Mono need help

Posted , 34 users are following.

Hi so In June I woke up one morning feeling very weak. I thought I needed to eat something but when I ate breakfast I still felt weird. I ended up having my first panic attack. My entire summer was filled with ER visits for weakness, low energy, fatigue, dizziness, off balance feeling, and generally feeling unwell. It turns out I have mono (diagnosed a week ago). I don't know what to do. Just looking for others' stories and well and recovery process. It's my 3rd month and I just feel so helpless. ?? Thanks guys ! Blessing to all 

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  • Posted

    I know that you guys aren't doctors and I don't need you to be because I'm actually working with doctors right now and I just want you guys opinion on this. While I'm going through mono it's been very hard as I'm sure you guys know. Before mono I was never mentally ill or anything but since mono I've been a wreck, i can't sleep , I'm anxious , I'm worried, feelings of low blood sugar when it's very normal,24/7. I have multiple hospital trips when I think I'm dying but really it's just anxiety. At this point we're really considering me going on a low dose "anti anxiety " med while I go through the rest of this mono stuff. I guess I just wanted to know you guys opinion on that. I kno I should do what's best for my health but still wanted to see what people who connect with these feelings think.  Ps: I tried so hard to be strong and say no to pills but at this point idk sad..

    • Posted

      Hi there Christy, 

      I say this from the bottom of my heart, I am really sorry you have to experience this. I really am. Everytime I read your posts you sound just like me in the beginning of mono. I just could not understand how my body was experiencing all of those symptoms and doctors could find nothing wrong with me. I went to the hospital and to multiple doctors so many times. All they could come up with was anxiety, "it's all in your head" is what I kept hearing. I started to believe them. I started to believe there was something wrong with me mentally. So I tried anti anxiety meds. They didn't work for me. I don't want to say how they didn't work because I believe the mind is powerful and if you hear how they did not work for me you will be looking for the same symptoms when they could actually work for you. Everyone is different. You have to do what's best and what works for you.  I pray that all these symptoms subsides for you really soon. I know how hard it can be, I really do. I do not wish this on anyone. 

    • Posted

      Wow that reply made me tear up Shawna. I'm just glad others know how I feel. I get my hopes up everytime I come to the ER. They say they will get to the bottom of it (since I still go to a pediatric emergency room). But they always come back in saying EVERYTHING is fine. I'm sad because not I can't keep living like this. I feel like yes the monk is horrible but the anxiety is really intensifying it. I'm going to try low does meds and I hope they take some of the edge off. I just want to feel normal again. Thank you for the prayers , sometimes I cry because I truly feel like I'm losing my mind. One day my whole life was sucked away from me and I never thought it'd last this long sad 

    • Posted

      There are SOO many typos in that last message. Sorry my mind is all over the place 
    • Posted

      Hi Christy,

      ?I haven't tried any of these medications, so I cannot give advise. Talk it over with doctors and your parents, the anxiety is just a terrible effect of the virus most likely, maybe you could try it for a time and see what happens. 

      ?I know you are trying to be strong, you are doing the right things by seeking medical care and support from the forum, This virus is a tough thing to get through but eventually with time these symptoms will gradually ease and start to go away although this can take many months.

      ?

       

    • Posted

      Thanks mono thats what I did. I was so skeptical but it worked a little for me and I'm happy lol. First time I didn't wake up in panic 

    • Posted

      I was on benzos before mono and I don't know if I would have made it without them. The dose I was taking was so low I was suffering from insomnia the first days of the disease, I had to take a little more in order to sleep well. They also helped me cope with my health anxiety because before I knew what it was, I was having very scary thoughts (I literally thought I was going to die.)

      But I wasn't able to control the nightmares, which I've been having since the first days of the disease (today I had a dream where I stabbed someone who was breaking into my apartment with a pair scissors on the neck, but he started chasing me all over the place and I was screaming for help, just to give you an idea of how bad they are.) I don't know if they have anything to do with the anti anxiety meds, though. I've read they can cause ugly nightmares, but before mono I was just fine, so who knows.

    • Posted

      Dan I'm really sad to hear that scary dream you had. I hope you can get some peaceful sleep soon. I know what it's like to go without it. sad 

  • Posted

    I would definitely recommend trying the low dose of anti anxiety meds. Im considering that myself as I watch my son go through his various stages of this virus. Worst case they don't work and you go off them.

    • Posted

      Thanks Lea. I guess I'm just scared about if I take these pills I'll become numb to the symptoms of the virus and that's not good but we'll see. I hope they work for you !!

    • Posted

      Hey Christy,

      I really understand how you're feeling also, the mental side of dealing with the virus is extremely difficult, and when something goes on for a long time the feelings of hopelessness and fear and anxiety can be overwhelming - I do want to reassure you that these will pass along with the physical symptoms, it's such a rollercoaster I know and want you to know that everyone here is rooting for you and that I for one believe you will get through this and recover.

      In terms of anti-anxiety medications, I don't have any personal experience of this - I do have a lot of experience of anti-depressants though and these can really really help, that might seem like an extreme option I know and everyone has their own opinions on it, but it's always an option worth discussing with your doctor and there is nothing to fear or be ashamed about being on anything like that - you just live a normal life taking a tablet each day and feel a bit better for it. And you don't have to be strong by not taking anything, it's okay to take something to help Christy and if it doesn't agree with you then you can stop it so there is always a way out.

      Craig

    • Posted

      Hi Craig thanks for that ! I tried my first dose of anti anxiety last night and it was the first night I slept straight through the night in a very long time. Ugh it brought tears to my eyes. Something to releave some of the stress is a blessing 
    • Posted

      Well that is something positive Christy, give them a try then if it helps you get a good sleep that is a real positive - you need to get plenty of rest at this time! Craig
  • Posted

    Hey! has anyone here experienced recurring symptoms?? I got the sore throat and lymph nodes twice a couple months apart, doctor told me it can happen but i was just wondering if anyone on here has gone through this!
    • Posted

      Hi Chase,

      Yes I experienced reoccuring symptoms when going through it, just seems to go through a cycle and want to reassure you that will pass over and is normal within the course of the virus - hang in there I know it's really tough but you will get there most definitely.

      Craig

    • Posted

      Hi chase,

      yes, I'm still getting sore throats. My neck puffed up the other day, first time in the whole illness (now 11 months suffering) my symptoms come and go... More better days but its still really hard.

      youre not alone!

      caroline x

    • Posted

      Hi Chase

      I am in a cycle now. This weekend has brought back fatigue, depressed/low mood, sore throat, neck pain rapid heartbeat/anxiety. I have had so many better days for last couple weeks. Felt more like myself. As I understand it this virus has ups and downs.  As time goes on it gets much much better. You can start to see the light at the end of the tunnel. It's still frustrating though. Now, when I start to get any symptoms I immediately just rest. I am believing we all will get through all of this we just have to let it run its coarse and give time for our bodies to defeat this awful virus. 

    • Posted

      Hi Gee,

      I just sleep a normal amount of time, about 8 hours at night now, I sometimes still take a rest at some point in the day depending on what's going on but I think that's just me rather than anything to do with glandular fever because that was a long time ago now.

      Craig

    • Posted

      Yes, my throat started hurting 3 days ago and the right side of my neck is tender. I thought I had recovered from the sore throat (my tonsils were completely white), so I don't know why it is hurting again (the white thing is gone.) I also get night sweats every now and then. I think it's part of the recovery, so I expect other symptoms to recur. 

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