My doctor has stopped my arthritis tablets 'Diclofenic' as they have been withdrawn for over 50's what can I take?
Posted , 6 users are following.
Can anyone recommend anything as my hands have become very painful as well as my knees.
0 likes, 28 replies
crissy_wissy liza6
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liza6 crissy_wissy
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susan67756 liza6
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http://www.arthritisresearchuk.org/news/general-news/2013/february/experts-call-for-diclofenac-to-be-withdrawn-due-to-heart-risks.aspx
crissy_wissy susan67756
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liza6 susan67756
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eileen64__UK liza6
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What has your GP said......was it him took you off them.....you should have been offered something else.
Eileen
Stobban eileen64__UK
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Naproxen is a good substitute for pain but only comes by prescription. Do as I suggest Crissy, see the Doctor and keep yourself safe......................Ron.
crissy_wissy liza6
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Gizmo1963 liza6
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eileen64__UK Gizmo1963
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If your GP prescribes anti inflammatories he should also prescribe a stomach protector like Omneprozol or lansoprozol,....some dont and you have to ask them
The othe thing is be careful of gels if you are already taking anti
inflammatories......I'm on the full dose of Naproxen and have been told not to use anti inflammatory gels as it acts as an overdose....there are other gels.....I admit Voltarol is good but I am not allowed to take it.
Let us know how you get on
Eileen
liza6 eileen64__UK
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Hildegard liza6
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eileen64__UK Hildegard
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I'll re-check about the naproxen plus other anti inflammatories......I would love to be proved wrong in this......I found voltarol excellent but thats before i was taking a full dose of naproxen.
Hope you are right
Love
Eileen
Hildegard eileen64__UK
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eileen64__UK Hildegard
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Its not the diclofenic that I take via gel.....I take the full dose...slow release naproxen. I would love to be able to try voltarol again.....mostly on my lower back. I would probably only use that in the morning and at night and across my lower back....not all over.
We'll see what happens.
I usually try things unless they are contraindicated to my epilepsy tablets......have well controlled epilepsy.....more than 30 years since i had anything but still take meds for it. No way do i want to change everything {like driving} by trying something that is contraindicated or MIGHT BE.....I know this has nothing to do with voltarol....sorry....I went off on a tangent lol
Love
Eileen
Hildegard eileen64__UK
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Voltarol contains diclofenac as the active ingredient, so if you're already taking diclofenac in tablet form, i can see how that might worry you - but Naproxen is a different drug from diclofenac, although theyre both anti-inflammatories (NSAIDs)... I would definitely ask your pharmacist as they are usually up on the latest thinking, and will be able to look up all the possible interactions between all your different meds, something the doctor may be reluctant to do in the 5 minutes you get to try and remember all your symptoms!
I wish there were more options for OA pain- i dont think people realise just how agonising it can be. There are times when I could happily top myself im in so much pain - sometimes i just dont know how ill get thru the night.
But of course you must thoroughly check out the situation with regards to your epilepsy meds - but if theres no specific interaction between NSAIDs and your epilepsy tablets, id give voltarol another go, its a terrible shame not to be able to use something that gave you relief! Id never be parted from mine without a fight, I know that!
eileen64__UK Hildegard
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You will not have heard of my anti epilepsy tablets
Epanutin {I think used to be before Epilem} and mysoline...they are ancient but do the job. Every new doc i see....nothing to do with the epilepsy, notice the drugs and say......no one is taking those anymore!!! In fact its mono therapy now.....we'll change them. I just look at them and say "We wont change them" why? "If its not broke dont fix it"
My last seizure was during pregnancy and my youngest is 33 years old.
I had forgotton that voltarol was diclofenic but i was taken off diclofenic a couple of years ago and changed to naproxen {supposed to be safer}
I will definately check it out.
I doubt if it will be tomorrow.....morning.....I'm at physio....loads of exercises ...I had a 2nd THR13 weeks ago and then 4 weeks into recovery {9 weeks ago} had a fracture doing one of their exercises!!!!!
