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I will try to keep this as simple as possible.
Basically I started getting unwell around 8 months ago & am getting worse & worse to the poi t where I'm losing the ability to even fight for help.
My symptoms are:
Weight loss (20lbs) despite eating more than normal & having high calorie shakes on top. (Normally I find it impossible to lose weight even if I dont eat).
Itching skin with small red spots
Pain in ribs, shoulders, hips, all up my spine, and now my neck & head.
Numbness in neck & head & sometimes muffled hearing
Sore nose that bleeds a little
Painful nodes in neck
Lots of flem & pressure in throat that makes me cough
Very sore & itchy anus
Those are the main ones.
Since it started on my upper spine & neck I've been getting horrendous neck & head pain where I can hardly move my neck. When this happens my hearing goes muffled & I feel very slow and numb mentally. Often feels like I'm slipping unconscious. It got so bad I was admitted to hospital last month but neurology found nothing.
I've had many blood tests, mostly normal apart from slightly high white cells, Ferritin Anaemia & inflammation. The Nuclear antibody was positive but my GP did nothing.
MRI brain & neck was normal
Ultrasound of stomach normal apart from fatty tissue on kidney.
Upper endoscopy - normal.
Lumbar Puncture - normal.
Chest X Ray - normal
ENT saw nothing up my nose or in my throat just a bit red.
I'm getting desperate for a diagnosis & treatment as seem to get worse weekly. I'm not sure if the pain is in my bone or tissue but its a deep itchy burning pain.
If anyone can help please do. I can't take much more. I'm too ill to do anything much, if I move my head around too much the numbness & pain gets bad. I keep trying mind over matter & go out but end up collapsing.
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