Muscle twitching and jerks
Posted , 60 users are following.
Hi. I have read a couple of places that other people experience this with peri. Just wondering if anyone has a clue as to what causes it. It was bad for about a week and then got better. Now it's back. Ugh. Such a worrisome symptom. Please again tell me I am not alone on this one!
10 likes, 250 replies
lisa99688 2chr2015
Edited
You have no idea how relieved I was to read your post. I started having muscle twitches all over my body, out of nowhere. Like so many others, I worried about a deadly neurological disease. My father has late stage Parkinson's, so I constantly worry about my health. I know Parkinson's isn't hereditary, but when you have health anxiety, everything is a concern. I had to have a hysterectomy about 15 years ago, so menopause has been difficult to gauge. I've had some typical symptoms over the last couple of years, but the twitching is relatively new and has been scary. I will try some of the supplements suggested in the thread to see if they make a difference. I just want to thank you for creating this thread. I feel less crazy after reading the stories.
anita42201 lisa99688
Posted
Dear Lisa99688, I too was so glad to read about other women's symptoms that ate similar to mine. I was going out of my mind. Being twitching and feeling inner tremors for close to 8 months. Some days are worst that others. But I find that exercise, taking in less coffee and getting more sleep helps. I also take magnesium and Vit D. Reduced wheats and sugars as well. Keep us posted!
Gwenn1120 anita42201
Posted
Hi Anita,
It's rotten isn't it?! And yes, the only comfort I am getting is reading other women's comments.
The hot flushes I can take, the fingers twitching randomly, tingling feet, head ,twitch that goes all the way down to my hands , along with tingling and stiff muscles.
Mine has being going on, I actually had to stop and think... Eighteen months from the first symptom. I still live in fear of it being a neuro disease, but until I eventually build up the courage to see a Neurologist, I'll just have to cope I guess.
I keep mentioning the Neuro on these forums like it counts somehow even if I haven't gone lol, gosh I'm a hopeless case!
I have multiple contributing factors too, like two mildly bulging discs, large bone spurs in my neck etc, on top of other menopause symptoms.
But when I start thinking of my symptoms , my anxiety spikes badly which in turn makes everything worse. I had the MRI on my neck and head, no MS lesions according to the radiologist, but here were several non specific white spots which was attributed to the bad headaches I had at the time of the MRI. My GP suggested Fibromyalgia but.. I just don't know. Time will tell I suppose.
On the plus side, I'm still so physcially strong and usually walk 4 kms most days without trouble, as well the usually gardening, house, work.
I don't know, some days I feel ok and very hopeful and other days it feels like I have no future, that I am being consumed from the inside out.
anita42201 Gwenn1120
Posted
Yes, Hi Gwen, completely rotten.
Do you also feel inner tremor? of Jelly legs?
I don't know what to do anymore. But trying not to despair.
2chr2015 lisa99688
Posted
awe lisa. i'm so glad it helped. all this peri stuff is so weird and scary. not at all what i thought this stage of my life would be like. like others have said, every new symptom is a death sentence...and it gets so old. i get exhausted worrying about every little thing.
j65085 lisa99688
Posted
i have had twitches for 1 year and 4 months. drs. do not seem to want to find a diagnosis and I do not want to take AD. any suggestions. BW is normal.
anita42201 j65085
Posted
HI , I 've had twitching all over, mostly feel them when at rest I took antideprassants for 2 months then stopped. No diagnosis other than anxiety. Are you in peri?
lisa99688 j65085
Posted
I've only had mine for about 6 weeks. I have had depression and anxiety for as long as I can remember and have been on AD for about 3 years. I can't imagine my meds have suddenly started causing this so am trying to figure out what is going on. I'm hoping it's just menopause rearing it's ugly head. I have a dr's appt on Monday, so will see what happens.
j65085 anita42201
Posted
did the AD stop the twitches?
j65085 anita42201
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yes in peri. i just want to ensure it is not a result of an autoimmune disease.
lisa99688 j65085
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No, Ive been on meds for depression for 3 years. The twitching started about 6 weeks ago
anita42201 j65085
Posted
no, but I didn't take them for long . I prefer opting for valerian teas
j65085 anita42201
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i was trying to figure out how to post a short video so you could see the twitches, but was unsuccessful in getting video to post
Gwenn1120 anita42201
Posted
yes Anita, I have an inner tremor and jelly legs at times. Burning sensations, stiff muscles that come and go and several fingers that twitch.. I go from being hopeful it's just menopause to being down that it may be something more sinister. I've seriously at times thought please at least be MS, not Parkinson's and definitely not motor neurone. I'm sure my hormonal state and bouts of insomnia are making everything worse.
I should just bite the bullet and see a Neurologist ...eventually..lol
anita42201 Gwenn1120
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i have the same symptoms especially at night. Neurologist outruled anything serious
if you have kept your strenght and continue daily activities then it's a very good sign
j65085 anita42201
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i walk 3 miles 5 days a week and have no fatigue. It is comforting to know others have the same symptoms. much appreciation for your response. I hope to get hormones checked in a few weeks.
anita42201 j65085
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no, the AD didn't stop the twitches
anita42201 j65085
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i will have mine checked as welll. Keep you posted!!!
