Muscle twitches and spasms all over body

Hi lady 333 ?

If I was you I'd go see doctor has taking magnesium supplements helped I hope they have

I'm in hull hospital at moment I've not been diagnosed yet but hopefully soon they've done MRI. EMG tests on my nerves electrical tests. And lumba puncture today so hope they figure something out soon

Nice to make contact with you X

Hi Terry 62719 if you don't mind me asking did you get a diagnoses

Hi dan. Yes turns out I've got spine problems L4 L5 disc degeneration and the protrusion is causing S1 nerve root to be damaged. On steroids to reduce inflammation but still got muscle twitching gggrrrr. And electrical pains doing my head in now mate

Hi terry,

I have a very similar situation with my muscles. Curious to know if you had numbess in head and feet? Did you have a previous back injury? My t11 and t12 have a compression fracture and my neck and lower back muscles get sore and tight due to the injury

Hi, since you been diagnosed did you not know you even injured yourself ? I'm pretty nervous for myself I am 40 and had twitching come out of no where 10 days ago in the left side of face and kind of on my lip and cheek then bazaar enough spread all over my body mostly when I'm at rest I had blood work done and came back clean except for super low on b12 and d and been on supplements for 3 days and nothing has changed 24/7 twitching only when I'm asleep does it stop .. now my concern is I'm screwed bc I have pains now as well like when u pull ur muscle swarms of light pain elbows and arm and oddly enough finger next to pinky that pain is a weird on and on my right theigh as well.. I'm trying to find someone that has gone through this and was it a positive outcome thanks 

Erik92351, I saw your post and have the same symptoms as you. Twitching started in face (one of my eyes) then spread to the other eye and around the face and down to my lip. Then little short muscle stitches all around the body that come and go for a second. And I've had muscle pain, stuff muscles that comes and goes. Does this sound like what you have? I am also 40. Have you found a diagnosis yet?

No I have not, my Nero ordered Emg which I have not got yet and this is still going on now my stomach like twitching for hours and still all over the place scary stuff .. does your twitching ever stop or does it go all day long till you sleep then u wake up and starts all over again?

Hi Terry did you ever get an answer to your symptoms?

Hi Erik I was wondering if you have found anything out?  I have been having muscle twitching also.  Right bicep, stomache, Right glute.  I had a severe headache for two weeks prior. I've been having odd symptoms since April.  

I have muscle twitch ALL OVER my body from 2015 Oct. about 2 years.

Couple of time being seen by gp, blood test clean, no clinical weakness, 

I’m 26 years old, and the anxity is killing me because i am concern of horrible motor neuron disease. 

Hi mom 44. No I never got a diagnosis. Only thing they said was that a nerve in my right hip has been damaged. !!! And the twitching I have now is the nerve trying to re connect to my calf muscle I don't believe this as I have twitching everywhere gggrrr. I also had the mis fortune to bresk my pelvis back in august so I've been getting over that issue which has caused me other nerve problems and pains in my groin. I'm on anti depressants now due to all this.  I'm still sure I've got lymes desease. It can't figure out where to go in uk to get an accurate test done.  Thanks for asking if I got diagnosed x 

Thank you for your response Terry.  How long have you had your symptoms or when do you think all this started.  Have you had any other symptoms?  

Also trying to figure same situation out. It’s like when I’m in deep sleep it possible starts but the moment my brain is aware; it starts right back up again.. weird. I’ve had a clean CT scan of my head and clean EMG. As far as I’m concerned, all blood tests were normal besides my rheumatoid factor (slight elevation) my confirmation test for RAbwas negative. So confused. 

i have had same issue now for 9 months. I out of  the blue had my left foot pinky toe start twitching at night for weeks, then went to my legs (thigh and calf) then moved to my feet and then all over and changes places all the time, always mostly left side. I have seen 2 neurolgist , had a brain mri, upper and lower therasic mri, emg and tons of blood work done. No answers, twitch all day long. Been put on anti seizure meds, clonazapem, but had to come off of due to bad reaction to it, that was fun a 3 month wheening process, and now gabapentin but only take when needed despirately since it is habit forming also. Spend 7k on test out of my pocket this year to have no answers. Killing my life, marriage of 17 years and job. I can hardly function and orsleep. Anyone get any answer i have done tons of testing but no one here can find anything, i know someone is missing something. My b12 when first went in was 309 so low end of normal, but still normal, they put me on 1000mcg of b12 per day for 2 months came up to 541 think but did not help. tried magnesium suppiments, no help. Next onto mayo clinic, but scared to go there and spent tons of $ for some bs diagnosis. i did have 1 here say begnign fascilation syndrome, which is bs, how can it be from stress when happens all day, including weekends, when watching tv, waking from a dead sleep ect, that is just a bs diagnosis of i dont know. Nord (national orginazation of dare deseases have talked to them and they have never heard of begnign fascilation syndrome, so pure bs. any one out there with any answers would be greatly appreciated, day to day living with this is becoming hard to even live with....thanks much

sorry forgot to metion it goes to my face also, twiches on outside soft part of my eye (left side) and left eyebrow to sometimes

