My life as I used to know it

Please don't lose hope Tricia. Your irrational and scary thoughts are down to the disorder, these will go when your labs become more normal. I cannot tell you how crazy I was each time I went hyper. You will live like you used to. It can take a little time to get your labs normal, but they will get better. Keep chatting on here to people who can empathise with your situation.

Sorry you are feeling unwell. Yes, I have felt like that and have also been surprised when my levels were not off much. It is frustrating but I found empowered by knowledge that's why I think I've read almost every book out there regarding Graves. It's also amazing how many people are dealing with this autoimmune disease and continue to live full lives. Hang in there.

Thank you everyone! I have had a few good months and then this time I thought for sure my labs would be off but they were all in normal range. I still fluctuate but it is within normal. This has been for two months. I still have a lot of hope because I remember how I felt two weeks ago and keep thinking I will get back there. It's just hard when your labs come back normal and you feel like this. I can't seem to figure out my thoughts. If they are real, fake or just my brain tricking me! Luckily I have a wonderful support system, a wonderful church and I talk a lot. I feel I retell the same story weekly but I just need to talk to people.

It is great to hear that others have had the same symptoms as it makes me think I'm not going as crazy as I thought. I am thankful for this group! It really helps talking to people who know what you are going through!

Oh yeah. I felt the same way. But one day last week I decided I can't be sad, depressed. I can't let this disease ruin my life. I felt normal for like 2 days. Today I was crying again. I think changing your diet, exercise, and praying may help a lot. Is the irrational decisions, thinning hair and one eye larger than the other that are also hurting me. I heard essential oils help. Lavender, peppermint, eucalyptus etc. And I heard chamomile tea helps you sleep. I hope we find the answer.

Make sure you  have a good endo. Doc then examine you age and maybe if you're perimenopausal start taking evening primrose oil tabs as a great hormonal balance for mood swings recommend 1350mg twice a day keep up with vitamin D and calcium follow a good diet rich in protein and veggies, exercise like walking and yoga 

hang in there xoxoxxox

Hi everyone

I can identify with each and everyone of you. ATM I am feeling pretty manky.

Talking to people going through the same is good therapy because IMO it makes one feel 'normal' again. I have been to A and  today due to abdominal pain and diarrhoea. I would not have needed to have gone if the GP had deigned to speak to me on the phone and offerd some modecum of support and empathy even reassurance!.

I am feeling more and more cut off. I understand that a feeling of social isolation is just one of the multiple signs and symptoms of this extremely viscious disorder.

It seems that not even doctors especially endocrinologists can get to grips with this disorder be it hypo or hyper.So if these drs are having a problem dealing with this as a condition how can they help us? All in all a thyroid condition is a very poorly understood condition.  

I had a huge goiter diagnosed with Graves Disease at age 18, I'm 36 yrs old now. I've lived with depression and severe anxiety as long as I can remember. I've always been emotional and not able to hold jobs or function normally. My levels are never normal range. I take levothyroxine which obviously doesn't work. I just get by and sometimes I feel better than other times. It's very confusing but don't give up. I'm currently on a mission to fix myself one way or the other. Stay positive if you can and get with a "good endo doctor" if there is one. I have to find one too. Im in the US.

Diagnosed with Graves in March of 2016  I was totally sick for what felt like 3 months.  While I made it to work daily, every other moment was on the couch.  I had zero energy, looked completely pale, & felt so incredibly sick.  My doc did blood work and immediately sent me to an endo where I had a throat scan and a Radioactive Iodine Uptake test.  Graves disease.  I decided on Methimazole (20MG) to start.  Within 90 days I cut back to 10MG, now working on cutting back to 5MG.  I feel Great most of the time!  I take lots of vitamins - D, B12, Calcium, C, Probiotics.  I try to eat a gluten free diet and walking is my new exercise.  I'm doing almost everything I did before and most days forget I have Graves aside from taking a pill.  I haven't gained much weight but every time I feel I might be going Hypo, I reach out to my endo to adjust my medication level.  Hoping to get to 5MG every other day.  It gets better!!  Hang in there!!  My biggest challenge is managing stress levels and heat.  Heat takes me down!