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My colonoscopy was difficult because I have kinks in my colon, anyone else have this?

Posted , 5 users are following.

linda94817
linda94817

Hello everyone, I have just joined and am so glad to have found a lovely group where we can get support, advice and share different experiences of diverticular disease. I started having symptoms in July this year, bloating, pain in my tummy and back pain. Then, in September I had excruciating pain upper left handside under my ribs which had me doubled over. My doctor ordered a colonoscopy which I had in October. I was sedated, but unfortunately my procedure was difficult, my colon apparently has kinks. So they had to give me gas and air, then the nurse had to press down hard on my tummy to try and flatten the kinks. I left the hospital feeling like I had just done 10 rounds in a boxing ring!! I never, ever want to have a colonoscopy again! Anyway, I received a letter from the hospital stating that the investigation has shown some diverticular disease and they were going to leave my on-going care with my family doctor. Is there any need to see the doctor, as I am keeping a food diary, cut out out all fruit with seeds and pips. Also, I am taking 1 sachet of Fybrogel a day and touch wood, everything seems to be ok. Thank you.

0 likes, 20 replies

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  • maureen96798
    maureen96798 linda94817

    Posted

    Hi yes we are lucky to find this group,yyes i alsi agree never again for me the camera, also not very helpful told i had D.D.and removed 6 polyps, i mywas being treated for ibs until like you pain bloating ect; my gp was wrong its really pulled me down, as there is no cure, only diet, did they say you D.D?
    • maureen96798
      maureen96798

      Posted

      Sorry meant to ask you do you take buscopan? I take after my meals helps with the gas i take one before meals and drink loads of water, feel for every one suffering with DD its taken over my life big time its seems like trail and error for me keep well
    • christine63572
      christine63572 maureen96798

      Posted

      No I don't take buscopan but I suppose I really should as I do get a lot of heartburn. I did take meds for reflux which I don't anymore but may have to start taking them again. It does make you very scared to eat anything and I have lost weight which I couldn't really afford to do. I don't eat cakes, chocolate, bread, red meat, pastry of any form so my diet is very bland so not a good person to go for a meal with in fact I don't eat out anymore sadly.

    • susan95516
      susan95516 maureen96798

      Posted

      I take mabevarine but I was thinking about changing to buscopan   I still get lots of wind and feel bloated. I have DD and IBS 
    • maureen96798
      maureen96798 christine63572

      Posted

      Hi Christine im very limited what i eat now .my family have laid on a meal for my birthday at a chinise now im worried what can i eat because they don, t understand tell me a miserable old lady, hope they never get it, my hubby also, im sure stress does no good too ive got plenty of that keep well
    • susan95516
      susan95516 maureen96798

      Posted

      My daughter doesn't understand at all she is always saying come here or why can't you go there. When I say it's because my stomach is off she goes that's just an excuse. I said I hope you have this when you are my age then you will understand what I went through 

    • maureen96798
      maureen96798 susan95516

      Posted

      HiSusan i only wish it was an excuse, my family won,t even let me talk about it or hubby, so with out this site i don,t know were id have been every one so helpful. I did,nt know that you could have both ibs and dd, one dr said l had ibs saw another one who said i was too old to have it, but camera picked up dd not ibs because of the pain and in the loo 24/7 plus the bloating, which ive got but since the diet has changed to bland food it,s calmed down in the last a couple of days but i loved my food and having meals out life is horrible for us dd suffers keep well
    • linda94817
      linda94817 maureen96798

      Posted

      Hi Maureen, yes the consultant confirmed that I have got diverticular disease. Fortunately, they didn't find any polyps. They also took tissue biopsies to test for microscopic colitis, thankfully that came back clear. I have recently started taking a probiotic tablet daily, which seems to help. I also tried Aloe Vera juice, but had to stop taking that after 3 days as it gave me terrible indigestion. 

    • linda94817
      linda94817 maureen96798

      Posted

      Hi Maureen, no, I don't take buscopan is it like a indigestion tablet?

    • susan95516
      susan95516 maureen96798

      Posted

      Hi moureen. I know what you mean   All my daughter ever says is its old age IBS I tried to explain DD to her but she said. Is that all it is. I loved to eat out and really enjoyed my food but not now. I have gone down 2 sizes since last September at least that's a good thing. A colonoscopy wouldn't pick up IBS my GP said I had from the symptoms. Pain bloating going from being on the toilet all the time and not being able to go. 

    • maureen96798
      maureen96798 linda94817

      Posted

      Hi Linda about the buscopan, i started taking them when i was told by my chemist, for bloating and cramps, they do help me i have them after my meals.when told i did,nt have i b s it was dd, when i asked my chemist was it ok to caring on he said yes i would benift from them, no harm to try, tonight im suffering with bad wind hope this helps
  • christine63572
    christine63572 linda94817

    Posted

    Hi Linda I had a similar experience with horrendous pain under my left ribs radiating to my back I had CT scan which showed I had a collapsed colon a colonoscopy was ordered but for some reason the collapsed colon had corrected itself I was diagnosed with diverticulitis and that was it no antibiotics and sent back to my gp. I have managed my DD with the help of this lovely site and so far touch although still in pain from time to time I have avoided antibiotics. I have changed my diet and no longer eat read meat or anything that is hard to digest, I to take fybogel daily.  I think that as long as you arnt in pain or constipated you should be fine as long as you stick to foods that don't aggravate your colon especially as diverticulitis didn't show up which means your colon is infected. I still get my pain on the left side under my ribs whereas a lot of people get lower left sided pain

    • linda94817
      linda94817 christine63572

      Posted

      Hi Christine, I guess its a lot to do with trial and error regarding what we can eat. I am keeping a food diary, so hopefully it won't be too long before I can eliminate the culprit foods. I know fruit containing seed and pips are a no no as are tomatoes, multiseeded bread. 

  • susan95516
    susan95516 linda94817

    Posted

    I take fybergel and a probiotic tablet. I haven't cut out all fruit I just peel and deseed everything. No nuts corn I can't have eggs red meat or sprouts and chocolate. It's a lot of trial and error. Good luck 

    • linda94817
      linda94817 susan95516

      Posted

      Hi Susan, thank you, I have had to cut out nuts. But I think I can eat eggs and chocolate so far.
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