I lost my job of 17 years, the Mayo clinic was of no help and has hurt me with their b.s. diagnosis on my file. We found out I have nutritional problems through hair analysis. I'm trying to address them but no changes yet.

i started taking a high vitamin protien shake called alive 4 months ago, seemed to help a little for awhile. so i know i am getting all my vitamins for sure. i have also lost 40lbs this last year but cut out all chocolate, caffine ect and work out more because it helps my twitching stop when using the muscle, so lost lots of weight cutting out junk foods and working out more. but still nothing. thanks for reply, hopefully someone knows something that can lead me in right direction

Have you done a heavy metal test? Or. Checked for mold and Lyme?

no one doc has tested for any of that or even brought it up. i did have a gastrolgist due a parasite test, which again came back negative. What kind of doc runs heavy metal testing or mold and lyme?

but lyme would be weird since i am never in the woods or around tics.

thanks again for replies

i guess i should mention, mine all started after we had a horrific flood here and i had walked through flood waters and we were staying in hotel while house was being fixed from flood damage. It started like 1 week after the flood while staying in hotel.

Your primary doc should be able to give you a 24 hour urine sample. As far as Lyme, you can get it from cats, fleas and other carriers too. As far as mold, I had to get a naturopath to do that one but I would order a hair analysis kit online. They really show a history of your body. You do the hair sample at home, send it in, and they analyze it and email you with the results

any of these things help get your twitching under control? i am just trying to figure out what is next, running out of $, actually went waited 3 months to get into muscular neurologist here for him to want 1 test done and faught my insurance over a $300 cost there cost test my insurance refused to cover, so last 4 months not had any answers since test is not done, cannot get answer to move on. so cancelled my insurance this month since will be getting new one next month and have the resubmit for hopefully new insurance to cover, he wants an mri of my lower lumbar, yet to be done, which he says would have to do with twiching in legs. but i go to differnt neurologist and they say the previous ones stuff they did were worthless and makes no sense, different doctor differnt answer, getting sick of it, alot of $ for nothing

thanks again

Have you had any other symptoms? 

no just twitching all over that goes everywhere, eyes, calf, thighs, feet (arches) ect. Happens every day all day. I have just started having middle back pain this week, but think i hurts something this weekend from that because they already did an mri of the middle of my back and showed nothing, i had an upper and lower thorasic mri done.

My twitching stopped but I have muscle weakness too. I have cramps and loss of subcutaneous fat

What do mean muscle weakness like u can't lift or walk don't get how you mean 

Welcome to my world .. ur back has nothing to do with body twitching all over .. what I believe is can be brought on by extreme stress cause if not that the diagnosis for this is nothing good .. I had a emg scheduled but I chicked out I just put my faith in god and pray this all goes away I'm on month 4 mine started out of nowhere literally one day was not there then the next day all over the place and hasn't stopped I now pray I get one day of no twitching can u imagine of all the things u could wish for xmas that's my wish 

Weakness as in popping hips , shoulders, muscle fibers atrophy shown in muscle biopsy but no nerve involvement at all

definately not from stress, happens  when waking from dead sleep, or watching movies with kids. times that stress is at its least. doctors in my area dont know crap, spent a fortune this year for nothing. taking valium 7.5mg to help sleep but does nothing for twitching which is why they gave me it so will cut that down again also. gabapentin seems to work, all anti seizure meds seem to help but all are habit forming, and i have had reaction to most, even the current valium i take at night, causes me bad reaction. i know how you feel i would pay anything to be like i was a year ago before this all started

Doctors are quick to say stress and anxiety when they can't find the problem, believe me...I know

Awidz, my symptoms actually started out with back pain and spasms in my back, the back is one of the primary and most looked at areas when spasms or twitching are happening

Docs didn't tell me stress I'm saying that cause how my lifestyle was leading up to this I damaged my body this I know like I said my doc dropped the als bomb right away 

Same with me I go to sleep and wake up all twitching starts all over again the most annoying one though is my stomach ones 

I was just talking about how all my docs told me anxiety and stress because of normal test results, now they have looked at me and said ok...you were right , something's going on.

