Muscle twitching/popping
Posted , 17 users are following.
Hi Friends:
Question for those of you who have had neuro symptoms...I have had this weird muscle twitching/popping sensation moving through my body. It almost feels like popcorn popping in my muscles, in my feet it’s more subtle but I feel it. Has anyone else experienced a similar sensation?
I’m 5 months in with reactivated EBV.
1 like, 31 replies
emma198181 KCF
Posted
I had this, mostly in my arms, legs and feet, but sometimes in my back and stomach too. I still get it occasionally - usually during a flare. Freaked me out!
KCF emma198181
Posted
It freaks me out too!
theworriertx KCF
Posted
i had the same worries, joint pain, muscle aches and weakness, even facial weakness and brain fog, vision issues, you name. The one that started my severe anxiety was the twitching. Its all over, it can stay in an area for a little, then move on to the next. Its very scary, 3 neuros later, they havent found anything like ALS or MS which was my concern. Its amazing how EBV can effect each person so differently. Its been 4.5 months of neuro symptoms for me so i hope yours gets better.
KCF theworriertx
Posted
I understand. I saw neuro too....brain and spine scans, nerve tests....all negative. It is so scary and such a weird sensation. I have found for me drinking lots of water seems to help with the twitching/popping sensation. I constantly have a low grade "buzzing" sensation in hands, feet, calves.
KCE123 KCF
Posted
I too had mono last December and have the twitching. although mine didn’t start until months after my diagnosis. They did bloodwork on me to look into the twitching, checked my electrolytes, all the above and everything came back normal except I had a positive ANA. They sent me to a rheumatologist they did a lot of additional bloodwork and nothing came back that showed any concern. The rheumatologist told me that sometimes people who had mono can show a positive ANA in their blood work and they can also have twitching. but nobody knows why I have the positive ANA or why I have the twitching for sure. It is now almost a year later and I still have the twitching. I chew saw a neurologist and had an EMG and nerve conduction test all came back normal. But this twitching is really very hard to deal with sometimes most of the time I have a hard time sleeping because of it. Wondering if you still have the twitching? Neurologist told me I probably have benign fasciculation syndrome but this seems to be the answer they all come to when they can’t figure out what’s wrong with you.
Kravefan KCF
Edited
I too have these twitches all throughout, had them for months now, sometimes worse than others. Should I be concerned about it? I'm at 6 1/2 months with mono.
KCF Kravefan
Posted
I'm sorry you have this symptom, it's an awful one. I'm the same as you, 61/2 months but no mono, I have reactivated EBV. It's a common symptom many seem to experience. Finding this forum was so helpful for me....it was so comforting to read others with similar symptoms and fears. I sure hope you feel better soon.
Kravefan KCF
Edited
KCF
Thanks, I hope you feel better soon as well, its not fun to go thru this but it helps to have this kind of support!
Neenie2020 KCF
Edited
hi, I've been suffering with body pain, facial pain, especially my neck. Do anyone ever get a lot of facial pain and pain in your nostrils like pressure but no drainage? I'm ready for my life back!
KCE123 KCF
Posted
Hi,
just joined this group and was wondering if everyone is still experiencing muscle twitching? I had mono last december 2019. i developed muscle twitching in April. Started in shoulder after a new workout, and when i started reading about it lots of scary neuro diseases came up which freaked me out. Thats when it spread to other parts of my body. I had a positive ANA show up in bloodwork so they sent me to a rheumetologist and they did more bloodwork and found nothing of concern. He said sometimes people who have had mono show up w a positive ANA and that sometimes twitching is from mono. Wondering if anyone else has been tested for ANA after having mono and if your tests also showed positive? I also recently had an EMG and nerve conduction test done because of the ongoing twitching and those came back normal. Really womdering now of this is all from the mono. I have heard of Benign Fasciculation Syndrome which they think i may have but.... this just seems to be the conclusion they come to when they dont know. Can I get some updates about the twitching here?
