them on my thighs, inner thighs, tummy, and some times on my chest. I also had them all on the bottom of my feet, around my ankles, and in between my toes, but only like once or twice. I saw the nurse practitioner there and she said it was scabies, she looked for burrows and said she saw some. She said that they do not go on your face yet I had some the first day around my lips and one even slightly on my lip (which was gone the next day). She prescribed me medicine, it was a few pills, I followed the instructions (washed and sprayed EVERYTHING in my house) and things got a bit better over time.
Yet I still have them. Some days I have not one spot then the next day DOOM i have them on my arms, top of the hands, and legs. I take 2 benedryl everynight to help me sleep and to help with allergies and I've noticed that if i dont take benedryl everynight, thats when they pop up more. Every time after i shower or use hot water or am hot at all, they tend to pop up. I do have slightly dry skin. I don't know what to do. I just FEEL like its not scabies. The medicine didn't work. The washing and sprays didn't work. Its now been close to half a year of having whatever it is i have and i'm at a loss of what to do. Treatments aren't cheap. I was (and still am) on anti-depressants, anxiety medication, thyroid medicine, and blood pressure medicine (for anxiety) at the time I took the scabies medicine. Could that have anything to do with why I still have the spots? I didn't ever go anywhere besides the store & doctors office (which was months before spots popped up) or see anyone besides my family when I got them, all whom did not get the spots/rash. Still, nearly half a year later, no one in my household has gotten them. I do have a cat who lives in my room but he never goes outside. We have 2 dogs and another cat.
I added photos of what they looked like before I took the medicine. Now with they pop up they look like picture #3. Spaced out, almost like large pink freckles. They go away in a few hours to a day.
0 likes, 17 replies
Katelyn830
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marisss92664 Katelyn830
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My naturopath told me to pulll my bed apart again and use a lighted scope and look real good. I was dragging my hand along the box spring and something bit me so hard it hurt worse than having a baby natural. I looked on my nuckle and it was clear and a little white cast to it but tiny. It was literally latched on like a LEECH. I had to try a second time to dig it off my skin and it still hurts. I lost the stupid thing on a white tissue. Went to a stat care again and the QUACK of a doctor said oh it had to be tick. He wouldn't even get within 10 feet of me to look at the wound and just prescribed a cream. THERE IS SOMETHING GOING AROUND THEY ARE AFRAID OF AND WON'T TELL US THE TRUTH WHAT IT IS. All I know as I have seen this in the last two weeks for 3 doctors, none of them will physically examine the wound (wouldn't that be the logical thing to do?) and they won't get within 10 feet of you. THEY KNOW SOMETHING!
Anyways getting back to what I recalled two days ago. I was in virginia beach and visited the convention center and on the roof they have a window enclosed bird sanctuary with an open roof. I spent an hour in there looking out the windows as it was a beautiful view BUT the view was distracting me from what was really in there. HUNDREDS of birds, tons of bird poop EVERYWHERE. Everywhere you looked bird poop. So there I was touching railings, leaning on things and BREATHING in stuff.
BIRDS HAVE MITES! They BURROW and act JUST LIKE SCABIES! But will not present in the same places as scabies totally. These doctors are dropping the ball. People that have rashes like ours that look like scabies and don't react to permeth cream or come back after several treatments ARE NOT scabies but bird mites, rat mites, mice mites or any other of the hundreds of other mites found in nature.
I know my life is over as it has been weeks upon weeks of this hell. I have now had diarrhea for two weeks straight, am very dehydrated, feel things in my sinus, pull wormlike stuff out of my nose every single day and even feel like worms crawling in my anus (internally crawling).
I hate the way this has gone but please don't ever think you are crazy. It is not our fault doctors and useless, pointless and only interested in half arsing their jobs like everyone else anymore.
I don't mean to scare you but just letting you know you are not alone and you are probably in for a real hell of a nightmare of a ride.
Katelyn830 marisss92664
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Katelyn830 marisss92664
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brian60144 marisss92664
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I am also in Virginia and have been battling a similar situation for almost 2 months. Did you ever find out what you have? Is it cured?
marisss92664 Katelyn830
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I am disgusted that there is no help for us (if that is what this is, seems to be in most cases). I am calling the health department again monday for more advice now that I remembered about the bird sanctuary and they will probably be useless again. Next I will try the cdc and that is all I have left.
marisss92664 Katelyn830
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marisss92664 Katelyn830
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fellowsufferer Katelyn830
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marisss92664 fellowsufferer
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fellowsufferer marisss92664
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Katelyn830 fellowsufferer
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tracy50607 Katelyn830
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Katelyn830 tracy50607
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cikabutan Katelyn830
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Katelyn830 cikabutan
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