They say nothing they can do to sort it...it will heal itself but will take a long long time!!!! Whatever a long long time is I'm getting sick....on 2 crutches most of the time and cant got more than about 20 mins on those!!!! OA was bad like you say, scoliosis as well but now this and the "not knowing" is whats driving me crackers.
So physio tomorrow morning and then early afternoon a different hospital for a DEXA scan....{Osteoporosis????}
The following day I'll check it
Love
Eileen
Hildegard eileen64__UK
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Good luck with your scan - Ive been doing a lot of reading up on Vitamin D deficiency - with my bipolar i get long, long severe depressions where i simply dont leave the house for up to 2 years at at a time so get no sunshine whatsoever. Ive just found out that bone pain, muscle weakness and fragile bones are symptoms of Vitamine D deficiency and that doctors hardly ever think of this possibility. Its also implicated in osteoporosis! Ive started taking a high dose supplement just in case and will be asking my GP to do a blood test in 3 weeks time, when i see him to get the results of my CT scan that I had done today. Ive been chatting on this site to a retired GP who says most british people are probably not getting enough vitamin D because the UK just doesnt get enough sunshine throughout the year...Hope yhour fracture heals as soon as is possible and that you start feeling better. Take good care of yourself x
eileen64__UK Hildegard
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To be fair I dont think it was the exercises I think its osteoporosis
Even though I only managed to get a scan yesterday my GP started me of meds about 2 weeks ago assuming it was.
We dont get enough sunshine here....one of the gP's in the practice laughed and said you need to go and live in Cyprus or Australia.....or somewhere hot LOL
It will be 6 weeks before my GP gets the results of the scan but I think she is treating it as osteoporosis from now.
I had a physio appointment in the morning yesterday and like you say....I'm sore after all the exercises.
Bipolar must be awful if it leads to such dark depression.....I can imagine what depression is.....some people say they can but they cant. I was seeing a psychologist about 18 months ago because i was diagnosed with depression but it was mild depression. There were days I wouldnt go out. That mild depression gives me an idea what full blown depression must be like
I had never thought of lack of Vit D causing pain {all my arthritis etc} osteoporosis yes. My GP had already started me on Vit D meds but they are prescribed ones and I have to take one 3 days a week for 8 weeks then I noticed on my prescription there are others prescribed but not to be taken until I finish this course of Vitiuamin D
Thanks for your reply
Love
Eileen
Hildegard eileen64__UK
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Funny coincidence - I had a CT scan yesterday, I had completely forgotten about it and only remembered t the last minute (its all these damn pills im like a zombie half the time!)
From what Ive been reading british GP's dont usually prescribe anywhere near high enough doses of Vit D. Theres a brilliant website called The Vitamin D Council (its American, but not full of adverts or nonsense!) - its got lots of good clear info. I plan to go armed with the facts when I talk to my GP. He's lovely, I know I can always discuss everything and he takes me seriously. Just wish I had found him sooner! Apart from anything else I might have got my bipolar diagnosed sooner. Its derailed my life, really over the years - but then, I have had plenty of mad colourful wild experiences too when I am high! No point crying over spilt milk - my focus now is trying to make sure my son doesnt inherit bipolar. Thankfully he's a good lad, he is 20 and at University now, so i must have got something right (Deo Gracias)
All the best for your test results, sounds like you have had a lot to cope with lately - hope things improve soon. x
eileen64__UK Hildegard
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Yes it would be so wonderful to move somewhere warm...especially if the NHS paid for it
How long will it be before you know the results of your scan...it will be 6 weeks before my GP gets mine
No I get the impression that they arent very keen to prescribe Vitamin D....My GP {whenI asked for a test} said OK and then laughed and said you know there is quite a contreversy about Vitamin D at the moment.
You've got the right attitude about your bi polar.....I'm trying to be more positive about this fracture........I can cope with my osteoarthritis, with all the aids I need, and my kyphoscoliosis but this fracture is an unknown factor.....weill take a long long time to heal.....nearly 10 weeks now
I'm trying to be more positive about that the same as I am with my OA and scoliosis.
Your son seems a good lad....I've got 2 children ...girl 33 not married and a lad of 35 married with a little girl
Love
Eileen
Hildegard eileen64__UK
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Ten weeks waiting to heal?!?! - are you in plaster? Hope weather doesnt get too hot til the cast/bandages come off!
