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Muscle Twitches

Posted , 8 users are following.

tina58520
tina58520

Hi, everyone over the last 3 months or so I have been getting more and more muscle twitches.  I know this can be a common symptom, does anyone else get these.  My G.P. has prescribed Baclofen, does anyone else take this and does it work, or do you know of anything better.

Many thanks in advance

Tina

1 like, 29 replies

29 Replies

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  • caitlin39841
    caitlin39841 tina58520

    Posted

    yes, think most ppl with ME/CFS have these muscle twitches. i don't take anything for them.

    Caitlin

    • tina58520
      tina58520 caitlin39841

      Posted

      Thanks, it was my G.P. who suggested when I told her that I woke up with my right eye twitching and it twitched all day and I had to tape it down to sleep, and I woke up with it twitching again, awful feeling!  Same applies to my left arm.  Good job we don't all stand together because we could start off a new dance trend! LOL Tx
    • georgeGG
      georgeGG tina58520

      Posted

      St Vitus stole a march on us there. That syndrom can be fatal.
    • caitlin39841
      caitlin39841 tina58520

      Posted

      that must be awfull Tina. mine's not quite that bad. it seems mostly in my arms n legs. i call it 'symphony' time when it starts earnest. will up my Magnesium. thanks Rachael.

      Caitlin

    • mary60449
      mary60449 tina58520

      Posted

      Thanx for getting back to me! My twitches have been diagnosed as Involuntary Muscle Twitches. I mean it's its own disorder aside from CFS. Do you happen to have fibromyalgia? Or any of you?

  • georgeGG
    georgeGG tina58520

    Posted

    Tell my wife about it. My twiches were frequent, every night or afternoon nap and quite major movements. Neither of us slept through them. In those days we were on our own.so never took the problem to the doctor. We knew of no one who had a similar disease or even that other people might have the same.

    I also had a more distressing happening every few days. While sleeping I would suddenly sit up with a huge gasp as if I had been holding my breath. I also had a feeling of strong alarm. I seldom had more than one such event on any night.

    • tina58520
      tina58520 georgeGG

      Posted

      Hi georgeGG, I am glad my husband is not alone.  He too has to put up with me twitching.  As for the holding the breath feeling, similiar happens to me and I end up coughing and like I am gasping for air.  It is really peculiar how this dreadful illness effects us in so many ways.

      Thanks for sharing

      Tx

    • georgeGG
      georgeGG tina58520

      Posted

      It is indeed a very dreadful disease and cruel to all the household. It is terribly compounded by the way it is dismissed as a severe and chronic disease and the sufferer blamed. I read with dismay how CFS/ME sufferers are still urged to take more exercise or even do strenuous exercise as one doctor urged me 20+ odd years ago.

      Still, some progress has been made with some doctors.

    • caitlin39841
      caitlin39841 georgeGG

      Posted

      with the health reforms & austerity, any progress made with ME/CFS diagnosis/symptom treatment seems to have regressed. certainly, less sympathy from the medical world with a lot more dismissive & 'questioning' severity attitudes sadly.

      Caitlin

    • georgeGG
      georgeGG caitlin39841

      Posted

      very sad. Back to my day of space age virus, take more exercise, you just need to go back to work, it's all in your mind . . . All that hard won progress pushed back 20+ years.
    • bronwyn97278
      bronwyn97278 georgeGG

      Posted

      What the heck...I thought we had moved past this stage...who is telling you that in today's medical field...I went through that stage in the late 1990's early 2000's....talk about regressing....
    • mary60449
      mary60449 georgeGG

      Posted

      I just fractured my collar bone from lifting light weights every other day. Exercise? Ha. I put on music and dance, that helps my brain and I'm waiting for it to help my body. Does nothing for CFS.

  • rachel04193
    rachel04193 tina58520

    Posted

    I had muscle twitching for about two years and mine stopped after about 3 months of taking magnesium l-threonate.. i stopped taking the magnesium recently and about three weeks later the muscle twitching started to return, so i am pretty sure in my case this is effective. 
    • rachel04193
      rachel04193 georgeGG

      Posted

      I can only imagine George sad .. at least now with the forums we can help each other with current symptoms and people newly effected by cfs/me
    • bronwyn97278
      bronwyn97278 rachel04193

      Posted

      Yes...I read re the aid that magnesium helps with muscles, and started taking same....".twitching" eased up....now have other problem with legs in that the Muscles seem to go numb after lying down for more than 1/2 hour, so now use Support Stockings/Tubigrip, as it increases the blood circulation....don't quite understand all and why, but as other probs that I noted were the increased pain when in air-conditioning, and feel that it does have a lot to do with our oxygen levels in blood stream....many thoughts on this issue, but certainly understand the frustration of always twitching/shaking...Bron
    • georgeGG
      georgeGG rachel04193

      Posted

      That is why I follow CFS/ME. AS in almost everything to do with this terrible disease one feels so helpless. The main helps to recovery are still SLOW DELIBERATE PERSEVERENCE. these three seem common to recovery. There are also  a distracting variety of personal goodies. But these tend to be very individualistic.
    • caitlin39841
      caitlin39841 rachel04193

      Posted

      hi rachel: i'm wondering if it has to be Mag. l-threonate for the twitches or would Mag. Chloride be OK. i have the latter in stock.

      with thanks

      Caitlin

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