Didn't know popping was a sign of muscle weakness I have felt popping even as a kid so not sure on that but my throat likes to click here and there when swallowing but looked that up says associated with something else once ur hypersensitive I notice every little thing now it's torture and I'm over it 

Popping joints relate to weakness of muscle or tissue connecting them..my throat did the clicking thing, it was related to weakness in swallowing muscles...I can still push my throat to the side and replicate that noise but the swallowing problems are gone

All I know is I find it weird that one day none was there and I woke up the next day with them all over right away with no stop however I was seeing progress in less twitching till I saw APRN sayin all this scary stuff to me brought it all back plus some 

One other thing to look at is mast cell activation, it causes muscle and neurological problems

Great more bad news against me I saw my Ent 3 times and he said nothing about that doesn't happen all the time and lately haven't noticed it but that's funny I use to push my throat to the side to make it stop before but I guess the good news is u don't have als 

Also there is a clear explanation online to a clicking sound when swallowing clearly doesn't state anything about muscle weakness in swallowing 

Yeah that's the good part, they just don't know who to treat me. At first glance doctors look at me like a big strong guy, I have big shoulders and a big chest but after they start looking underneath the cover, they are stunned and don't know what to think. I'm going to University of Alabama Birmingham hospital next month. They're one of the best in the country. Hopefully they can help because the Mayo clinic was an absolute joke and waste of money

There is one in new Britain ct too they are suppose to be wizards of this stuff .. on a side note now I feel like I have a slight achy throats like just there barley but also just had a cold this crap playing mind games on me trying to get over it cause will drive you to be sicker 

Actually feels like it'son the top rear of my tongue to be exact 

Erik, my endoscopy verified my swallowing weakness, the clicking sound was confirmed by my gastrologist and ent specialist

When my throat muscles improved , the clicking when away . It is a common symptom in alot of swallowing problems so it was the cause of mine. One thing I've learned about Google is, it is often wrong more times than right , in other words there are a hundred causes and symptoms that you'll never find online. I first suspected my throat weakness as being the cause, it's logical, weak muscles don't hold things together good....after my swallowing problems disappeared and my throat returned to normal...it was gone

Ya same here didn't play around as soon as I felt something weird my ent who was a dentist as well he is older with a ton of experience saw that my swallowing was normal in a throats scope where they shove that thing up ur nose and he said my throats was dry that's it and the clicking was  prevalent  at the time .. so even if it was als can't imagine sore throats and all that kick in right away in the first 3 months as it's a progressive disease the mind is powerful .. I once had all the symptoms of hiv and didn't even sleep around being a hypo and my kind of work always cutting myself and thought somehow contracted it had like all the symtoms the rash, weight loss, sores in the mouth all except night sweats but was convinced I had it took 3 tests before it clicked I did not have it that's when I learned the power of the mind 

Hi I’ve been reading all the conversations between all of you.  My symptoms started with a sudden onset of weakness at the outside of my knees, I was so weirded out.  Then a week later muscle twitches and a terrifying instance of all over weakness of my whole body from the neck down.  I immediately went to the urgent care.  The urgent care doctor was so kind and thorough but did not uncover anything with the blood work he did.  At the time he thought it was my thyroid but that didn’t pan out.  The following week I started having lower back pain and all over body and muscle aches and twitches this lasted for a month, I was on a large heating pad when ever I could be.  I’ve never in my life needed a heating pad.  I ended up quoting my job of 14 years.  By summer the tingling in my arms, wrists legs and feet started.  I’ve had some very painful headaches that I had an MRI for.  Im now having shoulder and upper back pain.  My lower back pain just today has turned severe and radiates to one side.  This all started a month after I was scratched by a stray cat.  Have any of you been scratched or bitten my an animal?  I have been tested for toxoplasmosis, lyme disease, autoimmune disorders, arthritic testing, vitamin deficiencies, lots of blood work.  It all comes back normal.   I have had an EMG on both upper an lower extremities because of thigh pain and weakness in my legs. I had a pinching sensation in my right bicep, that is usually is an indication of nerve damage.   I’ve had so many strange symptoms that I’ve never had in my life, weird throat sensations too.  I’be done months of research and am convinced it’s rabies and I’m dying.  This has been going on for 9 months.   The doctors I’ve talked to blow me off and say it’s not rabies that I would be dead by now and how rare it would be but they will not test for it.  I have begged to no avail.  I have very little faith in doctors now but I will not give up searching for the right doctor.   I am also praying for a Christmas miracle.  I wish o had opted out of the EMG because that turned up nothing also.  All I get is it must be fibromyalgia or stress related.  No way. 