How lovely to have a granddaughter - I cant wait. I love babies, I loved it when my son was little, if I could have pressed 'pause' when he was about 3 and kept him that age forever I would have done it!!! I bet your sons little girl keeps you positive? its hard to stay down around little ones, isnt it.
eileen64__UK Hildegard
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I can imagine how worried you are......what is it....hope for the best but prepare for the worse??I think thats the saying
Ten weeks yes......and no...no bandages no plaster no nothing
Because the fracture is at the top of my hip they couldnt do anything.
I was told what had happened then they said...nothing we can do about it it will heal itself buit it will take a long long time and you'll be left with a "dip" What on earth is a long long time????? Thats whats getting me....not knowing.!!!Its been a long long time now as far as I'm concerned but no change. and I dont see the orthopaedic consultant until the middle of June. He has seen me once since it happened, seen the physio once and then was sent to a physio assistant for exercisese.......thats been it.....she can just do exercises with me......cant really answer any questions.
As for my grandchild.....dont see a lot of her to be honest.....they live about 20 miles away and my DIL's mother lives in the next street.
Oh well never mind.....must go now....its 7.30am better start getting washed dressed etc.....it a horrible day looking out the window.....pouring with rain.
Love
Eileen
Hildegard eileen64__UK
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I reallly hope it heals soon! cos I dont imagine physios are much good at giving medical info! mine does it all on the phone now, i cant even get to see them! Imagine that - physiotherapy telephone service its called. whatever next!
Sorry to hear you dont see the little one so much. its not fair really if her other nanna sees her all the time - i worry about that, with having just one son - the mother's family usually get more involvement. You need to nag that lad of yours to bring her over!! but its hard i know - you dont want to bother them.
Yep, nasty weather here too in rural shropshire. Tho actually yesterday was so muggy and close, i dont know which is worse. Like you say, if only the NHS would pay for a move to a secluded cottage on the beach someplace! Right now Id even settle for Rhyl!
Take care of yourself, and best of luck for that consultant appt in June x
eileen64__UK Hildegard
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I'm trying so hard to be positive and see the good in little things but its not always working.
Physio on the phone never heard of that before The physio assistant can give me exercises but any questions i ask she has to go and find the acual physio who deals with me to ask him??
I'm seeing him in a couple of weeks time so I have a load of questions I want to ask him
Yes...this is my son....I do have a daughter 16 months younger than him but she is not married. As you say the daughters family are always closer ...I can imagine that I would be much closer to a grandchild if Sarah had one.......... Heaven forbid!!!!!!! Dont want her being a single mother.
I dont know whether I said or not...I'm in the North East
The physio appointment comes before the consultant one so he might be a help although he would wrap me in cotton wool....saying you have had 2 hip replaements and 1 fracture so you should stick to the hip rules for the rest of your life Dont bend dont twist sleep on your back etc.
My consultant says do what your body tells you to....if it hurts stop or dont do it again ...I prefer his advice LOL
Love
Eileen
Hildegard eileen64__UK
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yep I couldnt believe it when my GP handed me a piece of paper saying I am referring you for physio - they'll give you a ring!! And thats what happend, a ten minute talk on the phone me describing the pain what hurts what doesnt hurt (not much!) - then she posted me some printouts showing some exercises and recommended a DVD called (wait for it...!) 'Move it or Lose it'!!!!! that you can do sitting down - when i had just told her sitting hurts as much as standing...
Personallly these days I could happily give anyone who tells me to 'be positive' a smart kick in the shin. Nobody wants to be downhearted - but unless you are in constant pain, you cant possiblly understand.
Ah well time to 'try' and sleep i guess (these days i get up and out of bed at about 5am just to get some rest! nights are appalling.)
Think we have taken ovver poor liza6's discussion here! - but please private message me anytime you fancy a chat Eileen. I think you do it by clicking on the little grey envelope underneath the name on the left.
All the best x
eileen64__UK liza6
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I'm sorry...without realising it Christine and i have hi-jacked your thread.
You start again if you want to.....we have gone off that thread....unless you need an answer
Love
Eileen