Gwenn1120 anita42201
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I don't feel like I have lost any strength at all, I'm fairly active, so I guess that's a plus side. Thank you for your reply, it is comforting to hear Im not it the only one experiencing these horrible and bizarre symptoms.
anita42201 Gwenn1120
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Today, was a rougher day, more twitching than usual and my right eye is also twitching. I went for a long walk in order to relieve it all.
Searching for reprieve. How are you?
j65085 Gwenn1120
Posted
bulging disk will cause twitches
Gwenn1120 anita42201
Posted
Yes, coincidentally, I had a bad day yesterday too . Tingling and twitching was terrible.
Had a really rotten sleep the night before , about four hours of broken sleep.
I had a better sleep last night, but feel really tired today.
If you find the reprieve, can you let me know ? lol
Gwenn1120 j65085
Posted
I think the issues I have with my neck cause do cause some problems, but this has been dismissed by my doctor.
Also in the past, six and fifteen years ago, I had trigeminal neuralgia then optic neuritis (separately) which is why I am worried about the possibility of MS. It has been dismissed by two doctors and the radiologist who looked at the MRI said it wasn't. One doctor suggested fibromyalgia.
Regardless, I think everything seemed to get bad during peri menopause and then menopause.
stella-z Gwenn1120
Posted
@Gwenn1120, some of your issues sound similar to mine. Two years ago I developed a facial neuralgia (an atypical form that doesn't zap but rather is constant) along the left side of my tongue and throat, and left ear -- and I still have it, although it's made tolerable by very low-dose Clonazepam. For several years before that, I was having bad neck pains (saw a chiropractor whose tests showed I had "spurs").
When the neuralgia started, I had a brain MRI with no findings except an incidental "venous anomaly" on my left side which is apparently nothing to worry about. I also have "moderate degeneration" of my left jaw (and osteoarthritis here and there).
I too wonder about MS (and other scary things). Even though my MRI was clear, that was almost two years ago. The twitching and jerks started about 4.5 months ago. I'm pretty sure I've been going through perimenopause for a long time now -- extremely heavy periods that arrive every 3 weeks, which I never had before.
I hope this all subsides for all of us. 😃
stella-z Gwenn1120
Posted
@Gwenn1120, once again, we have so much in common. If you had an MRI that showed no lesions, that's a good sign.
For what it's worth, I saw a neurologist yesterday and I don't think it was very useful. He did a few rudimentary tests that seem like he's been doing them since the 1950s (check my resistance to his hold my arm/leg down, check my reflexes, touch my nose) and he asked no questions. He let me talk for 20 seconds (I told him I've had twitching for 4.5 months and basically that was it) and then did the in-office physical tests, and then told me he thinks it's Benign Fasciculation Syndrome. I asked if an MRI might help rule things out (I had one ordered by another doctor almost 2 years ago when a neuralgia started; no findings) and he gave an odd response about an MRI not showing this kind of central nervous system issue. He said if I don't have muscle wasting and weakness it's Benign Fasciculation Syndrome. And then the appointment was over. Honestly I think this is the way things generally tend to go here in Toronto, Canada -- doctors are very reluctant to order tests.
In a way, I guess I'm not actually in a huge rush to find out if this is something really bad. It's just that sometimes I start wondering if this is something that should/could actually be treated to stop it from getting worse; then other times I think the types of diagnoses that can explain this pretty much aren't treatable so maybe it's best to put off finding out. Lots of wavering emotions about this. I try to get on with my day but sometimes it's a challenge.
It's nice to have others sharing their similar stories. It sort of feels hopeful because maybe it is related to fluctuating hormones after all and will eventually settle down. I hope things will turn out okay for everyone!
anita42201 Gwenn1120
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I find exercice helps. And so does sleep and some massages. Let me stay hopeful.
Anita
anita42201 stella-z
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hi how is every one doing? i'm still with same symptoms and still no answers sometimes the twitching subsides a little then starts over again and I'm going out of my mind.
lisa99688 anita42201
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Blood work came back fine, so no answers. My dr doesn't seem concerned, didn't even refer me to a neurologist. I'm still freaking out because my twitches have been pretty bad. Scary!
anita42201 lisa99688
Posted
can you image that! my neurologist sees no need to follow up!!! twiching is all over?
stella-z lisa99688
Edited
Hi Lisa and Anita,
I can totally empathize. My symptoms are still going on.
I pretty much had to insist on getting a referral to a neurologist. (Apart from the twitching I also have a lot of pain in many areas. Now I have pain deep in my left calf.) When I saw the neurologist very recently, he just did some very basic in-office tests (like "walk in a straight line" etc) and told me it's Benign Fasciculation Syndrome. When I asked if it's worth doing an MRI, he basically said no. (Sorry, I think I told this story here before.)
Please keep us posted with updates. I hope things get better for all of us!
anita42201 stella-z
Posted
hi stella and lisa, i'm not going to insist on seeing an endocrinologist and have my complete thyroid checked even though my tsh was normal. it is very possible that with all these hormal changes, mineral absorption is compromised . I too have sporadic pains .
j65085 Gwenn1120
Posted
i saw 4 neurologist because my gp thought it could be ms as well. MS was ruled out but still have calf, thigh and glute twitches every hour daily. i have been to orthopaedic sugeons and no one knows the cause. very frustrating. i had a hysterectomy abt 8 yrs ago.