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My hemifacial spams are gone without surgery!

Posted , 33 users are following.

daniel76862
daniel76862

I'm a 51 year old guy.  (Irish/Italian/French/English) descent.

I've had hemi facial spasms since age 40.

At first it was a slight twitch on my eye.  Then, the whole eye was closing with my left side of my mouth and cheek muscles moving.

(If you are here on these forums... you know the deal...)

Since I was 40, I've been getting botox shots to control the spasms.

The twitching was almost non-existant.  I could tell it was still happening because I could hear in my left ear a sort of sheesh, sheesh, sheesh noise.  (sounded like a quick static-like ocean sound)

Then... maybe November or so I noticed the noise wasn't happening.

I'd learned to block it out, so I had to pay attention.

It's now February and my last botox was in October I think. 

I was supposed to get another shot in January but I told the doc to postpone it.

My smile is back.  My eyebrow doesn't twitch.  My eye , face and mouth arent twitching.   What gives?  I thought only surgury could cure this.

So you are probably wondering... what did I do recently that may have helped it?  Now, I'm not saying this did it, but in the last two years I've done some things differently.

For the past year and a half Ive' been:

1) I started excercising.  My cholesterol was going up, so I started the treadmill every other day for 1/2 hour.

2) I hear Krill oil lowers cholesterol so I've been taking 1000mg every morning.  Never miss a dose.  It thins blood.

3) My blood pressure was going up a little so I started taking L-Citrulline which open blood vessels.  (about 2.4grams in the morning and again at night)  L-Citrulline gets converted into nitrous oxide in the body. Body builders use it to expand blood vessels before working out or running a marathon.  So maybe that was the thing.... not sure.....

I read nitrous oxide levels decease as we get older.  Maybe that's why hemi-facial spams affects more people over 40?  When women enter menopause, the nitrous oxide level drop.

So, again, I'm not a doctor.... I can only tell you what I've done differently.  Maybe there's no correlation? Dunno.

I'm soooooo glad to see me in the mirror again.

If posting this actually helps someone, that would be great.

IMPORTANT!  I did research those suppliments before I took them and they will interact with some heart medications or erectile drugs...

MAKE SURE YOU LOOK INTO ANY DRUG INTERACTIONS BEFORE TRYING ANYTHING PLEASE.

Good luck!

Dan.

6 likes, 69 replies

69 Replies

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  • lynda17379
    lynda17379 daniel76862

    Posted

    Hi Dan. Could you tell me what brand of Krill Oil and L-Citrulline you use as they are not all genuine

    Thanks

    Lynda

  • verdun84
    verdun84 daniel76862

    Posted

    Daniel you sound like me My started at the age of 45 Im 52 taking botox every 4 month is nice to hear stories like yours Daniel can you please tell me the brand of the oil and the L-Citrulline you taking thank you.
    • daniel76862
      daniel76862 verdun84

      Posted

      Best Naturals Krill 1000 60 count

      Muscle Feast

      L-Citrulline 200 Grams (7 Ounces)

      Also treadmill 1/2 hr 3.5mph 3 times a week.

  • lynda17379
    lynda17379 daniel76862

    Posted

    Thank you Dan. Looks like muscle feast is a powder and is used by people doing workouts. I will definitely give it a try

  • madulla10037
    madulla10037 daniel76862

    Posted

    My cholesterol is normal, and my blood pressure is low,(I do take medication for Hypertension)

    I am so glad you are okay with watching your health.

    Not sure if my twitching started when I changed my BP medicine. BAsed on your experience it is worth it for me to check into it.

  • neelia_28411
    neelia_28411 daniel76862

    Posted

    Thank you for your post Dan 

    I just started taking this L-citrulline

    Last night and again today. 

    I also will be taking a highly digestible magnesium product too. 

    Magnesium helps with spasms but it always made me sick supposedly the one I just ordered won’t.

    I have to tell you as a 45 yr old woman I’ve had these spasms since I was 38.

    And I’ve been getting Botox shots which are another nightmare & just make the spasm into a new kind of freaky looking & feeling problem—

    I only took two doses of this supplement & I already feel a difference! 

    I will continue to take it & keep everyone updated 

    Thank you so much for your informative post & I hope it helps me like it helped you wink 

  • bernadette18849
    bernadette18849 daniel76862

    Posted

    Hi Daniel where can I get exactly what you took in London please let me know the strength of the both items you took thanks
  • Needhfsrelief
    Needhfsrelief daniel76862

    Posted

    Thanks daniel76862 for sharing your story. I was diagnosed over 10 years ago and have tried Rx but they keep me nauseated. I then tried Botox that worked well with one doctor but he retired. The new doctor I started seeing followed the same botox treatment plan but then I started noticing facial paralysis after the injections he gave. It could've been a little higher dosage but it was supposed to be following the same treatment plan. It was also now expensive after my insurance. So I stopped getting the botox now for about a year. I thought I'd just deal with it. However your story is compelling. I'm going to try the Krill & L-Citrulline and see how that works for me. I need my peripheral vision back. It's debilitating.

    • john14747
      john14747 Needhfsrelief

      Posted

      I have had hfs for over Ten years.  It has gotten progressively worse.  Will not go RX.    How long Have you been treated with Botox? Did you inject both eye areas to maintain symmetry?  I was not aware that hfs can effect peripheral vision.  I get short closure but does not interfere  with my vision so far. Have you tried CBD?   

      May start Botox soon.   I am afraid of facial paralysis.   Did they inject your cheek area?

    • Needhfsrelief
      Needhfsrelief john14747

      Posted

      Hi john14747, I've been off and on with treatment for about 7 years. I've only had botox on the left side (not the right to keep symmetry). My face didn't droop that much. I didn't have the right eye area/side at all. When my spasms are active, my left eye closes for about 30 seconds which is a long time when you're walking to not notice if someone is walking past. Sometimes I won't see them until they've already past. It also causes me to bump into people at that particular moment. Yes, they injected the cheek area along with the eye area and mouth area. When the check area is injected, it won't allow that side to smile. It'll look as if you're sad only on that side.

    • john14747
      john14747 Needhfsrelief

      Posted

      Hello,  CBD is a plant extract.   Used to address pain and anxiety. It has received much attention for its  ability to provide relief.  I find anxiety and stress will bring on my hfs symptoms more readily. It is not to be confused with THC.  You will find CBD on the Internet.  I use capsule form.  Once daily 25 mg.   I find it helps to some measure.   Nothing will cure this aside from surgery but I am unwilling to go that route.   
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