Neck,back pain and headaches constantly

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Hi i hurt my back at work a year ok from lifting things that were too heavyfor me. I got  repetitive strain injury and the muscles in my neck  became inflamed. i had 12 sessions of Physio on the NHS. My neck felf fine as long as i do no excercise or lifting. as soon as i began doing excercise again i ened up back at square one with the neck pain,dizzyness,headaches earaches. I have had 3 sessions with an ostoepath he said that my back was completedl locked. He cracked my back nexk and hips and although i did feel the relief i am now back to square one again. If i walk more than a few miles or try and do any excercise i get all the horrible symtoms back. i have put on half a stone in 4 months and i cant do any excercise at all so that is adding to my misery. I have no idea what is wrong with my back or what to do about it. I am contemplating doing yoga but i have no idea if that would be good for me or make the symptoms worse. Any advice would be much appreciated thank you x

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  • Posted

    Hi

    Sorry to hear about your back/neck troubles.  With neck troubles,  especially where there are headaches / dizzyness,  I think its important to see your GP and either get a referral for a neck MRI scan,  or a referral to a Physiotherapist ,  who can test neck movements to determine problem.   Osteos don't diagnose conditions,  they just treat whatever is presented, and may not be able to define the problem exactly.  You won't be able to judge the best way forward until you know exactly what's happening with your neck.

    Good luck

    • Posted

      Thanks Gerry I have been to my Gp about my neck he referred me for Physio i had about 12 sessions but that didnt solve the problem at all.
    • Posted

      Hi Anne. 

      Understood.  I've been through that process myself, a few times.  But it wasn't until I had an MRI that the problem was identified exactly,  and that opened the door to a Neuro assessment.  There tends to be a reluctance to process it up the ladder if they think they can maybe deal with it at a simpler level.....but if the PT sessions don't work,  they are obliged to investigate further.  An MRI scan is the logical step,  and probably the only way for developing a clear definition of the problem.  There is a possibility that your neck issues are chronic issues which can't be easily resolved,  but you may be able to manage them ...if you know the 'cause'.  Headaches and dizzyness would seem to indicate possible cervical spondylosis,  but you really need the diagnostic definition before you know how best to deal with it.  It's ok to ask your GP or PT for a referral for MRI scan to help identify the problem first, before considering treatments.

    • Posted

      Hi Gerry

      Thanks for your help. i will go back to the doctor and start from the beginning once again. Its great to get support from people like yourself thanks again x

    • Posted

      Hi Anne

      Happy to assist,  and hope it goes well.  I think it helps to be prepared with the difficult questions before presenting to the professionals.

    • Posted

      Hi Gerry,

      New to this forum. what do u mean u are suffering from c/s for 30 years. What kind of symptoms are you still having? For me, I have been having constant 24/7 neck pain, headache at the base of the head,shoulder blade numb and chest pain(occasional) since June 2017. It only gets better when I am at rest or lying down. Actually, it started in March 2017 when I had head pain, followed by neck pain. Went for an xray (report mentioned spondylotic changes in C3/C4 disc) in end April 2017 and the emergency doctor said the diagnosis was c/s. Went to the see the neurologist in June 2017 and the diagnosis was cervicogenic headache and  musculoskeletal neck ache neckache. 

      Will be going for my MRI in Sept. Hope to hear from you soon. Is my condition serious?

  • Posted

    Hi Anne,

    I also have bad neck issues and had an mri done which showed a disc bulging into the spinal column but no compression of the cord so I was told its normal for my age which was 29 at the time. I did physio with no relief. My neck is still very bad with all the things you mention such as ear problems, dizziness, headaches, eye blurriness on left side as well as intermittent facial numbness and burning and a whole host of other problems. For me osteopath made things worse overall. Also like u exercises even the physio type make my neck seize up.

    You could try yoga, it's actually enjoyable if u can do it but don't push yourself to far, if it hurts stop. you also have acupuncture as a treatment choice as well as cervical facet injections, epidural injections, prolotherapy (if it's a disc problem) and trigger point injection, Botox, massage. Although it's never helped me you can use heat and ice and there is the thing called the actipatch, £19.99 from boots or trial version is £2.99 just google it. I've used it, can't say it helped for certain as weather was good over the time I was using it and that sometimes helps my pain however I've now ordered the full months version. I bought a memory foam contour pillow for £19.99 which helped for a period of time and I had the cervical facet injections which for me didn't help but they help other people.

