My 5 year old Daughter - idiopathic Scoliosis advice.
Posted , 11 users are following.
Hi, my Daughter has recently been diagnosed with ?idiopathic Scoliosis.
She had an x ray 6 months ago lying down and measured 17° and had a standing x ray 3 weeks ago measuring 27°. She has to have an MRI to rule out intraspinal pathology. I have no idea what this means, can anyone else explain it to me? She will then have another x ray and consult and then we discuss treatment. I am unaware of how serious or minor this problem is but I know I am anxious.
Thank you all. X
0 likes, 18 replies
janet68145 KEC82
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KEC82 janet68145
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Thank you for your reply. It's very reassuring to read. It's all very new to me and because I don't understand it that's why I worry. The consultant didn't explain anything to us really he just wants an MRI done to rule out other reasons this may have occurred ....also why I worry.
Thanks again. X
betty14688 KEC82
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Idiopathic scoliosis happens in young children.Research has been done, but idiopathic means they can't come up with a reason why.Most say, it's possibly a posture problem with juveniles.
Common, is a bend to the right with children. If they bend to the left, better chance of recovery.
Now, the age your child is at, requires some realistic expectations, because it will probably get worse.The body is going to accelerate the problem because it's growing so fast.
I was diagnosed with a 56 degree s curve when I was 11.There was no choice but surgery. I was so young, I sailed through it.Had no fear, and no physical rehabilitation. Intensive care for 2 weeks after, and I had a roomate who I'll never forget.I had tape on my back, and she had staples, and her parents would try to force her to eat oatmeal.I saw a guy walk down the hall, and was trying to get his attention, and my roomie was like, hey, your butt's showing!
I tell you these things because you have a hard road ahead of you.You need to just go with the flow, and tell your child it's going to be O.K.
Scoliosis is a better diagnosis than leukemia, Cancer. Heart Failure,losing legs, or arms.
This child may suffer, but that suffering will make them a stronger person in the long run. Sounds like they have the greatest blessing already, a parent who loves them enough to be on this forum.
You stay strong, Momma.That's all you can do.
KEC82 betty14688
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KEC82
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betty14688 KEC82
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I addressed you as Janet, I'm sorry! Sometimes my age catches up with me on these sites.Janet's awesome!
You're very welcome, and I hope to hear from you on the development, and if I can give any words of encouragement,I'll be here.
I prefer to think that every problem we have, has been given to us because God knows we can handle it, and make it a graceful struggle.Not that any day is easy, but as you can see in this forum, it's a pretty rare club.We meet 7 days a week!
Your child is so lucky to have you,and just know you're not alone in this.
janet68145 betty14688
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BizzieIzzie KEC82
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I am 16 years old and have had scoliosis for about as long as I can remember! I was actually diagnosed quite late and so was not elligable for a brace, but by the sound of it they well be very keen for your daughter to try one. The 10' difference in the x-rays shouldn't worry you, it doesn't mean that the curve has progressed rapidly in that time, just that it was a different view and opinion.
Firstly, I would advise ignoring a lot of generalised scoliosis websites. Whilst they can be very helpful in getting the idea, many of them are out of date and can be terrifying, so ask your doctor or this forum! This forum will give different answers (for example I would disagree with Janet that it might be a postural cause as there have been many papers disproving this theory) but will definitely help!
Scoliosis doesn't have to be something scary - it helps to know you are not alone, nor will you ever be, and you always have support from this little community should you or your daughter ever need it!
I am very happy to answer any questions regarding scolio in general, my scolio specificially or anything like that - even if you (or your daughter/family) just need a chat and some support - feel free to privately message me or reply here (your choice!)
All my love, Izzie x
cindy23318 BizzieIzzie
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Jay91157 KEC82
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KEC82 Jay91157
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TaraP KEC82
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Kelly271 TaraP
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Also, hello KEC82! Just want to let you know I'm here for you, too. If anything it's good that they've caught your daughters scoliosis this early because they can begin using methods to prevent the curve from progressing such as bracing or physiotherapy exercises. I recently just found this forum and I find it a massive help. Honestly, any questions you have will be answered by these wonderful guys, they're amazing. God bless.
Kelly x
TaraP Kelly271
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Kelly271 TaraP
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Kelly x