Mono need help

Posted , 34 users are following.

Hi so In June I woke up one morning feeling very weak. I thought I needed to eat something but when I ate breakfast I still felt weird. I ended up having my first panic attack. My entire summer was filled with ER visits for weakness, low energy, fatigue, dizziness, off balance feeling, and generally feeling unwell. It turns out I have mono (diagnosed a week ago). I don't know what to do. Just looking for others' stories and well and recovery process. It's my 3rd month and I just feel so helpless. ?? Thanks guys ! Blessing to all 

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  • Posted

    Sorry for the late reply. The light headedness got soo bad I ended up in the ER. Ofcourse they didn't find anything but I just wanted to go and hope they'd find something,l. UGHH this is so weird 

    • Posted

      Hi Christy,

      ?My daughter had the lightheadedness, and also went to urgent care. They didn't find anything either, said maybe she had another virus on top of mono and that sometimes the virus effects the inner ear and that can cause it, I hope you feel better soon, her dizziness did pass.

  • Posted

    Mono and Rhonda what did you do to cope ? 
  • Posted

    Ugh I'm having brain fog guts forgive me. I meant Mono and Caroline 

    • Posted

      Hi Christy

      I am so sorry you are going through this Christy . The only symptom I didn't have is dizziness. I do/did have lightheaded from time to time. I did nothing about it just sat down or laid down and hoped it passed. It seems like for me this virus makes me crave sugar. I've never a big sweets person but since having this virus that is all I want and when I have it it makes feel so good. Not sure if that makes since. In the beginning I had terrible brain fog and head pressure. I went to the hospital for it because I was convinced that there was something wrong with my brain especially with all the neurological symptoms. They did the scan and found absolutely nothing. Said everything looks perfect. This virus is just awful. I know you can't understand it now or believe you could ever get better from this but please believe that you will. I felt that I would never get better. 

    • Posted

      In the beginning I knew or hoped I would get better but my mind just kept telling me I would never get better. And that I would be that way the rest of my life. I coul not control the negative thinking and the compulsiveness to search the internet all day. I became a mad/crazy person. I was never so pessimistic in my life and the scary part was that I could not control it. Losing control over my body and my mind made me so depressed and sad. I think I cried every single day until just a month ago. I just want you to know that it is all part of the virus and that it has to run its course whatever that may be but ultimate you will get better. I am having so many better days. I look back think that I've come a long way. I still have some ways to go but compared to the beginning I am so much better. 

    • Posted

      Yess it has soo many different symptoms for everyone , so tired of this. Thanks for being here for me ?? In days I like I doubt I'll ever recover but thank you for always being here Shawna. It was to get better some how. 😩

    • Posted

      Hey Christy,

      So sorry to hear you've been having these horrible attacks, I really hope they can settle down and sta away. Shawna is right it definitely can all be to do with the virus, it beats your body up so badly you strugglng to think that strange weird feelings and sensations like tingling and numbness and dizziness, weakness, etc can be coming from it, but I believe it can and the stress of the situation when that happens just intensifies how it feels and it just leaves you feeling horrible.

      But as Shawna says it definitely will pass over, want you to know that and just hang in there and don't look too far ahead, just deal with one day at a time and when those things start to happen just remind yourself that it will pass, breath deeply and remind yourself you can deal with it and that God is with you - take a lie down or a rest if it helps at that point and maybe listen to some soothing music and take deep breaths, remember it will pass over. Thinking of you.

      Craig

       

    • Posted

      AND remember you DEFINITELY WILL recover, 100% totally and completely, back to full health and enjoying life again - that IS the truth Christy so hang in there!!

      Craig

  • Posted

    I love you guy all... I'm not even joking lol 😂????????

  • Posted

    Hey again Christy!! I saw what you said about your vision being weird sometimes, but not bad enough for glasses or anything! Ive always had perfect vision and since i first got symptoms of mono 4 months ago, ive probably had 10 days where my eyes are weird and like unfocused, and kinda smudgey, its crazy how many symptoms we have in common! Also the past few days i got pretty anxious and sad about all this, it just sucks im in college but i dont go out because i feel s****y all the time. reallllllyyyyy hoping this goes away soon... i want everything to go back to normal. 
    • Posted

      Hey Chase, yea that is exactly how my eyes are most of the time. Just looking at my mom can give me a headache. She's so foggy and it's sort of like a daze. I know how you feel. I want to go back to school too all of this sucks and I don't understand it. sad  and yeaa we do have so many symptoms in common unfortunately. I much rather bond over favorite ice cream flavors than debilitating symptoms lol. Im always here to chat though !! 

      Also did anybody here experience dry eyes ? My eyes feel soo dry and so does my mouth. Maybe I'm not drinking enough water. I don't know but this feeling sucks

    • Posted

      Hey Christy and Chase, 

      I had trouble with my vision is the beginning as well. I really couldn't focus on anything and when I did it hurt my head. I also experienced dry eyes. All that has passed. 

    • Posted

      Hi Chase and Christy,

      Just want to offer some encouragement and let you know that yes these symptoms definitely can be normal and that they will pass over.....it's so hard to see or feel it at the time, but hang in there better days are ahead most definitely.

      Craig

    • Posted

      I experienced dry, painful eyes also. Vision got so bad for several months That I was afraid to drive sometimes. All of this came about the same time brain fog started. It is starting to slowly get better. I am 48 and they say the older you are the worse it is. I have been dealing with this for over a year. But I have had to work through most of it, so that probably lengthened my recovery.

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