    I would ask to be seen by a pain specialist and also for an X-ray and Mri scan. There is also lidocaine patches which need to be given by a pain clinic but I've read they are excellent. Will be asking for them at my next appointment as my gp said he couldn't just prescribe them.

    There are treatment options which will probably work for you, I'm still waiting to find my magic thing regarding my neck but a lot of others get relief from things mentioned above. There is also pills such as pregablin, gabapentin etc but personally I don't get on with them, again many do.

    Good luck

    • Posted

      Hi Charlotte

      Thanks you for all the amazing information. i did have acupunture with the NHS Physiotherapist i found it good in the beginning but after about 5 sessions i was given a differnt therapist and the acupunture she did on me was sometimes painful so im not quite convinced if she knew what she was doing at all.Im going to the doctor this week so im going to push for a referral, Thanks so much x

  • Posted

    Hi Anne,

    I've been experiencing shoulder and neck pain since October/November 2013

    I went to an osteopath and my doctor told me manipulation is not good

    I've had 3 sessions of low level laser therapy then a deep tissue massage and I am now pain free (December 2014 was taking up to 4000mg paracetamon a day)

    I'm now in your situation were if i do any neck stretches my pain comes back, I'm seeing a shoulder consultant soon

    I would seriously suggest Low Level Laser Therapy for pain relief, I tried everything else and this therapy was the only one that works

    hope this helps

    John

     

    • Posted

      Hi John,

      Can you tell me a bit more about this therapy? Is this an at home treatment or in a Dr office, also is this the same as ultrasound therapy?

      thanks

    • Posted

      Hi Charlotte,

      I believe Low Level Laser therapy for pain relief started with regard to race horses

      its not ultrasound, its cold laser treatment

      it regenerates the dead cells, dead cells give you pain apparently.

      its not via a doctor or hospital (I'm in the UK)

      Googled  Low Level Laser Therapy for pain relife and you should find a center doing it.

      I was recommended by my father who had neuralgia nerve issues with his arm and it sorted the pain out

      my mother and aunty had frozen shoulders and it sorted that out too.

      my issues started from a dislicated rib, 1 year later my rib stayed in place but I can only discribe it as a large circle of pain (top of back, shoulder and neck) and 8 months of pysio later, I was at my wits end and prepared to try anything

      This treatment has changed my life, I now sleep 8hours without waking up once !!!

      if you need anything else, please ask

      John

    • Posted

      Thanks John I will definitely look into the laser therapy i have never heard of it before. I think the osteopath has made my pain worse not better. It is so frustrating but i will keep trying till i get to the bottom of it.
    • Posted

      Ooh I will definitely look into that, I'm in UK also so hopefully can find someone nearby, I'm pleased it helped you. Much better than all the anticonvulsants they want to give which although help a lot of people I have never got on with. My neck pain goes into my face arms and shoulders as well as my throat which on bad days constantly burns, aches etc plus my ribs and back, my muscles seem to tighten in response to stretching or rubbing them which is odd as most people a massage helps them loosen up.

      Race horses seem to get the newest and most thorough medical treatments!!

      Thanks for the info

    • Posted

      Hi

      I'm not familiar with Low Level Laser Therapy,  but as far as I know,  it is not a 'recommended' treatment.  I would be concerned about any debilitating effect it might have on surrounding tissue/muscle.  Are there any long-term studies of its possible effects on humans ?   There's a world of difference between testing on racehorses and testing on patients.  Promoting a non-accredited invasive treatment which may not be licensed is something which requires scrutiny.  I'd advise caution !

    • Posted

      Hi Gerry,

      I found the below but its not really a LONG term study, i dont know how it works to be able to comment on potential damage however upon searching for someone in my area that does it  for pain i found there seems to be lots and lots of people using it or similar for cosmetic purposes. I dont know how they differ.

      Abstract

      BACKGROUND:

      Neck pain is a common and costly condition for which pharmacological management has limited evidence of efficacy and side-effects. Low-level laser therapy (LLLT) is a relatively uncommon, non-invasive treatment for neck pain, in which non-thermal laser irradiation is applied to sites of pain. We did a systematic review and meta-analysis of randomised controlled trials to assess the efficacy of LLLT in neck pain.