Have you considered CFS/me ? Also what about mold or heavy metal toxins?

Looks like CFS is believed to be caused by the body’s intolerance to disease or viral infection which rabies is a viral infection.   I have not pursued the mold route.  This all started a month after I was scratched by this injured cat stray cat.  It’s been nine months of torture since.  I have always been in good health.  I have never been sick besides the common cold or flu once a year.  What’s been going on has been on going, changing symptoms from my muscles to my nerves. I will not give up on what I believe is going on and pray I’m wrong and it’s not too late for me.  I see a new doctor tomorrow I hear he is great and if anyone will get to the bottom of it he will.  Please pray for me,  he is my last hope.    

I will, I also fear mine could be related to an undetected cancer or carcinoma...my symptoms are so rare and ever-changing.

I’ll be praying for you.  I wish doctors weren’t so busy, really listened to their patients and made things happen faster.  It takes so long to get anywhere.  I believe in miracles and pray anyone that reads this  gets their miracle.  

Thank you

mine most annoying is my face, woke up again today to left outside of left eye soft tissue twitching at 6 am and now 4pm doing it every 10 seconds or so. if does not go away by early tonight will have to take gabapentin to hopefully make it stop. it somewhere every day and switches from legs, to feet to my face. hate my face twitching all day drives me nuts.

Sometimes I feel like I have so much to say and so little time.  Please don't worry about taking Gabapentin if it helps.  I've been told by multiple doctors that it is a really old and safe drug.  You may need to ween off, but it's not like a narcotic that you will crave.  I take a very high dose, 4,800 per day.  I also suffer significant burning pain and the Gabapentin helps dampen the pain. Consider that you may have a small fiber neuropathy.  I don't think that nerve conduction tests will pick this up.  I'm approaching year 10 and my neuropathy was the result of a prolonged environmental exposure.  I am improving over time, but I am extremely chemically sensitive--I have to avoid fragrances.  I also have to avoid most all spices that excite the nerves. A recently discovered pain channel, TRPA1, mediates the pain and inflammation of environmental irritants.  

Some of you might be interested in this research -

A novel TRPA1 variant is associated with carbamazepine responsive cramp-fasciculation syndrome M.J. Nirenberg1 | R. Chaouni2 | T.M. Biller1 | R.M. Gilbert1 | C. Paisán-Ruiz2,3

If you take carbamazepine, I think that you have to follow-up with liver tests periodically, but that may be worth a try.  If you access the full article, I think that you will learn more about another drug that they tried.  I just can't recall.  Don't let doctors tell you that it's just anxiety, but also, don't be overly concerned that it is something serious.  

thanks for reply, have been sitting here for last 3 months unable to get anything done. waited 9 weeks to get into only muscular neuroligist here and he wanted to do a lower lumbar mri of my spine and my insurance and i fought last 3 months and they will not cover it, whopping $290 test there cost. so this may have nothing to do with all going on but last week the middle of my spine/back has been hurting so much i have been unable to run which i do almost every day, helps with my facilations. its near the middle lower part of my back and they did do a thorasic spine mri, which i think is the middle of my back. think the lower lumbar is only a few vertibre above my tailbone, which is not where it hurts. hopefully i just tore a muscle or something, but been over a week and just trying to take it easy, but sucks, since i cancelled my dumb insurance since they were covering nothing till my new insurance kicks in the 1st of january, and now of course i have a hurt back.

I agree I keep playing football to feel good for 3 hours to forget the twitching and its lots of running however after I feel like I been hit by a truck but so much fun and I do notice that they are more frequent now like makes it worse I guess even in ppl that are normal u hear that if that work out to hard they have spasm issues not sure but mine have increased which I thought would be less by relieving stress by working out so to speak but I think relaxation is the key I think I have to dump coffee as well and caffeine which I love in the am .. I'm now going into plan B seeing how this is not going away which is body and DNA rejuvenate safely going to hammer my body with nutrients for the brain and antioxidants so if I do have something bad my body will fight back while this is still fresh not after its to late 

I did the same as you spent 10thous on tests still no answer. Went to mayo BFS was dx. I am scared have been 15 months now. I was really ill when my symptoms began. I had what felt like pressure in my skull and severe numbness in my face and nausea found out the nausea was from gastroparesis . please if anyone knows of anything or can relate please message me.

