My 14 yr old son has 17% kidney function
Posted , 4 users are following.
Hi there, I cant seem to get answers from anyone. My son is a unique case. Probably too long for the message board, but I have going crazy waiting to hear many answers from the docs. He lost 11% function in less then 8 wks 
. He is peeing more then he can drink. I can't find any info. Will he need to start dialysis or can it still wait? He has a heart condition and possibly bone disease now also (will find that out in a cpl wks). This has been awful and the stress of waiting for answers all the time. Then I look on google and get the worst case senario. He was healthy, at the age of 10 a doc made a mistake. He almost died, so I am so happy he's here with me but man, this is not supposed to be his life and I am incredibly sad. I am hoping to be a match if it comes to that....He has no 100% sibling unfortunately. Any feed back I am grateful for. I have tried everything. Bought an expensive machine for our water...only to find out that it is bad for people with CKD! I specially asked. Tried natural path and that did irreversable damage, tired eating all organic, vegatarian...I am so willing but nothing seems to help and I am at my wits end! Please if anyone has tried anything that has helped a child (as adults and children are very different apparently) I am all ears. Thank you. Sorry for going on, its just been hard to watch him go down hill so fast and I know some of you will kinda undertsand...
0 likes, 16 replies
yehyeh lee-ann11178
Posted
lose 11% kidney function in 8 weeks. is it acute renal failure? i think your son should be warded ASAP. seek for proper hospital treatment. the doctors sure will help.
lee-ann11178 yehyeh
Posted
He has had CKD for 4 yrs now. He sees a nephrologist regularly. They are doing the workup for transplant. The thing I find weird is that he is peeing more then he can drink. He only pees 2-3 times per day but he drinks a lot and in those few times he pees extra liters... I cant find anything about this....
yehyeh lee-ann11178
Posted
is it dehrayrated??
lee-ann11178 yehyeh
Posted
I am not sure if its dehydrated. I am waiting on the oc to get back to me...
By drip you mean to help him rehydrate? Like a saline solution?
Thank you
yehyeh lee-ann11178
Posted
acute renal failure. by drip, then i able to recover back to 150 region.
my kidney function quite stablized at 150-180.
for many years , about 9 years.
but then, this year jan and march, it shoot up to 240 region, then my doctor warded me, just discharge 3 days ago. i also did a blood tranfussion and also i have urine infection. now creatinine drop back to 150 region and my doctor discharge me.
i hope i able to stablized at 150 region.
well, did you check whether your son got any infection or diarhea? or dehydrated? i think really need to warded him for a check up.
kidney function will not lose so much in a short period of time, should be able to reverse.
btw i have lupus nephritis for about 22 years.
hope it helps.
lee-ann11178 yehyeh
Posted
By warded you mean admitted? He just went for a check up last tues and goes again april 5....then again on april 16th....
Lots of appointments, I am sure you are fimaliar. Thank you for the advice and I hope all the best for you, as a friend of mine has lupus and I kinda understand the challenges
....
Sincerely,
Lee-Ann
yehyeh lee-ann11178
Posted
yes, i think admitted hospital and let's doctor investigate, i do have a infection and my creatinine was fluctuate , doctor would like warded me on end of Jan but i refused as i just discharge on early jan.
However, then March, the infection getting worse and causing me lose blood and worsen my kidney function.
doctor didnt knew the reason but suspect a flare in my lupus. then warded me. ended up, found out there is infection.
warded 2 weeks time to find out the causes of the worsening kidney function is worth it.
however, if really do need dialysis. then just go ahead. i knew many are doing dialysis and they are still doing good.
be more positive.
lee-ann11178 yehyeh
Posted
Wow you have been through a lot.
Hes been on dialysis before. It just takes alot out of you. Yes if he has to its ok but I prefer not of course.
Thank you and all the best YehYeh.
yehyeh lee-ann11178
Posted
are you chinese? i am in singapore.
i prepare the worst and get ready for dialysis. 10 years ago, my doctor did said that i may have to start dialysis. while 10 years now and my kidney function still stablized at 150-180
i try not to worry much and still keep my life as per usual. btw i still working full time job
no matter dialysis or not, we still have to positive and live as per normal.
lee-ann11178 yehyeh
Posted
yehyeh lee-ann11178
Posted
i have something in my mind. well, your son pee more than what he intake. which means he is losing body fluids. which i highly suspect dehyrated.
dehyration will cause kidney function worsening too.
u consult doctor opinion??
lee-ann11178 yehyeh
Posted
yehyeh lee-ann11178
Posted
yehyeh lee-ann11178
Posted
i was admitted 2 times this year and now my kidney function also able to stablized.
so not to worry much. keep the spirit high! cheers
sonia68053 lee-ann11178
Posted
Obviously he will have had blood tests for both kidney and liver function. Has he had an ultrasound which can look at the kidneys? It is a very simple procedure - like x-ray - but watched on a computer in real-time.
If you have not already done so, ask for a long talk with your doctor ( take someone with you because you will not remember half of what you are told). Ask if they have any idea of the cause; what they will do to try to identify the cause; what can be done to prevent deterioration of kidneys while they are waiting for answers (if anything); what possible treatments/interventions are likelypossible and at what point intervention/treatment becomes essential.
Ask what you can look out for in case of emergency/when you must call for medical aid.
I wish you well. I am a mother and grandmother who is now on dialysis - my life-saver. If it were my child - I would be feeling exactly as you are now.