My story and The adult diagnosis system, has anybody else found this a difficult process?

Posted , 12 users are following.

When I was a young lad I was diagnosed with dyspraxia, I had many problems throughout school, mainly struggling with the work.

School was a difficult time for me, the teachers use to moan to my mum that I didn't listen, I didn't try and I was just a "naughty boy" the truth is that I just completely didn't understand anything the teachers were trying to tell me.. I tried and tried but it didn't work.

I ended up getting singled out on a regular basis from answer questions, to going up to the front of the class to read. This all became very overwhelming, especially reading in front of the class sent my anxieties through the roof. My escape was to misbehave as I knew I'd be sent out and I could avoid all attention on me.

I always found it hard to make friends, I was always picked on and bullied over the way I spoke. After many lessons of perfecting my escape method the students began to laugh, they began to acknowledge me for popularity reasons rather than the guy who gets picked on. This stuck for years until they grew up and left me behind. But when my behaviour it started it was my method of feeling normal and like I fitted in.

I ended up disliked again and beaten up a few times, I sworn to myself that I'd never get bullied again so I started boxing to which I quickly became obsessed with. I became obsessed due the the sculpting of my body, girls started noticing me and all the boys wanted to be my friend. This obsession lasted for 8 and a half years training 6 days a week only a handful of times I didn't attend training.

No friendships I've ever had have ever lasted long though, I often got play wrong. I was always boisterous and a lot of my play evolved play fighting. I didn't understand the social rule that your not actually meant to hurt people during that process. It wasn't until I was 19 when a friend explained that I was really hurting him to which I was mortified, I thought everyone liked to play like that. I rarely recognise my behaviours unless they are explained to me in black and white.

I realise I've gone on a bit and there's a lot more to my story and I need to keep to my original aim for this post but to give you an idea about my day to day struggles, I suffer from anxieties, attachment issues, lack of social imagination, I am very tackles and I always miss out on conversational cues.

I worked with autism and something clicked in my head, how can I have dyspraxia, all the things I was meant to struggle with i excelled in, I was a fantastic sportsman I did a lot I wasn't suppose to do.

I started to research and started to realise that I ticked most of the boxes for aspergers. I decided to take the barron and choen test to which I scored 32.

I feel I was failed by my doctors surgery, when I saw the doctor I was prepared with notes(as expressing myself verbally and effectively can be very difficult)

The doctor read the notes and commented "don't you think there's a few to many symptoms there? And then interrogated me about it. Luckily I had my partner there who helped me explain and kept control of the situation for me.

I was referred to a secol who the passed me on to a group called dash. I met with a lady who promised to help me but never emailed me like discussed. I then went back to the doctors and the whole process started again. It took me 4 months to do this circle and due to the stress of not knowing I ended up off work for months due to anxieties over the situation.

I personally feel for somebody who has aspergers as an adult the who process, the waiting about, all the phone calls you are required to make, in my case taking lead of the situation. I personally can't drive things as I become overwhelmed yet there was not enough awareness on the gps and support workers part.

I have now given up in a diagnosis as the who process is to stressful for me. The build up of getting somewhere to find out you've gone round in a circle and not actually got anywhere. I am left with so many questions yet I'm fearful to have that situation and process in my life again.

I want a diagnosis for my piece of minds but is there an alternative method rather than going through what I found to be a complete failure of a system to cater for potential aspies.

I don't quite know what I want out of this, it's 6.30am I haven't slept due to my mind being preoccupied with whether I have aspergers or not. It's really getting on top of my and I wanted to get a few bits off of my chest, although this is actually very vague on what I struggle with.

If you've read this far and your wondering what the hell you've read, than I want to thank you for taking the time to at least try and make sense of this.

Mike

7 likes, 31 replies

31 Replies

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  • Posted

    I have just been diagnosed with Aspergers smile
    • Posted

      Congratulations on your diagnosis Mike! I bet it's a big weight lifted of your shoulders as today I got diagnosed with high functioning autism, it was a massive relief but to tell people I actually do have it to people that thought I was telling them a load of crap still feels like they don't believe me which is a shame. I think the diagnosis hasn't quite sunk in yet as I have waited so long but it's a big step forward and I'm made up! Again congratulations!

      Alice x

    • Posted

      Hi Alice the diagnosis is a long time coming my son was 19 in february and diagnosed last year with aspergers after 8 years of pediactric theraphy.

