My Dizzy Unbalanced Nightmare.... Any Ideas???
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Out of the blue nearly a year ago I was talking to a colleague at work and suddenly felt like I was going to fall over and had to grab part of the door frame to continue the conversation. It was a frightening experience and one that stayed with me on and off for quite a few months. I visited the doctors and they diagnosed With Vestbular Neuritis.I was given Stemitil to help with the dizziness and sent on my way. I continued every day with the same dizziness and found it almost impossible to hold a conversation with people as I felt I was unbalanced and was going to fall over.
As son as I looked at a person and was talking to them directly it was a major issue. I had to be sitting down and even then it took all of my concerntration to stop myself from falling. Just sitting on a chair I felt like I was unbalanced and was constantly having to fight against it. It was becoming tiring just trying to get through the day. I went back to the doctors and they then said I had BPPV because of the way my eyes reacted to the doctor moving his finger. More medication for the more difficult moments but yet again it made no difference to how I felt. The dizziness and unbalanced feeling was now also now making inroads into my private life and going to Supermarkets was a complete nightmare and still are one year on. I havent stopped going to them but it really hasn't got any easier the feeling of falling or dizziness in the aisles is just awful. I can't go to a local museumn without the dizziness feeling taking over and ruining the day for myself and my wife.
It seems now where ever I go there are issues,Hospitals,Supermarkets,Museums,Piers,shoppi ng centres,crematoriums,cinemas.etc etc etc I have the same feeling that Iam unbalanced,dizzy and feel like Iam going to fall. I have also now started to get some sort of myclonic jerks whilst sitting and awake but mostly these are when Iam tired. I also cannot watch some TV programmes because I feel like Iam experiencing everything I see.
I visited the doctor again Thursday and explained again my symptons and she decided I need to see a neurologist. She wasn't happy that I failed the romberg test by swaying to the right and she said I was struggling a little with walking straight with one foot in front of the other. I also was seeing double when she was moving her finger and Trying to focus.
Iam really hoping that the neurologist will be able to come up with some sort of diagnosis,the whole dizzy unbalanced feeling Iam getting is currently causing absolute havoc within in my life and the fatigue you get from just trying to get yourself through the day is only something that those who have had dizziness would fully understand.
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gillian76726 adrian13980
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adrian13980
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collette19372 adrian13980
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Hi, just wanted you to know I know EXACTLY what your feeling.
I had a servere case of Relapsing polychondritis four years ago, it was not my first,my first time my ear blew up so much it was dark purple! the second time I woke up one morning to my nose looking like somthing from Lion King!
The time four years ago i woke up in the night to use the toilet and my head was spinning so much I couldnt find the bedroom door, I was really scared, i thought i was going to have a brain bleed.
Got the doctor out and he said i had a middle ear infection,WRONG!! two weeks later i couldnt walk without falling over,I could not make sence of what people were saying to me,and my speech was all jumbled up, but the worse thing was I couldnt hear anything in my right ear apart from a really loud high pitch ringing, scared was not the word for how I was feeling 10 days later I was diagnosed with RP.
The doctor i seen took me off ALL antisickness meds, and explained that I would need to re-teach the brain how to balance, the vestibular nerves had been severed by the RP & that was why I was now deaf in one ear.
It took a good year before i could get away with walking without looking like i was drunk, but I did it, You really do have to re-learn everything, Im like you ,i still find shop's and crowds hard to be in, and ive had to learn to lipread a bit,because if there is any noise i cant tune in to speech.
But im now four years on, i drive, and live pretty much the same as before, my children love it as they can get away with more by saying " I did tell you mum, you just didnt hear me".!
Im under a fantastic docter at GUY'S, proffessor D'Cruz, he's an auto immune doctor, so if you can try to get sent to him, he found out i have four autoimmune dieseases, and really has helped.
I hope this give you a bit of hope,just knowing someone really does know how you feel might make a diffrence.
GOOD LUCK
adrian13980
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anne05147 adrian13980
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veemae80819 adrian13980
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I can relate to a lot of what you say. About 20 years ago, I had my first spell of vertigo. This came on after an inner ear infection and, although it caused severe vomiting for a couple of days I recovered from the dizziness fairly quickly.
Over the years I had similar attacks that lasted a few weeks. Then, five years ago, I got out of bed one day and tried to switch the light on and found that I kept missing the switch. I became alarmed and got back into bed. I felt like the bed was spinning me around but, at that time, I didn't know how bad vertigo could get. I was convinced that I was dying! The symptoms just got worse each day until I collapsed and ended up being admitted to hospital.
I had to give up work and couldn't go out on my own for three months. Like with you, supermarket shopping was impossible. I was told by my consultant that I could not drive and it was two years before I was able to.
I was referred to a neurologist but, although they found some unexplained scaring on the brain, they said it was not related to my vertigo or migraine.
It might seem to you that you will never get better but you can improve with the correct diagnosis and treatment/medication. I was referred to a physio and given exercises to correct my balance. Five years on, although I'm not cured I am back driving and have a good quality of life with the help of medication and chiropractic treatment.
By the way did you have any type of infection or cold before this attack?
All the best.
adrian13980
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anne05147 adrian13980
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Just turning around to close the garden gate when i leave home in the morning for work leaves me in a spin. Must find another way to close the garden gate
adrian13980
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anne05147 adrian13980
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anne05147 adrian13980
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