My letter from pain clinic to my g.p

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The following is my letter from the pain clinic to my G.P

Please can I have all your thoughts....

Dear Dr foster

Thanks for askng us to see Marc. He comes complaining of widespread pain for the past year or so. He said he began attending yourselves about the pain around four or five months ago. He describes pain in the hips, knees, thighs, and ankles, the neck to the shoulders and from the elbows down to the wrists, low back and buttock bilaterally. He described the pain as "tight" and "tense". He says he is currently in a situation where he cant cope with the pain.

He fatigues easily, even after low exercise rate and has a poor sleep parttern and says he wakes unrefreshed.

He has quite a limited lifestyle. He lives with his mum. He gets up between 0630 and 0900 and then tidied the house if he has the energy and his pain allows. He then goes to get his daily prescription and spends the rest of the day "doing nothing" which usually involves watching television or surfing on the laptop. He goes out very little.

He says he has tried various forms of excercise including swimming in the last couple of weeks but he finds that when he exercises he is much worse for several days afterwards.

I note that you have done bloods and inflammatory markers which have come back reassuringly normal.

He has a previous history of mental health problems and I understand he has a diagnosis of borderline personality disorder for which he saw Dr Hayward in the past but is now discharged from his service.he is on the waiting list for Dialectical behavioural therapy which I understand to be a varient of CBT.

In the past there have concerns around codeine misuse which I understand had been in relation to buying over the counter codeine. He days he has not used any other illicit medication in particular and has never bought street drugs.

In the past he has held down a job initially as a health care care assistant in the stroke unit here, then as an office worker with allied health care organising care rotas. I understand he had to leave paid work because of mental health issues because of mental health issues.

I agree the diagnoses here is Fybromyalgia. Betty Little and I saw him together and spent a considerable amount of time going through the evidence base and also our experience of treating fybromyalgia. He is already on correct therapy with pregabalin, naproxen and paracetemol. It is doubtful that his codeine and nefopam are significantly helping his fybromyalgia. He is also on propranolol for anxiety and omeprazole for mild GORD.

As you know the mainstay treatment in fibromyalgia are anti-neuropathics, which he is on, and then psychological apprroaches such as CBT or other behavioural therapy and graded exercise. We discussed other drugs including tramadol, MST and oxycontin. Duloxetine and amitryptyline. I explained that the evidence does not favour opioids in fybromyalgia and our own clinical experience is very similar.

Marc has been on the fybromyalgia forums and brought various suggestions to the table including accupuncture, which we have found to be 50/50 successful in fibromyalgia and we had a somewhat difficult discussion around the fact that there is no cure for fybromyalgia which he found rather bleak and we were unable to offer any cure or significant medicines change.

He id already a member of live active but doesn't seem to make much use of it, and he is on the waiting list for behavioural therapy which I understand to be aimed at his borderline pErsonality disorder, but which is bound to have some general amelierating effect on quality of life and ability on quality of life and ability to cope with pain if successful.

I am afraid the pain service has anything else to offer this gentleman. However he did ask for a second opinion. I am happy to arrange that and he was content to see one of my colleagues here in Perth.

Kind regards.

J bannister.

I feel his Dr has neglected his duty of care towards me and eould really appreciate feedback. Thanks

1 like, 25 replies

25 Replies

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  • Posted

    Sorry Marc, I can speak for the Pain Clinic, they can't treat you for Fibromyalgia pain, it sounds like they suggested amitryptiline which is the usual treatment. You are taking Pregabalin, that's good but normal opiates will not ease your pain. If there truly isn't a Rheumatoligist in your area get referred to one outside your area, it's about patient choice. Dr bannister is going to refer you to another pain specialist, go along and see if they have something new but don't get your hopes too high. I've noticed you appear to want everyone to agree with you but that won't happen, people are trying to be helpful, let them. If you just want people to agree say so in your post then we can either do so or not reply.
    • Posted

      How do you know that opioides wont work for ME? are you in my body and feel what I feel? No so don't you dare try to tell me what is best for me it I my body and I know what helps. The codeine helps a little but not enough and not as much a tramadol would help. I've been having this pain for a year and on occasions when my friend has given me some tramadol has been a live saver so don't talk complete rubbish. What even was your Jo in the pain clinic? Receptionist? And have you got fibro yourself? Doesn't sound like it. Also no you are wrong they did not offer me amatryptiline so don't make assumptions
    • Posted

      Marc...you really do need to at least have some empathy for people on here, everyone is suffering..that's why we are on here..to support and learn from each others experience...being in constant pain is one thing but not being able to be heard and believed and helped by the medical profession is totally other thing..something we have ALL been through, we all really feel for you..and know how you must feel..and really hope you find some good outcomes..we can only share with you from our own experiences..hoping that it will give you and others some encouragement..and tops maybe...be blessed Marc...we are for you not against you..try to be for us.,:-) xxxx
  • Posted

    Hi Marc, we are all in pain hun, but that is no excuse for being rude to people who are trying to help. Most people on this forum have suffered for a lot longer than you have and have a wealth of experience of what may help. Unfortunately due to the nature of the condition it is difficult to diagnose and treat. I hope that you find something that works for you.

     

  • Posted

    Ok Marc, you know best, three facts 1/ I've had Fibro for over twenty years plus other very painful problems, 2/ no I wasn't receptionist and 3/ painkillers only help certain types of pain. The letter from the consultant mentions Amytriptoline, that's all I said. Personally I take Amytriptoline, pregabalin, Dyhidrocodeine and Paracetamol plus I wear Morphine patches, the Dyhidrocodeine and Morphine are for pain not related to Fibromyalgia, the Amytriptoline and Pregabalin are for that. At present there is no cure, you can argue with that all you like but it won't change anything. You need to see a Rheumatoligist, they are everywhere, if there isn't one close to you get referred to one elsewhere. Dr Bannister says you are in Perth, there are Rheumatoligsts in Perth. Go along for your second opinion you may get lucky but I doubt it, hopefully I'm wrong in which case we can all get some relief. You have to do what we all do and learn to cope, find out what works for you whether it's exercise, yoga or counselling. Despite everything I wish you well Marc.
    • Posted

      hi shelagh iv suggested some things that has helped me to marc 

      but he just dimisses them ,iv told him to, like you  have that there is no magic cure .or pill . 

      iv had it for 10yrs and like you found ways of coping i dont take any meds simply because i have Aspergers syndrome as well and this makes me very sensistive to things including meds .

      so i spent a fortune trying alsorts of natrual stuff untill i found what helps me . but some people just want a quick fix and theres no helping them 

      iv tried to tell marc that the more stressed and angry you get the worse you symptoms get . .there is no quick instant answer . 

      so you just have to find out for your self what works . i only wish that there was a magic wand .razz so i could smile more days than cry but for now the only hope i have is a self help programme iv been trying out . its tough and to be honest iv lasped a bit .but il get back to it .

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