Posted , 11 users are following.
I have just been diagnosed with LS and I am so worried because my clitoris is completely fused and my lady parts have disappeared. My question is, will i ever get these back?? Any ideas on what cream I should use. I prefer something natural. Please share any success stories you might have. 
0 likes, 25 replies
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Tree_hugger DR30
Posted
Hi there,
Sorry to hear this, I assume you are using a steroid ointment like Dermovate? I'm afraid I really don't know although I know steroid can hold back further erosion. Have you had a chat with your doctor or been to see a gynaecologist?
I have seen that there are some corrective surgerys you can get. I have just been for PRP treatment which many have benefitted from. I have taken this treatment to try and get myself into remission: http://lichensclerosus.org/breaking-news/
Although you can try the natural way, I have seen it mentioned many times that if you want to stop erosion and fusing, steroid stops this.
I am doing practically evenerything: steroid, PRP, Homiopathy, councilling etc. I am s big believer in finding the root cause, but I will use steroid along side this in order to ensure no erosion.
Anyway, all the best and I hope you find the best way for yourself.
hanny32508 Tree_hugger
Posted
Tree hugger, I wouldn't advise surgery. LS might even get worse because of it. Stretching the area is safer.
Tree_hugger hanny32508
Posted
I have no idea about how well surgery works, but I can imagine it isn't pleasant! Xx
Anna777 hanny32508
Posted
I agree, Hanny. Also, steroids have side effects. I've done very well without them. They are helpful with symptoms, but are not a cure. If you use them, use them sparingly, and discontinue use if you can.
DR30 Tree_hugger
Posted
I do believe you are correct in finding the root cause and I am booking in to do some much needed councilling.
Thank you for these suggestions.
Tree_hugger DR30
Posted
All the best xx
DR30 Tree_hugger
Posted
Thank you Tree hugger. I hadn't thought of homeopathic remedies. I will look into that.
Much appreciated. xx
carolbow Tree_hugger
Posted
I listened to Dr Goldstein
ive been putting thick amounts of steroids and getting worse and very depressed. Last night I followed his instructions. I bathed in warm water for 20 mins (I put on a relaxation talk) then I rubbed a pea size amount of steroid into the area for 90 seconds. I've had a good nights sleep and things have improved. Finally I feel hopeful I can get it in remission now I understand that the steroids have to go down a long way. I'm going to see my gp again I'll ask her to watch the lecture as its her job to support me in this disease.