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Mono need help

Posted , 34 users are following.

christy32934
christy32934

Hi so In June I woke up one morning feeling very weak. I thought I needed to eat something but when I ate breakfast I still felt weird. I ended up having my first panic attack. My entire summer was filled with ER visits for weakness, low energy, fatigue, dizziness, off balance feeling, and generally feeling unwell. It turns out I have mono (diagnosed a week ago). I don't know what to do. Just looking for others' stories and well and recovery process. It's my 3rd month and I just feel so helpless. ?? Thanks guys ! Blessing to all 

2 likes, 733 replies

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  • lisa29739
    lisa29739 christy32934

    Posted

    Has anyone else had their EBV antibodies checked?  I just had mine and my Igg levels are above 600 which is super high (above 20 is positive).  So it looks like I'm still in the thick of the virus. UGH.  Wondering if over time that number will go down.  

  • christy32934
    christy32934

    Posted

    Hey guys I'm just going to talk right now. I'm currently on my holiday break from school and I've been working so hard in school and I really just want to enjoy the holidays but today is one of the worst days. I'm just really fatigued, bad nausea, & I feel like I can't move. When I do get up I'm dizzy and then when I lay in bed my anxiety is so high I'm so irratiable and i don't know 😔. My therapist is also gone for Holiday so I'm just a moody teenager who feels like s**t and is sad haha. 

    But I hope you all are doing well smile

    • 40with.gf.
      40with.gf. christy32934

      Posted

      Hi Christy!

      fatigue and nausea, I hate it, but it will pass, something my mum tells me when I feel bad!! I often say 'when' but I know we don't know, just the fact that it will happen. It feels like time drags when feeling bad. Just have to ride the wave and wait for it to pass. Nothing any of us want to do.🙄🙄

      at 12 months I'm not doing too bad, took the children swimming today, was lovely! I'm inching along!!😂 X

       

    • lisa29739
      lisa29739 christy32934

      Posted

      Hey Christy.  That sooooooo sucks.  I'm so sorry!!  That fatigue is terrible.  After two weeks of it being gone I'm starting to feel it creep back in.  It usually starts in my legs/feet.  And it's so freaking uncomfortable.   I hate it.  

      This might sound crazy- but do you play games at all?  On the computer or on a system like PS4 or Xbox?  I just started playing an epic game and it has helped distract me so so much.  And I can do it from bed.  Even though it's a fictional world I feel like I'm accomplishing something.  One of the hardest parts for me has been feeling so stagnant.  Without purpose.  The gaming helps that and also makes me feel creative and engaged.  Just thought I'd recommend it!  If you need any game recs let me know!  I love them all smile  

      I hope your nausea passes really quickly.  That makes things a million times worse.  Ginger tea helps me.  And ice cream smile

    • 40with.gf.
      40with.gf. lisa29739

      Posted

      Hi Lisa, 

      yessssss, my escape is candy crush! It takes your mind off feeling rubbish!!   

    • christy32934
      christy32934 40with.gf.

      Posted

      Hii !! Yes moms always know what to say even when we don’t want to hear it 😂😂.  So glad you got to take your kids swimming !! More good days than bad are always a plus 🤗

    • lisa29739
      lisa29739 40with.gf.

      Posted

      Ahhhhh I love Candy Crush!!  I also play online scrabble and cribbage.  Right now I'm obsessed with a game called Elder Scrolls Online: Morrowind.  It's like I'm living out my Lord of the Rings fantasy.  It's gorgeous and epic.  And after binge watching Outlander, it's totally a guilty pleasure. 

    • christy32934
      christy32934 lisa29739

      Posted

      Hi Lisa , right sooo sucks !! And I know what you mean. When I was sick I got on anxiety meds because I just wanted some relief. But 3/4 weeks in I wanted to get off. So I did. But then all my symptoms were there (they never really left) but I just was more sad and felt more emotion to them again. So yea i Know what you mean about symptoms creeping back up on you 😂. And yess I love games. I have an Xbox and wii but the wii has so many girly games I could play for hours 🤣. Thanks for tips !! ??

    • lisa29739
      lisa29739 christy32934

      Posted

      Oh my gosh if you haven't played the new Zelda you must!!  It's my favorite game of the year!  

      Yeah I totally get the getting a break thing.  A glass of wine does wonders for me but it's not good for my immune system so I only have one occasionally.  But when I do it's absolutely lovely to forget for a bit and just feel good.

      I can't wait until we can all write about our recoveries and all the adventurous things we do.  We should start a mono recovery support group!  

    • Sunnygirl123
      Sunnygirl123 christy32934

      Posted

      Hi Kristy,

      I just had the exact same thing! I’ve just started on my break after being back at work, and felt the worst I’ve felt. But today, back to feeling better. I think it’s just when you stop, it all hits for a few days, then you’ll feel better again. The fact that you now have good days means you are definitely on your way!!

    • craig07920
      craig07920 christy32934

      Posted

      Hi Christy,

      So sorry to hear you've had a terrible day with the fatigue and nausea and everything. Sometimes when you're busy like at school or something it's not until you stop that it can hit you worse, so want to reassure that kind of thing can be normal and that it will pass over and you will get back on track again.

      I just really hope things can settle down and you can enjoy the holidays more, really thinking of you and I do still fully believe you have lots of healthy and happy days to look forward to as a young woman once this horrible virus has passed for good.

      Hang in there - 2018 is the year of full recovery for you Christy, I do believe that in Jesus name!

      Craig

    • christy32934
      christy32934 craig07920

      Posted

      Hi Craig , it’s always great to hear you’re words of encouragement!! Yea this has been a rollercoaster ride and thinking about the holidays really get me down but thanks for keeping me optimistic that one day this will soon be over.. May 2018 be filled with blessing for al of us !! Thank you always ❤️
    • christy32934
      christy32934 Sunnygirl123

      Posted

      Hii , and yea definitely! Some days when I’m in school I’ll think to myself  “wel this isn’t too bad” but now that I’m not doing anything it’s awful haha. 
    • christy32934
      christy32934 lisa29739

      Posted

      I use to LOVEEE Zelda when I was little. Like i was completely obsessed your comment just brought back great memories 😂😊. Definitely have to check the new ones out 

    • craig07920
      craig07920 christy32934

      Posted

      Amen to that Christy, hoping and praying that God can have mercy and compassion and help 2018 be a year of good health, peace and blessings in all our lives - you and everyone on the forum here has suffered so much in 2017, but God is a God of recovery and of hope, so let's trust Him with all our problems and sickness and pain today.

      Thinking of you Christy as always, hang in there!

      Craig

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