Muscle wastage in both legs

Posted , 12 users are following.

I was on simvastin for 4 years and developed bad pain in both legs when standing up.  I have to steady myself before I can start walking.  I have CK in my blood tests.  I was told by my doctor to stop taking the statins.  I have got worse in my legs after 6 months. Doctor put me on another statin.  When I read the same side effects as simvastin I didn't take any.  I couldn't believe that doctor would put me on a tablet that caused the same bad side effects. I will be going to have my blood tests done soon but would like to know whether anyone has asked about sueing the statin drug company and would the doctor be helpful about it? 

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  • Posted

    Voo, be sure to always supplement with CoQ10 when taking statins. Natural CoQ10 levels are impaired by statins. This can be a big help in feeling better. CoQ10 research also shows that it has a tremdendous impact on the body's hardest working muscle, namely the heart.
    • Posted

      Thanks for the advice.  I've been taking CoQ10 for over 2 months now and I haven't felt any dfferent.  It might be too late as I took statins for over 4 years and the damage is now irreversible.  I'm still going to keep taking it, just in case a miracle happens.  I hope it is doing my heart good.
    • Posted

      Got any links to this Q10 research question smile
    • Posted

      Hi Voo.....I actually forget how many years I took diferent statins.....it must be over 15 years.....about 10 years ago I was told I was type 2 diabetic.....I felt as if I had no thigh muscles...the pain and weakness was terrible....I stopped them about 5 or 6 years ago....the muscle weakness went away in time...I don't take any meds for diabetes ..and my blood sugar levels are normal now....I also had planter faciatis ...excruciating pain on the sole of my foot while I was on statins....and I've heard of other people having the same ....I also developed red rough patches on my skin...which gp said was excema.....but no cream or ointment clears it ......I took coq 10 for a while but I didn't think it made a difference.....and at £42 for a months supply ....was very expensive....but I think the longer you take statins....the longer it will take to get rid of the effects...if at all.....my husband took them too...and it has affected his memory....and joints.....
    • Posted

      Hello Lisa, my husband is taking simvastin too and it's a higher prescription.  He says he has no ill effects but he says he will discuss it with his doctor when he sees him.  I have just started with pain in my feet so I'm  sure I'm getting worse.  When getting into my car I have to physically lift my right leg to get it in.  I'm going to ask doctor about Rhabdomyelosis.  I expect she will think I'm a hypochondriac and dismiss this.
    • Posted

      Hi Voo,   when I started taking statins....I didn't feel any bad effects....and one doctor did ask me if I had any leg pain....I didn't...then...and as you get older...I'm now 70....you tend to put all your aches and pains down to getting older...my husband and I used to go for a walk almost every day....haven't managed to do that for a while...
  • Posted

    And how will you know your mind is being affected?  It's sneaky and subtle and not easy at all to know what it is you don't know.  Or arent't knowing at that particular moment.  

    It's insidious, and those taking it should be in touch with whoever knows them well to keep track of this.  It's very hard to peg that your memory is not working right when things just don't occur like they used to, and simply aren't there.  You never notice that kind of thing, it just doesn't blip up on your radar.  Friends will help you to know you're not knowing something, when you can't.

    • Posted

      I was doing a data entry job and couldn't remember a name in the time it took to click a screen after taking 300 ml or mg or whatever for 12 months  I noticed an incredible inprovement
    • Posted

      Yes?  An incredible improvement in what?  From what?  From taking the statin drugs?  Or from discontinuing them?
    • Posted

      sorry inprovement in memory from in my opinion the effects of statins. Taking the Coq10 after discontinuing statins

       

    • Posted

      Yeah, I didn't know about the damaging effects of the statins on CoQ10 when I was taking them but my partner did, and kept me supplied with it every day.  

      I think it's only when your memory starts returning after discontinuing them that you know it was really being compromised while taking them, otherwise it's hard to be aware of what you are not consciously aware of.  

      I went off and then on them again several times, a couple of months each, just to test that.  That's when I knew, finally and unequivocally, that that was why my memory had turned into a patchwork quilt - with big gaping holes in it - while on them.  

      I still have no idea where my tool kit, with years' worth of specialized tools I have never seen again, disappeared to during that time period when I was on the statins.  To this day I miss some of those exotic tools I had collected and cannot now reach for.  I had to start a whole new tool kit from scratch just to stay in business.

      It's an insidious, dangerous drug that does things to you that you don't even know it's doing at the time while you are dutifully keeping your body saturated with it every day, doctor's orders.  Many on this site have had to live with those damaging effects from then on, for life, suffering irreversible damage.  

      I am sincerely glad I went off of them and am NOT now approaching Alzheimer's and dimensia status, which is where I was headed while on them.

    • Posted

      You said it perfectly mrbob, it is very 'idsidious' drug and I thought I was seriously losing my mind, not being able to remember anything, and I thought I was getting Alzheimers or dementia

      My mother is 85 and been on them 20 years and it has seriously affected her memory, with dad has  been more affected musculo skeletally, and I've tried to convince them that it is quality of life not quanitity but Dr (God) prescribed them so they will continue to take them

    • Posted

      Get them to read these posts.  Certainly they have time on their hands, at their ages.
    • Posted

      It is bewildering - and professionally embarrassing - when you totally forget an important appointment that makes you look professionally incompetent. One that you never would have forgotten when NOT taking the statins, which you know to be true because you had no trouble remembering countless such appointments before you started taking them.  I have forgotten my bank account number where I have been a member for over 25 years and have remembered that account number countless times just in the last decade.  

      On statins?  Could not remember it for the life of me.

    • Posted

      I have copied and sent some but...................
    • Posted

      There's an interesting article in the Daily Mail Australia dated 13th April from a physiotherapist regarding statins. I'd copy the link but they don't seem to let the on here

       

    • Posted

      Thanks for the tip.  I googled the Daily Mail April 13 Australia, and in the Health section found this:

      "Statins, which are designed to help protect people from heart failure, can actually increase the risk of a heart attack according to a new study.

      Researchers say the drugs, which are taken by around 12 million patients in the UK, are more likely to cause calcium deposits in the arteries, which can lead to a heart attack.

      Statins were developed to lower cholesterol, but they also block a molecule needed to produce vitamin K, which prevents calcification of the arteries.

      The author of the report, published in Expert Review of Clinical Pharmacology, says there is 'no evidence to support people taking statins', which opponents say also cause other health issues including skeletal weakness and muscle pain.

      Professor Harumi Okuyama, of Nagoya City University, Japan, told the Sunday Express:'We have collected a wealth of information on cholesterol and statins from many published papers and find overwhelming evidence that these drugs accelerate hardening of the arteries and can cause, or worsen, heart failure.'

      Similarly, Dr Peter Langsjoen, a heart specialist based in Texas who is co-author of the study, said: 'These drugs should never have been approved for use. The long-term effects are devastating.'"

       

    • Posted

      I really wish I could find a GP who believed this and could make me feel my old self. 2 years off them and I still feel like rubbish

       

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