MRI Results

Thank you!!!!  This was so discouraging to me, but at the same time, I must remind myself that it's probably not "new" and I have been living without the knowledge for who knows how long.  

But, what to do with the knowledge now that I have it????

There is a procedure called Kyphoplasty that could be helpful for the future, but I don't know if I'm a candidate.. and if I am, do I want to be???  

Pretty bummed today.....

Jill  

I have no information for you, but I suspect the fact you've little to no pain is a good sign.  Have you kept your supporting muscles strong?  The protocol used to make bones stronger from osteopenia also works when they've gone into the osteoporosis zone. Do you have any particular issues that could have contributed to bone thinning, or is it just the passage of time in the modern world?  

Look up combination of micronutrients for bone study bone density after micronutrient Intervention.

Yes, I have sought to keep the muscles strong.  I'm sure I could have been doing more.  No issues that could have contributed to the thinning as far as I know.  I had MANY tests more than 20 years ago, and just recently had a new work up on thyroid, and nothing shows up.  I was 30 when I was first diagnosed with Osteoporosis.  Through time, meds, supplements, I "only" have Osteopenia now, but my bones are showing decline.  And now that I know so much about the meds, I have refused them.  

The one supplement that I didn't know about until recently was Vit. K2. I have started that.  

The long cryptic list of words at the end of my post was my clumsy way of directing you to a study without having to run the gauntlet of the filter by posting a link.  It's a study which proved that nutrient supplements had a definite and significant effect improving bone density without other medications.

Oh thank you.  I definitely did not read between the lines!!! I DID pause, but not long enough for it to begin to register!!!! 

very clever Anhaga I just copied and pasted on Google and everything came up

​

VERY VERY VERY interesting!!!  I plan to print some of this out and take it to my nurse practitioner who I am seeing next week!

Hello Jill, with regard to vitamin K2, it is almost a miracle vitamin because it controls and acts as the trigger for many processes in the body, not only the bones. One of the biggies for me was to find that K2 actually clears out the plaque from the cardiac arteries and varicose veins as well as making sure that all that lovely calcium goes to the correct place.  It is now suggested that it could be of some assistance in the early onset of osteoarthritis and may mitigate the effects of long term arthritis. The last two need additional verification. I've just started my wife on K2 because it doesn't do any harm and may do an awful lot of good. Of course without K2, the calcium just doesn't stick and since it mainly comes from the flesh of grass eating animals, the amount in our diet is reducing because animals are now fed on pellets which are full of chemicals, not K2. Jean pointed me to a book which has lots of good information on K2. If you want the details, let me know and I'll message them to you.

Sure!  Send that along!

Hello Aristotle 13 ,I like your post .I just started to read this forum as I have osteoporosis and I am afraid to start with medication --they all have so many side effects .Could you pls send to me also some links or other ideas what and where to read ? Thank you very much .

 

Hello Mariana

I, like you and many others who post in the conversations and threads of this web-site, have osteoporosis and you are in good company.

Many of us have refused to have anything to do with most of the medications that are presented as cures.  There is a wealth of information on all threads and conversations dealing with the osteoporosis problem, and there are many who will be willing to help you.

Osteoporosis is curable in most cases by using supplements, the correct forms of exercise and changes in diet.

I use a book as my base for information and I have to send you a private message with the details or the site moderators will hold up the post. For me, it is approaching my bedtime and so I shall get back to you tomorrow. You may find that some of my good friends will also get in touch with you since we are like a loosely knit family with members from all across the world, all with a common goal.

Until tomorrow

Aristotle

Thank you so much ,you are very kind. I am reading now some of the threads and I like them very much .I cannot wait to learn from all of you !Good night  and I will wait for your message.

Hi Mariana,

Must first emphasise that as far as I am aware, no-one who posts on this site is a doctor although some may be allied to the medical profession. none of the comments I shall make are of a professional nature. That was just to ensure that I am not mis-leading you.

I have put together a list of links which I shall Private Message to you as soon as I have finished typing this. There is quite a lot but I assume that you can sort out the stuff that you want to follow.

I would be interested to know if you had a dexascan and if so, what your T-scores were. Also, what medications are you on e.g. Calcium, Vitamin D, Vitamin K2 etc.This is not being nosey, it really does give an idea of how your osteoporosis is doing.and what needs some attention.

I will send some more bits of information as I come across it in my lists.

Look for a Private Message in a few minutes.

Aristotle

Hi Mariana,

It just occured to me that you may not be aware of how to access private messages. If this is so, go to the top right of the page and look for a grey envelope. If you click on this it will let you open any private messages that you have received.

If you already knew this, please just ignore this message, I only sent it because I noticed that you had not yet opened my private message.

Regards

Aristotle.

In my searchings for that, i found another such study that finished in January.  The results are not posted yet, but I'm ANXIOUS for them to be.  I can message you the web address, or you can look it up with some similance of these words....  melatonin & micronutrients...... which is a study with osteopenia patients......  