Hey jeremey. 

How and where did you get your hair analysis done?  If you don’t mind me asking. 

Thanks

Check into Bartonella. It's a co infection to Lyme and comes from a Cat scratch or other things. I just started treatment for it 3 weeks ago. You should get tested for this right away and you may have to find a Lyme specialist to do so. I was negative for Lyme and positive for this. Prayers for all. 

I just saw a video about that last night. Crazy

I did check into Bartonella and I did test negative for Lyme disease.  I am so perturbed with doctors lateley.  I know my body and this al started one month after the stray cat we took in to help. I have never been this sick nor for this long.  Mid April will mark one year since my ever changing awful and scary symptoms started.  

Thank you for your prayers.  Prayers to everyone on here. 

Kenny I ordered mine online. I then sent it back off for analysis . It comes with directions as to where to send it

How are your symptoms? I am 15 almost16 months sincr Mine started. I dont twitch like I used to but still do. I see my neuromuscular neurologist every 6 months for testing. Go back in June. That's all we can do and hope our symptoms go away or improve. Plus that all our emgs stay normal. Best wishes.

Great, so that tells me one emg that's clean is not suffice the testing goes on and on of the mental torture ?

Erik it is true you have to have more emgs. They are only good at the time they are performed. Time is the only indicator that you will be ok. It is possible to have a clean or normal emg and then develop a abnormal emg at a later time. A normal emg during symptoms is reassuring that it may be nothing sinister but it isn't a guarantee. I wish it were but there is no test developed to prove you will not ever have als. It is only time after symptoms and the fact you never develop weakness.

Hey, Mom44.  I literally made an account just so that I could reply to you because I've been there for the rabies fear and I wanted to reach out as soon as possible.  I have severe health anxiety and my first obsession was rabies. 

Here's the thing with rabies.  They cannot test for it until it has manifested itself in your system, so asking for a rabies test is not going to help anything.   By the time the test would show positive, you would be dying and need to have the Milwaukee Protocol. 

Did you get the shots after you were scratched by that cat?  If not, you can still get them.  You can get the shots until the rabies "wakes up," so to speak, and begins its viral infection.  Rabies can remain dormant in your system for up to 25 years.  However, if you get the shots any time in there, then it will be eradicated.  The reason people die from rabies is because they wait too long to get the shots and that is usually a third world problem due to insufficient funds.  

If you haven't gotten the shots yet, get them.  Demand them.  I got bit by a domestic rat in a cage and my anxiety freaked out so badly that I would not calm down until I got the shots.  I called my state epidemiologist and demanded them.  I had to pay out of pocket for them, so it was close to $900, but it was well worth it for the peace of mind.

Do I think you have rabies?  No.  9 month of symptoms in rabies is unheard of.  Once you begin showing symptoms, you are dead within a month.  But do I think you should get the shots for peace of mind and safety?  Yes. 

Hello Awidz. Any update on your condition/diagnosis? My husband is having all of these same symptoms. He has had multiple biles of blood work done that show low magnesium levels. He’s been taking magnesium supplements but that doesn’t seem to help. He went to see a specialist who ordered an Elbow X-ray and prescribed gabapentin and just started taking it today. Why can we not get any answers 😔

Hi I have had blood work done as well and everything has come back normal. I am still convinced that my Magnesium and b12 is low because I have the symptoms of those deficiencies. So I have continued to take those vitamins to this day. I am currently having my doctor to refer me a hospital in Atlanta Ga to get a full body scan. Hope you guys find what you need.

What are your symptoms taylormari75598?

Have you tried checking your potassium levels? Also, I went on a gluten and dairy free diet for a week and my twitching symptoms went away.

eric are you serious? i wake every every day twitching ... arches, bicep, calves... its been five months now and im so nervous i cant sleep... were yours really as bad as mine ... like non stop??

thank you

Yes mine were non stop, super scary and not normal. Do you get any twitches on your face or your eye lids? Have you tried removing all gluten foods and dairy foods for 3 to 5 days yet?

i know this is an old post but did you get any doagnosis? i am struggling with twitching different areas if tbe body going on 3 months off amd on

clean emg but still scared

Becky what ever happened?? I am going through something similar now hope your well God bless

Hi Johnathan,

I'm new on here but did you ever find out what the cause your twitching was? Is it still on going? I hope you're doing better now.

I recently started having twitches all over my body about a week and a half ago, before this I have had small twitches in my foot off and on. None of the twitches all over my body started until after I went to go see a chiropractor this last month.