MRI results - can someone translate this to English please

Posted , 7 users are following.

(The bits I write are what I'm confused with)

Overall: back MRI revealed spinal and sacroilliac inflammation, in-keeping with an axial spondyloathropy. Hopeful NSAIDs help and make sure shes seen in clinic soon for further treatment options

MRI spine whole

 There are small areas of corner marrow hyperintensity seen at L1,L2,L5 . Minimal but given scaro ilac changes, consider as inflammation. At L5 level evolving pars defects and degenerative disease involving L5,S1 facet joints.

Impression

Small areas of corner marrow hyperintensity seen at L1,L2, L5 would be somewhat equivocal but given sacro changes as inflammation.  Possibly evolving L5 pars defects. 

MRI pelvis SIJ both

Articular margin irregularity to both sacro joints more pronounced on left. Consistant with small erosions. (WHAT!>?!?!?>!>wink Around left sacro joint small areas of punctate marrow hyperintensity  inkeeping with acute sacro illitis.  Small foci of marrow hyperintensity to a lesser extent are scattered around right sacro illiac joint with maybe right illitis.  Some mild left capsulitis. 

Conclusion

Erosions of both sacro illac joints are inkeeping with previous inflammation and todays examination small areas of marrow hyperintentisty around both sacro illiac joints (more so left) reflect active inflammation. Left sided capsulitis is also present.

Wtf. I dont understand ANY of this. I'm only 17. Pls help explain this.

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  • Posted

    It is saying the sacroiliac joint (the joint which connects the bottom of your spine to your pelvis) has erosions, which is irregularity to the contour of the joint caused by inflammation. Marrow intensity is also a sign of inflammation. 

    The corners of the lumbar spine have bone marrow oedema (swelling) caused by inflammation. This results in shiny corners called Romanus lesions and are an early sign of inflammatory changes in the spine. 

    There is no fusion which is good news, so hopefully being diagnosed at such a young age, with the proper meds it will slow progression. It is basically saying you have an inflammatory arthritis, which affects the spine. It is important to do low impact exercises and stretches but avoid contact sports that can cause further damage or injury. When you see your specialist they will probably refer you to Physio, who will help create a programme of exercises. A good place to find more info is the charity NASS.co.uk,they also have one geared to younger people like yourself ASOne.nass.co.uk. There are also Facebook forums where you can ask lots of questions, and get support from people who understand your issues. 

    Medication helps many of us lead a fairly normal life. If you google Romanus lesions it will give you an idea of what they see on your MRI. Hope this helps, 

    The Facebook forum is: Ankylosing Spondylitis support group UK. Feel free to ask me to clarify anything for you. Do you have an appointment with a Rheumatologist? 

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  • Posted

    You will need to see a rheumatologist. Have you been reffered to one?

    It's basically saying there are signs of both chronic and acute inflammation. Chronic means it's been happening for awhile and acute means it's happening right now.

    They will likely want to start treatment straight away. Look into alternative treatment options too like diet change, supplements etc a good diet, exercise and supplements can help with prognosis and help reduce inflammation ?

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    • Posted

      Yeah I’m currently under one he requested the MRI after I pushed the doctors saying somethings not right.  Oh ok it seems so much more complex but means one thing.  what is the treatment? Thanks for your reply!
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  • Posted

    Erosions?  Yeah, I could see getting caught up with that word!  Kind of yucky sounding is it not?  Hone in on the word "small".  And erosions meaning "changes".  That's all: small changes.  And accordingly looks like you have AS.  (which it sounds like you already knew?)  You really need to be seeing a rheumatologist and consider going on biologics. Its not all gloom and doom!  Good luck!

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    • Posted

      I took it literally because I’m very science based lol! Yeah I kinda knew as I had the gene and a lot of the symptoms and back issues run in my family including inflammatory disorders.  Yeah I’m under a. Rheumatologist. And being so young in constant. Pain feeling like an 80 year old is kinda gloomy though. Thanks your reply
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  • Posted

    Ok was a Physician Assistant and I have AS too....ok good idea getting MRI cause that give you good detail... pars defect at l5 is the first stage of “ spondylosis” which is part of this disease, that’s the last lumbar vertebrae before your pelvis. The inflammation of the SI joint is in the triangular bone the goes down to the tail bone. That’s a sliding joint and lots of pain associated with this area as it’s supposed to slip and now probably is stiff, bone erosions mean advanced inflammation. So your low back must hurt a lot....I’m 65 and just getting diagnosed with this same thing....yes get to a rheumatologist, Get labs like SedRate and CRP to track your inflammation, an go to the AS web site to learn about this condition. The meds can really help, and cause you are young, keep active!