Hi Jill,

That study looks as if it could be promising if it eventually shows up as positive. Since it is already known that melatonin has some effect on the bones, there is every reason for it to become so. One of the things that I noticed is that Strontium is being used as as a calcium substitute.

It may be time for me to re-read the articles that I've saved regarding strontium. The whole thing may be another forward step towards a cure.

Here's hoping!

Strontium improves bone density because it is heavier than calcium.  Whether it improves bone strength I don't know.   When given a choice the body prefers calcium, which is used in many processes other than bone building.  I think strontium is going to turn out to be a relatively harmless way to make doctors happy.

Hi everybody ,

Do you knwo that here in Europe we had and still have  a medicine with strontium ?  I think you know . It was prescribed to me 3 y ago or so . I was so clever to reject it as now the EMA ( European Medicines Agency )

The EMA’s Committee for Medicinal Products for Human Use (CHMP) has recommended a restriction the use of Protelos/Osseor due to serious side effects .Heart problems !

It is strontium ralenate if I am not mistaken --I do not know which is the culprit here : strontium ?

I will add the link I hope will go through

Maybe you all know this and in this case I appologies .

.http://www.ema.europa.eu/docs/en_GB/document_library/Press_release/2013/04/WC500142507.pdf

Any way when you google EMA and Osseor the link will show up.

There is a natural form of strontium called strontium citrate.  Personally I plan to avoid it, like the other more scary meds, but it could be an alternative for some.  I think ranelate hasn't even been approved in some major markets?  The US maybe?

 

You are right Anhaga ,In USA ,the FDA did not aproved this medication . So the form of strontium is the culprit ? the ranelate ?

But are you enough confident with the natural form ? I still have question marks in my head .I have t-score -3,2 and really I would be happy to know a safe way to slow down the process or to avoid fractures.

I really don't know.  It seems there are so many factors to consider.  It's all very well for someone like me to decide to go the all-natural route.  I live a fairly healthy lifestyle, and my t-score is -2, although I've got a number of risk factors.  If we can preserve our bones from trauma so that whatever extra we start doing (nutrition, exercise) has time to work, then the natural way seems most sensible.  But what about the people who already have some fractures?  Maybe for them the choice to take a medication is more logical.

google problems with strontium citrate - quite a different list than when you search problems with strontium ranelate.

Thank you ,thank youuuuuuuu!!!!!!!!

I agree ! When somebody is facing debilitating situation should consider anything available . It is anyway a slow progression in OP so you should feel safe ,and do the natural path.

You put a dot in front of http, leave that off and copy and paste into the url box. Then it works.

Thank you !!!!!!!!

I will try again just to see what is happening as I never put a dot ,so now I am doing an exercise

http://www.ema.europa.eu/docs/en_GB/document_library/Press_release/2013/04/WC500142507.pdf

No dot but still not ok ,,,need time to learn

 

It's still doesn't show as a link.

I've pulled a link from the site:

http://www.ema.europa.eu/docs/en_GB/document_library/Press_release/2013/04/WC500142507.pdf

It looks the same as yours, won't know if it works 'til I post so here goes.

Still doesn't show as a proper link, must be a problem with the url

Do you know how to copy?  Highlight the whole url with your cursor.  Press control (ctrl) and letter c.  then go to the search line on your screen, click in the line with your cursor then press control and letter v.

I copied and pasted what mariana had in her post and the document opened brilliantly.  You just aren't getting a "live" link in the post, which is probably a good thing considering.....

Yes, agree with but surprised but have not tried a live link before, maybe they are not permitted. Got the pdf anyway. Will read tomorrow, bedtime here.

So, you think we aren't to take Calcium AND strontium supps???  Just one or the other??  

You don't take them at the same time.  That's quite common with various medications.  Calcium interferes with a number of things.  I have to be careful to take prednisone and iron several hours away from any calcium supplements.  )Or at least I did until I stopped the calcium temporarily.)  So if you want strontium to actually be pulled into the bones you have to avoid calcium for a certain amount of time, probably a couple of hours.  The body must have calcium so not a good idea to avoid it.

Hi Anhaga ,it does not work on my PC the way you are saying ,but I higlight ,click right ,click  copy and then I paste it in my skype or mail and it works  .Probably here on this site my way to copy and paste does not work .Anyway as I said ,the article  should  be found  through google.I see you Anhaga were able to open it and I see Colin get it too .I am curious what do you think about ! As we all are looking for a way out from OP it is good to gather information on this subject .In USA people are already using the strontium citrate --I do not know if they noticed any improvment in their t-score .

I knew a doctor who told me he would never use in his family any medicine that was not on the market for at least 20 years. Because of the huge scandals regarding so said safe medicines that became not so safe after many years of use . Whish all of you a beautiful day .

Alrighty!  Thanks for the info on that!!!