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Mobility in post viral syndrome cfs / me

Posted , 10 users are following.

royalty
royalty

Does anyone else experience walking probs I am having heavy legs tingling in bottom of feet balance problems when walk 100 metres or more 

1 like, 63 replies

63 Replies

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  • Patrick957
    Patrick957 royalty

    Posted

    Yes, I struggle to walk 100 metres, for 10 months now,this is my 3rd relapse in the last 15 years. I always feel like I just ran a marathon, my lactic acid levels and cpk levels have been really high as if I had just ran a marathon as well,lactic acid builds up when your muscle don't get enough oxygen,that happens when you do anaerobic exercise

  • dee53012
    dee53012 royalty

    Posted

    I keep wondering, almost all of you here have so many of the symptoms that I have, but I have polymysitis.  have any of you been muscel tested?  they say it is rare, but I think it is underdiagnosed.  do any of you get rashes? If so, have you have them biopsied? it is truly amazing the similarities.

     

    • GeorgiaS
      GeorgiaS dee53012

      Posted

      Yes, I get rashes, hives, prickly heat spots and skin itching. I have to take antihistamines every day, which I really don't like to do!

      I haven't had them biopsied; I'm not that my doctor would do that. He couldn't even send me for allergy testing; said they no longer do that.

    • dee53012
      dee53012 GeorgiaS

      Posted

      I hope you can get tested for both celiacs and polymyositis. if you push hard, they will test. Not until I was so angry with the doc did I get tested. I knew I was dying and he would not listen. I told him "You biopsy this rash or I will find a doctor who will; will you test it or not?"  I was ready to walk out  . . .I wish I could have bottled his expression.

      I wish there were a way to make doctors respect people and beleive them when they complain, instead of looking at us like hypocondriacs. I have totally lost respct for western medical doctors.  They don't care. 

      breathe . . . I will not rant. I will not rant. I will not rant.  breathe . . .

    • GeorgiaS
      GeorgiaS dee53012

      Posted

      Heck 6 of our comments deleted! What did we say that was so bad I wonder. eek

    • clivealive
      clivealive GeorgiaS

      Posted

      I wish there was a meaningful and understandable answer to the "Why?"

    • GeorgiaS
      GeorgiaS clivealive

      Posted

      It might be because we're a bit disilusioned with what doctors can't do for us! 

    • clivealive
      clivealive GeorgiaS

      Posted

      But it's not as if we are irresponsible teenagers, simply patients trying to explain our symptoms and get the treatment we need.

    • GeorgiaS
      GeorgiaS clivealive

      Posted

      And trying to pass on what we've learnt. But we're not allowed to air certain opinions and protocols.

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