My letter from pain clinic to my g.p
Posted , 6 users are following.
The following is my letter from the pain clinic to my G.P
Please can I have all your thoughts....
Dear Dr foster
Thanks for askng us to see Marc. He comes complaining of widespread pain for the past year or so. He said he began attending yourselves about the pain around four or five months ago. He describes pain in the hips, knees, thighs, and ankles, the neck to the shoulders and from the elbows down to the wrists, low back and buttock bilaterally. He described the pain as "tight" and "tense". He says he is currently in a situation where he cant cope with the pain.
He fatigues easily, even after low exercise rate and has a poor sleep parttern and says he wakes unrefreshed.
He has quite a limited lifestyle. He lives with his mum. He gets up between 0630 and 0900 and then tidied the house if he has the energy and his pain allows. He then goes to get his daily prescription and spends the rest of the day "doing nothing" which usually involves watching television or surfing on the laptop. He goes out very little.
He says he has tried various forms of excercise including swimming in the last couple of weeks but he finds that when he exercises he is much worse for several days afterwards.
I note that you have done bloods and inflammatory markers which have come back reassuringly normal.
He has a previous history of mental health problems and I understand he has a diagnosis of borderline personality disorder for which he saw Dr Hayward in the past but is now discharged from his service.he is on the waiting list for Dialectical behavioural therapy which I understand to be a varient of CBT.
In the past there have concerns around codeine misuse which I understand had been in relation to buying over the counter codeine. He days he has not used any other illicit medication in particular and has never bought street drugs.
In the past he has held down a job initially as a health care care assistant in the stroke unit here, then as an office worker with allied health care organising care rotas. I understand he had to leave paid work because of mental health issues because of mental health issues.
I agree the diagnoses here is Fybromyalgia. Betty Little and I saw him together and spent a considerable amount of time going through the evidence base and also our experience of treating fybromyalgia. He is already on correct therapy with pregabalin, naproxen and paracetemol. It is doubtful that his codeine and nefopam are significantly helping his fybromyalgia. He is also on propranolol for anxiety and omeprazole for mild GORD.
As you know the mainstay treatment in fibromyalgia are anti-neuropathics, which he is on, and then psychological apprroaches such as CBT or other behavioural therapy and graded exercise. We discussed other drugs including tramadol, MST and oxycontin. Duloxetine and amitryptyline. I explained that the evidence does not favour opioids in fybromyalgia and our own clinical experience is very similar.
Marc has been on the fybromyalgia forums and brought various suggestions to the table including accupuncture, which we have found to be 50/50 successful in fibromyalgia and we had a somewhat difficult discussion around the fact that there is no cure for fybromyalgia which he found rather bleak and we were unable to offer any cure or significant medicines change.
He id already a member of live active but doesn't seem to make much use of it, and he is on the waiting list for behavioural therapy which I understand to be aimed at his borderline pErsonality disorder, but which is bound to have some general amelierating effect on quality of life and ability on quality of life and ability to cope with pain if successful.
I am afraid the pain service has anything else to offer this gentleman. However he did ask for a second opinion. I am happy to arrange that and he was content to see one of my colleagues here in Perth.
Kind regards.
J bannister.
I feel his Dr has neglected his duty of care towards me and eould really appreciate feedback. Thanks
1 like, 25 replies
tiswas24537 marc14933
Posted
any painkiller will eventully stop working .and will have to be changed and or up dosed . the higher you start the less you have for manouver
to higher does of some pain meds can stop you breathing ,you only have to look at what happened to micheal jackson thats what killed him over dose of pain meds .
marc14933 tiswas24537
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Regardlesss though Bannister is getting reported to the GMC.
tiswas24537 marc14933
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and cope with it in ways that suit me . iv just had a 4 week pain flare where the pain has been 10+ iv made it out of bed to my chair and slept most of the day simply because the pain was so over whelming .and yes in those 4 weeks i could have easly have checked out.
then i woke up one morning and the pain was about 3 i sat there poking myself hard with my finger going it doesent hurt hardly at all . iknow it will be back and next time it might be worse . but i;l deal with it then
.in the mean time iv got the I B S the anxety, palpatations ,sweats,dizziness depression,
nausea, and a knee that keeps giving out .to deal with .
theres no right or wrong way just your way . the way that suits you .if the doctor wont help you .then you have to find away .
do you get bennifit . i do well till june . god knows what will happen then
i use my bennifit for my accupunture iv never been offered it for free either the last 4 weeks iv had to have 2 sessions aweek il be able to drop to one again soon . we are all in the same boat .
marc14933 tiswas24537
Posted
I come on here for support but am offered no light at the end of this very very dark tunnel. All doom and gloom. No hope.
christine26761 marc14933
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Macvee christine26761
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christine26761 Macvee
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bluesman marc14933
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christine26761 marc14933
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bluesman christine26761
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shelagh6 marc14933
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Take care
Shelagh
marc14933 shelagh6
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Also you may have worked for the pain clinic but you know nothing of my personal situation and severity of fibro on me. Different meds work differently on different people so you cant possibly say that their is little they can do for me. How do you know things wont work for me if they haven't been tried yet.
Also I asked my Dr about rheumatologist and he says there are none in my area.
tiswas24537 shelagh6
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christine26761 shelagh6
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tiswas24537 christine26761
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.and dosent work that well for controling pain .