     

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    • Posted

      Thanks for your reply! Will they help stop this from progressing? As it seems something that gradually gets worse and I’m only 17. I do t want to be crippled when I’m 25. Yeah it does hurt

      But not to the point I cry daily (it does make me scream in agony but not often) I got those and most were normal except inflammatory markers which were elevated 

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    • Posted

      That’s where the medicine comes in as well as the vitamins and minerals and exercise.... get a good Dr and watch those markers of inflammation... I found something weird, my anxiety and depression decreased one I got on the a Humira, I have read that goes along with these inflammatory conditions. And I still need to take ibuprofen and acetaminophen sparingly for pain...these groups help me a lot too
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  • Posted

    Can I ask how long you had pain for/how quickly this come on? I too am being investigated for AS but am B27 negative and had no lab or x-ray signs. However have sore chest and lower back pain for the past six - 12 months. I always understood that that was too short a time for any changes or damage to be done to the spine.

    However if you've only been in pain a short time (say under a year) it's interesting that there is already signs of inflammation and changes present on the MRI. This would show how important it is to not delay in getting treatment and I will take further steps to make this happen. 

     

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    • Posted

      I've had it for about 5/6 years, nobody suspected a thing, of course. Despite pushing them, I finally gave them proof of the HLA gene so they did an MRI. Its possible to have AS without the gene, so you have had scans? They will probably monitor you, but im not sure sorry. Yeah I mean at the time of the MRI i wasnt having a "flare".Defo good luck, keep at it, if you know somethings not right, then its best to check by a rheumatologist

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    • Posted

      Good luck to you too. I'm waiting for my first rheumy appt (Feb!) so pretty sure they'll order an MRI. I'm tempted to get one done privately rather than NHS but think it's probably best to wait for the rheumy to assess.

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  • Posted

    In order to slow down the progression it's important to adopt a healthy lifestyle. Exercise is prob the most important thing. Start yoga or Pilates and do it daily to keep the joints loose and flexible and to prevent fusion. Also it's very important to try to reduce inflammation. Many people avoid foods that feed inflammation. For me personally I avoid gluten, dairy and night shades as well as sugar, caffeine and red meat. Everyone is different though so it is a good idea to try an elimination diet and see if certain foods cause more pain. I felt a lot better within 3days of cutting gluten.

    Also supplements are important. When you have an inflammatory condition it can cause nutrient deficiencies so checking vitamin counts and taking supplements that help lower inflammation is good. I take turmeric and pro-biotics for inflammation and I take omegas with vitamin D and magnesium oil to support the joints.

    All of this can help the prognosis and slow down progression. If you are still having pain and not responding to these methods then your doctor may prescribe a TNF blocker and anti-inflammatories. My doctor was hesitant to start medication and wants to see how I am in a year but I don't want to take risks with this so I've changed my lifestyle and will go back to the specialist in 12months. Hopefully by then the inflammation will be more stable

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    • Posted

      Really never knew this, thanks! I had played sports for a good 5 years (football/soccer) and was very contact. I have since quit, as bones were so so sore.I'm lactose intolerant but i guess you need a bit of dairy for calcium? Yes!! Omg. I've been Iron deficient twice and B9 deficient and was on supplements for them! That makes so much sense. I do take vit D aswell. Thats good. I'm glad theres a way to slow it down, but it's still gonna leave me crippled one day, am i right? Thanks for your replies 

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  • Posted

    If you are lactose intolerant then try goats milk or buffola mozzarella cheese. There are lots of alternatives to dairy.

    No everyone with this is different. When caught early the prognosis can be good. My rheum was very confident that I won't fuse and won't be disabled. There is definitely hope so let go of the fear and use it as motivation to get better. It is also possible for it to go into remission for long periods of time. That is my goal.

    There are FB groups that you can join. Lots of very positive people living successful lives with AS. Some run successful business, have careers, are raising a family or theres even some body builders. You will be okay ?

    You have lots of time to come to terms with this and then to start fighting it.

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    • Posted

      That’s s good idea.  Ok thanks for reassuring me. I’m worried about early cripple lol. I forgot to mention on the post I have flat feet/fallen arches/pes planus which I’m under a podiatrist for aswell. Had this since birth. They said no op as make it worse unless it effects my back. Maybe should get back to podiatrist?
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