Mums just died from Cholangiocarcinoma
Posted , 8 users are following.
:cry: My mum was diagnosed with Cholangiocarcinoma at the beginning of May, she died last weekend 7 weeks after diagnosis.
She was a fit woman of 64, she didn’t drink or smoke and was very active. She started having problems with indigestion and was given ant-acids by the Dr, it was only when she became jaundiced that we realised there was something very wrong. She was taken to hospital and told that she had gall stones that could be easily removed. Oh how wrong they were.....it was only when we had her moved to a private hospital and they did CT scans and MRI scans that they discovered the tumour in her bile duct. She had a stent put in to take away the jaundice but she gradually lost so much weight she deteriorated rapidly.
She spent the last few weeks of her life in hospital not being about to eat, she was even sick just before she passed away.
Cholangiocarcinoma is a truly awful cancer, our family has been shattered. We are currently looking into this cancer and trying to find a common denominator between sufferers. My mum was a clean-a-holic and we are wondering if some of the cleaning products she used could be the cause....I found 5 bottles of Brasso in her kitchen cupboard last week :?
2 likes, 7 replies
Guest
Posted
Elayne
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judit70361 Guest
Posted
emma98161 judit70361
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lynn82918 emma98161
Posted
Hi . How terrible that you were given no information about this disease. I have done a lot of research on my own because although it was explained to us when my husband was diagnosed with intrahepatic cholangio carcinoma stage 4 since it metastasized to his lungs, it was never in terms that we understood.
For my husband, radiation, surgery & immunotherapy was not an option for him. Chemo only. He has had one round of chemo which worked on his liver but not the lungs. So he is on another combination which is supposed to have good results
There are some clinical trials out there not much but if she could get into one it might be better. There is no cure but hopefully years could be added till something is found. I pray for a miracle.
So try & get a doctor on board. There is a website that is very good & helpful. It's www.cholangiocarcinoma.org.
Write me if you have any other questions or need help.
Prayers to you & your mom.
fred51873 Guest
Posted
Ii'm very sorry to hear about your mom. My wife has the same cancer. It's been 11 months
Things continue to get worse. The odd thing is that my wife is and always has been a clean
Freak. My wife uses a lot of pinesol. I'll ask her tomorrow about any other things she may have used in the past.
It's hard to watch someone you love succumb to this.
Fred
lynn82918 Guest
Posted
Hi. I am so sorry to hear about your mum. You & your family have my sincere sympathy in such a tragic loss.
I have not upon my research heard of a woman having it except your mum.
My husband was diagnosed with it in July . At first it was diagnosed as lung cancer but with more testing it was a month later that they found it was cholangio carcinoma, intrahepatic & metastasized to the lungs.
My husband was not a drinker either. His only symptom was being very tired & short of breath. We think he had it for awhile. No one in his family had cancer. I always thought it would be me with cancer in my family. My husband's only option was chemo due to the type of cancer.
He started a treatment of chemo but after 5 weeks they found he had a blood clot, fluid & the cancer in his lungs had spread. It worked on the liver. He went a month without treatment & just started a different chemo .
Only one treatment so far & he's lost a lot of weight, his appetite, very tired, needs oxygen, etc. I'm scared because he isn't good & questioning whether to keep going, quality of life.
We don't know how he got it. The list they have of some reasons , he was not doing any of it.
Again I am so sorry. It was quick for your mum so I'm wondering if she had it earlier on too. It is an awful cancer.
May your wonderful memories bring some comfort & peace. So, so sorry.