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Mystery Illness for 8 months really need help

Posted , 8 users are following.

mandy20434
mandy20434

Hi,

I will try to keep this as simple as possible.

Basically I started getting unwell around 8 months ago & am getting worse & worse to the poi t where I'm losing the ability to even fight for help.

My symptoms are:

Weight loss (20lbs) despite eating more than normal & having high calorie shakes on top. (Normally I find it impossible to lose weight even if I dont eat).

Itching skin with small red spots

Pain in ribs, shoulders, hips, all up my spine, and now my neck & head.

Numbness in neck & head & sometimes muffled hearing

Sore nose that bleeds a little

Dizziness

Feeling hot

Painful nodes in neck

Bloating

Nausea

Lots of flem & pressure in throat that makes me cough

Very sore & itchy anus

Those are the main ones.

Since it started on my upper spine & neck I've been getting horrendous neck & head pain where I can hardly move my neck. When this happens my hearing goes muffled & I feel very slow and numb mentally. Often feels like I'm slipping unconscious. It got so bad I was admitted to hospital last month but neurology found nothing.

I've had many blood tests, mostly normal apart from slightly high white cells, Ferritin Anaemia & inflammation. The Nuclear antibody was positive but my GP did nothing.

MRI brain & neck was normal

Ultrasound of stomach normal apart from fatty tissue on kidney.

Upper endoscopy - normal.

Lumbar Puncture - normal.

Chest X Ray - normal

ENT saw nothing up my nose or in my throat just a bit red.

I'm getting desperate for a diagnosis & treatment as seem to get worse weekly. I'm not sure if the pain is in my bone or tissue but its a deep itchy burning pain.

If anyone can help please do. I can't take much more. I'm too ill to do anything much, if I move my head around too much the numbness & pain gets bad. I keep trying mind over matter & go out but end up collapsing.

Thanks,

1 like, 16 replies

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  • wormwoodbush
    wormwoodbush mandy20434

    Posted

    You could have a combination of things wrong. It does sound like some of your symptoms (itchy anus and unexplained weight loss despite increased caloric intake) are from intestinal worms and since you have cats, it's quite likely, even if you worm your animals. Go to the chemist and buy worming tablets and take them. It won't hurt you to take them if you don't have worms, but will kill them if you do. Don't bother getting tested for worms, it's a waste of time, just take the worming tablets, as I said they won't hurt you either way. That will at least definitively rule out one possible problem. Get tested for Lyme disease and get someone to check you ALL OVER for possible ticks or tick bites. If you have low ferritin levels go on a complete iron supplement. If you're vegetarian it's recommended to be on an iron supplement anyway. You can get chelated iron supplements that don't cause as much intestinal distress or constipation. You may have to try different ones to see which one suits. Good luck
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