Posted , 63 users are following.
I had my third treatment 10 days ago. No uti since I started like 3 months ago. BUT now pain n stinging. Thought uti but tested not. Uncomfortable for a week. Even used prep h to try to stop painted it actually work for a while I'm also doing the ice cubes… So anybody out there can share their experience with me I sure would appreciate it
1 like, 331 replies
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Mimmmie nancyo
Posted
This procedure made a huge difference to me. I'm a bc survivor on hormone blockers, and the dryness became excruciating, and not just during sex. I had 4 treatments, that were painful and uncomfortable, and took 10 days to recover each time. Aquorfor helped alot. But after 4 treatments I can honestly say sex is comfortable, and in general I dont feel any pain. My medical insurance covered the procedures, I had a $30 copay. i might have to pay for annual touch ups though, but will ask for an exception. Don't give up, this procedure really works. It was gradual though. After 8 weeks (after 4th treatment) I realized I didnt have any pain. GOOD LUCK!
Dotsie Mimmmie
Posted
Thanks Mimmie for your positive post. It just shows there are different reasons for developing VA and varying levels and symptoms. I'm thinking positive and know there is nothing else for me to try ...onwards !!!
gilda17265 Dotsie
Posted
any follow ups
marilyn090257 Mimmmie
Posted
Can I ask which insurance company you are with...I can't afford the treatments any longer and would like to buy some insurance....
Mimmmie marilyn090257
Posted
AVMED in Florida.
beverly52803 Mimmmie
Posted
I wonder if it was covered because the condition was caused as a result of BC treatment? I assume you cannot take any estrogen, right?
Mimmmie beverly52803
Posted
Yes, you are correct, although after a UTI my urologist said topical estriodal was ok, but I opted not to use, but have gotten much relief from pelic floor phyiscal therapy.
shelta05674 nancyo
Posted
I had the laser done less than a year ago, and it only lasted for about four months at the cost of $2900. It was great for awhile, but I was very disappointed at how short of a time it lasted. Then as I checked out, I was told I'd need to come back every year to redo it once at $800 a session. Wish I'd known that up front! I paid with my HSA money, which caused me to pay out of pocket for all medical the rest of the year. Had I known the procedure wasn't a lifetime fix, I'd never had had it. My insurance refused to let me use the cost towards my deductible even though it was a medical procedure my doctor and I discussed. She even gave me the name of a Dr. that did this procedure. So, now you have the info I didn't have. This is another procedure only for the rich, because you'd have to have it done frequently to work, the rest of us just have to suffer...
Dotsie shelta05674
Posted
Hi Shelta I feel the same as Beverly and sorry for you that this has happened. Unfortunately there are alot of cowboys out there and the most important thing with the MLT is research,research and more research. Any decent qualified and well practiced user of this machine would have explained everything up front to you.It does work if used by that person. I researched everything for a long time and found the right team 400 miles away from my home. I am so much better. Did you have your labia done as well as the inside vagina walls? There are so many things to be taken into consideration as every case is different both in symptons and severity.There are also patients out there who haven't had to go back in a year or two's time for more treatment. Alot of this is due to being educated about your own aftercare...diet,fluids and lifestyle. I had a bad experience over a year ago with a team of women who genuinely set up a clinic to help woman with vaginal health problems ..midwives and nurses...unfortunately the training wasn't there and i suffered pain during the treatment which is a BIG no no during the MLT. I had to put it down to experience and carry on with my journey and thank goodness i did. There is no cream,ointment,hormone pessary I hadn't tried. Wishing you luck in your journey..
gilda17265 shelta05674
Posted
yes you can never stop - and if you stop you have wasted all that money and symptoms come back - expensive investment
gilda17265 shelta05674
Posted
any follow ups
beverly52803 nancyo
Posted
shelta, it's very unfortunate that you embarked on this costly treatment without being made aware that the results are not permanent and treatments are ongoing. Was there no literature for you to read? Did the referring doctor discuss details with you? Surely the doctor who did the procedure should have had you sign some sort of release.
I knew I had atrophy but it did not create much discomfort so I was waiting for problems to develop before having the ML treatment. Instead I have been diagnosed with a more serious issue so will not be having the ML.
Do you use hormone cream? if not, you might want to start using it. I avoided using the cream for several years, but have no choice now as (according to my gyn) low estrogen has caused LS to develop.
As you mention an HSA I'm assuming you are in the US? I think in order for insurance to consider it a medical necessity you have to have tried other treatments that failed and even that it may depend on the company.
shelta05674 beverly52803
Posted
I'm so sorry to hear of your worsening issue. I hope you find some relief.
I think you were saved from wasting your money. Sadly, I never spoke with a doctor, because the clinic is only FNP's, which are OK for minor issues. I brought it up to my Gyn and she said she was aware of the procedure, gave me some doctor's names, that I SHOULD HAVE GONE TOO, but went to the one I heard advertised. MY mistake! I think going to a doctor would have been better because he or she would at least discussed it in length, with me. The doctor's names she gave me also used a different procedure than the ML. It is basically the same procedure just a different brand.
Yes, I believe there was some literature, but nothing about the maintenance was on it. I was given the cream to use every night, by my GYN, but who can remember to do that? I'm sure if I did it every night, it would have been more effective than this procedure. I've recently seen an Endocrinologist about hypothyroidism, and he said there is no reason I cannot take plain estrogen as long as it is without the progesterone. The study that was done that made doctors stop giving the estrogen after so long, was progesterone and estrogen combined. Just estrogen is harmless. He advised me to talk to my GYN, and she was good with it too. I am already seeing a difference, after only three months! Praise the Lord! My GYN still wants me to use a cream, that has many other benefits, only two times a week. That's plausible!
Also, my insurance BCBS, just doesn't pay for this because it's deemed experimental, and not FDA approved.
Prayers for you! I hope you get great treatment for the LS, and feel better fast.
shelta05674 nancyo
Posted
YES, a maternal grandmother which is why my primary doctor stopped the estrogen with progesterone after ten years. Later my mother had ovarian cancer, but BRACH1 ( not sure how to spell this) testing showed it was not genetic.
L3359 nancyo
Posted
Hello
I just had my first treatment and am experiencing burning, mild bleeding and bladder spasms. Is bladder spasms a common side effect? I chose to have the treatment because of LS. After reading many comments here about side effects and healing, I am not sure if I am continuing the treatments. I was assured the MLT wand was on the lowest setting. I am praying that this gets rid of the LS. It is either Steroid cream and the constant flares or MLT...what is a women to do? It has been interesting to read all the different perspectives. Thanks. I will wait the 48 hours and report back.
marilyn090257 L3359
Posted
Hi Nancy
My best result was my 4th treatment and I believe that the laser was turned up very high because it hurt each time he zapped me externally...however I had instant swelling and some burning which subsided within a few hours. No burning in the urethra. Then the itching subsided for two days, then it started to itch again only on the major labia, at the top. Finally, I put some cortisone cream on it and it went away for another few days. However, I had to put this cortisone cream on it again. Now a few days later, I feel much better, in that I don't have itching going on and occasionally only get a minor twitch that I can avoid scratching.
Maybe we just need more time...I don't know......I hope this is all I will need. I have to say that I am much better than when I first started the laser treatment.
I think it's different for a lot of us some women have gotten immediate results that was life changing and others get some relief and then there are people like me who have to take more treatments and I just wonder how many of these treatments we can actually have and not have a side effect from the treatments.