Grant97124 KCF
Posted
I started to show symptoms early September 2019. I didn’t go to a doctor until about December when I started getting horrible muscle spasm and burning tendon and It freaked me out. come December and January I started having this weird shake in my left hand and had trouble gripping things. at this point I was referred to a infectious disease doctor. at this point I was diagnosed with Epstein bar. we are in 2021 and I am starting to see light at the end of the tunnel. I still have horrible lower back pain and for some reason right groin pain. I noticed floaters in my eyes and every tendon in my body was inflamed or I should say hurting. The muscle twitches were horrible, but they are getting better and almost nonexistent. The things I noticed that help the most were diet, vitamins, probiotics, removal of caffeine and a lot of good rest. It sucks because I have missed out a lot on living a normal life, but it will get better and I will make sure I take care of myself this time around so I don’t end up with it this bad. The other thing that worked well was going to a chiropractor and stretching religiously. On bad days I would take Epson salt baths. What helps you?
cr57720 KCF
Posted
I thought I was going crazy until I read all these posts. Have suffered from alot of the mentioned symptoms and more. Started late 2018 with feet cramps, and pain in my lower rib-cage on the sides. This developed 5 months later to calf fasciculations, sensory sensation in the nerves of my face and legs, tingling hands/feet, together with a really itchy chest. Eyes blurred a little shortly after that. Pain across my back under shoulder blades, and sometimes in my kidneys is really sore but comes and goes. I also noticed a slight dryness/hoarseness in my voice. Only came across EBV and this forum because after having test after test coming up normal or negative (MRI, EMG, full bloods, electro-lytes, thyroids function, rheumatoid factor etc etc) I went to neuro for visit 9 or 10 after complaining of pains in right lower front (liver) and lower left (spleen) who did an ultrasound showing an enlarged spleen. Recently also starting to get the feeling of a pin prick that then makes that limb jerk suddently. This also at the time that I thought I was imagining my cuts not clotting and googling "what causes low platelets". Both of which seems to be symptoms of EBV. Anyone else share symptoms with their spouse/partner? Mine also has calf fasciculation, has developed AF (I developed a murmur) and complains of blood clotting oddities. But no nerve problems for them. 2 years+ in and only the chest itch has resolved, all the rest continue unabated.
jonathan55221 KCF
Posted
i was just diagnosed w reactivated EBS
have twitching randomly in different parts of body
hope to God this gets easier
JenGz KCF
Edited
I know that this is an older thread, but thanks to all who shared their experiences!I am currently feeling the muscle twitches/popping sensation described by many of you as well as intermittent numbness in my right calf and left hand. I have waves of terror that I have M.S. or Guillen Barre or something else super serious, but your comments have calmed my anxieties a tad. I may still follow up with a neurologist, but my first step is going to be an appointment with my naturopath.
I was diagnosed with Lyme and an EBV reactivation in late September and have been working with a naturopath to fight both since then. The Lyme seems to be gone (after two rounds of antibiotics), but the EBV is lingering. My EBV numbers were improving a month ago, and I had been improving dramatically overall, when a rigorous bike ride set me way back, and then a GI thing set me further back. But the neuro symptoms I'm dealing with now are relatively new (had one brief earlier bout with muscle twitching in Sept.) I'm also having bouts of the foggy/almost-dizzy feeling that I thought might be gone by now. Argh!
I'm wondering whether anyone in this forum experienced neuro symptoms as part of EBV die-off? I recently upped my supplements to try to combat the EBV, so in my more hopeful moments, I wonder whether this might be part of the "gets better before it gets worse" die-off phenomenon. Thanks to all, again.
chadg1247 KCF
Posted
hello have all Of the symptoms including some tremors in my fingers and pins and needles in my fee as well as little popcorn twitches in my back hands and feet and weakness??
Eyelid twitches as well are you still having these symptoms
hope u are better