      I thought once my son had the diagnosis things would be easier but the help in adult services is not great and both myself and my son struggle with his condition but i am always looking for groups and help for my son.Getting the diagnosis is a weight of your shoulders and half your battle best wishes to you guys chin up xxx

    • Posted

      My diagnosis was all fast to be honest, in the past I was being treated for different things and I went to go back into the mental health looking for answers as what they was giving me didn't seem to help and I couldn't take medication as I was always having reactions this one man was amazing and knew straight away so he sent me for the bigger test and I had my appointment through all in all it was about 2/3 months and I had been diagnosed. It's been pretty difficult people are asking where do you go from here and to be honest I don't know and then they look at me as if I'm stupid, the man said to me in the appointment if I was a child there would be a lot of help but because your an adult there isn't much. I knew that but it's a shame from going from a person that thought I had post traumatic stress disorder to being told I have high functioning autism it's hard I don't know where to start looking ect, also it's got to be hard on my mother as she helps me a lot. There should be more out there.

      Best wishes to you and your son I know it can be stressful

      Alice x

    • Posted

      My son was being treated for severe anxiety severe depression eating disorder all that can be part of aspergers but not 1 therapist was prepared to say aspergers untill he was transitioned to adult services. Hes been diagnosed for a year and i keep getting told that theraphy is 6 months behind due to backlog? were talking human beings who are very intelligent and sensitive not talking about a work. load Anyway i wont stop looking for things to improve my son hes 19 and has his life ahead good luck to you best wishes

              Catherine xx

    • Posted

      Hi I went to my doctors to asked to be reassessed by the mental health system so they sent me through to primary mental health team in Cheshire west and he sent me for the test in Upton lea resource centre in Chester hospital x
    • Posted

      I think I started that process,  I went to my GP, was assessed by a psychiatric person who I asked if she had experience of diagnosing adults with ASD, she said she did.  She asked me questions about my life etc and then said that she couldnt decide if I had ASD or my issues were due to childhood experiences.  I think she or my GP asked me 'why do you want a diagnosis of ASD'?  As though it was something I was seeking for no good reason.  I have not persued it further because I don't think it would help my job if I changed jobs as you have to declare disability on application.  I just struggle through life.  People sometimes think I am rude at work in my attitude.  I have to keep what I am saying in check all the time.  I struggle with depression too.  

      I have an adult son with severe autism by the way.

      Thank you for that information, I will save it incase I want to persue it at a later stage.

      V x

    • Posted

      It is hard to get the diagnosis I got asked all them questions about child hood really it was questions about my whole life but apparently autism can run in families I think my nephew could have it his pediatrician has sent him to a behavioural specialist just to see what's going on if it's nothing or something, all I would say is don't give up its hard but it's worth it just for your own piece of mind. Good luck!

      If you ever need to talk or anything just get back in touch smile x

    • Posted

      Hi Mike,

      Sorry you didn't see my comment, I a new to this and probably did it wrong.... 

      I am sure it is a relief to be diagnosed now and hope you are getting any support you need.

      V x

    • Posted

      Alice.....

      did id you receive the results on your new born. This runs in our family to. The odd thing is it seem to always be the second born from my father's side and my mom too is is the aspie spectrum. 

      It it doesn't always mean a child will inherit the gene. It's a very tricky evaluation. I hope you chile is OK.

      HOPE xxxxx

    • Posted

      Hi flowergirl,

      My son has a severely autistic son. As he gets older he becomes stronger and violent not understanding what he does. He is taking anxiety meds which have helped. 

      I know how you must struggle every day as people are not patient or even stop to think that a lot of people have illness to live with never crossing their minds. Mostly self-centered. It's OK you need to be who you are and not let the others intimidate you. Have you ever tried to  explained to your co- workers that you are Aspie perhaps they would be less judgmental and more accepting. 

      HOPE xxxx

  • Posted

    Hi Mike,

    What an anxiety driven, frustrating story. No wonder you feel so upset. It is only natural after all the hoops you have jumped thru with little follow thru.

    iI would not stop the calling and nagging until you get a answer. It's vital that you find out a correct diagnosis so you can be treated appropriately. 

    So be stubborn and conscience and don't let them intimidate you another second. You health is important and you deserve an answer!lol.

    HOPE xxxxx

    • Posted

      Hey you,

      Thanks for your upbeat comment,. I have got the answers I want! I absolutely love your energy! Thanks for commenting

      Mike xxx

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