      METHODS:

      We searched computerised databases comparing efficacy of LLLT using any wavelength with placebo or with active control in acute or chronic neck pain. Effect size for the primary outcome, pain intensity, was defined as a pooled estimate of mean difference in change in mm on 100 mm visual analogue scale.

      FINDINGS:

      We identified 16 randomised controlled trials including a total of 820 patients. In acute neck pain, results of two trials showed a relative risk (RR) of 1.69 (95% CI 1.22-2.33) for pain improvement of LLLT versus placebo. Five trials of chronic neck pain reporting categorical data showed an RR for pain improvement of 4.05 (2.74-5.98) of LLLT. Patients in 11 trials reporting changes in visual analogue scale had pain intensity reduced by 19.86 mm (10.04-29.68). Seven trials provided follow-up data for 1-22 weeks after completion of treatment, with short-term pain relief persisting in the medium term with a reduction of 22.07 mm (17.42-26.72). Side-effects from LLLT were mild and not different from those of placebo.

      INTERPRETATION:

      We show that LLLT reduces pain immediately after treatment in acute neck pain and up to 22 weeks after completion of treatment in patients with chronic neck pain.

      FUNDING:

      None.

       

    • Posted

      I went to a centre in Birkenhead (I'm from Liverpool) which has been established for 10 years. he does LLLT for pain and also cosmetics.

      I got to a point were I felt everything was failing, osteopath made my condition worse, physio advised neck stretches, I did this for 8 months untill LLLT made me aware neck stretches hightened the pain, physio advised yoga and swimming, these also made me worse.

      Also, LLLT has stopped my neck clicking/popping/grinding/crunching

      when your in my situation, living with constant pain, getting no sleep, affecting your work life and personal life, you get to a point where you will try anything

      LLLT worked for me

    • Posted

      Im defenitely going to try it, I let them stick injections in my spine which has to be potentialy far more damaging that the laser therapy could be, the sound of a click free neck sounds amazing to me. If my necks clicking you can guaruntee that day im hurting, if i have a good day no clicking happens....they say its just gas in joints etc but i dont agree.
    • Posted

      you may need more than one session

      my first session in Jan 2015 (I travelled from Bristol to Liverpool) I was hoping for 50% relief, 2 days after I was 85% pain free, 4 days later I was 95% pain free, I didn't touch a pain killer for about 6 weeks, this sorted out most of my neck clicks, moving my head backwards and forwards I had no clicks but was still getting a bit if clicks moving from side to side.

      unfortunatley the consultant didn't tell me 2 sessions in a week was required

      I went back up in march had a session Monday and one on Friday

      and within a week I had a deep tissue massage as the tension in my neck has disapeared

      (I suggest you do the 2 session a week LLLT) and I now an pain free and no have to take pain killers

      would be nice to know your thought once you've had this treatment Charlotte, good luck !!!

    • Posted

      Not criticising anyone's choice to undergo any treatment they see as being fit.  I consider myself entitled to try bungee jumping if I think it might help.  However,  just wondering why the Laser treatment,  if it seems as good with outcomes as is suggested (and one testimonial doesn't prove anything unfortunately),  why it hasn't been introduced into general practice.  Surely something offering such claimed improvements would have been flagged up across the whole range of painful conditions.  The cosmetic medical industry doesn't have a good reputation for informing patients of negative outcomes....and, for that matter,  why is this treatment seemingly only available in the cosmetic clinics.  I would contact an accredited  'pain clinic' for their opinion first.  They must be aware of the laser treatment,  and maybe have already decided on suitability, or not.  I think it would be irresponsible to just assume it's ok based on hearsay....no offence.  I understand that recommended therapies aren't up to scratch for neck issues,  but I'm sure the laser method would have been assessed for suitability at some stage.  Laser, by definition, has a burning effect,  no matter how low the intensity,  so it's worth considering long term negative possibilities before plunging in.   And,  by the way,  any treatment not declaring it's own failures,  is a suspect treatment.  THere are always failures to risk consider.
    • Posted

      hi Gerry

       Just found this beloe

      Slowly but surely……………………

      There are many hospitals within the NHS that own Cold Laser machines; sadly many of them are not deployed because of lack of awareness and training. Only when a doctor has witnessed the power of the laser does he/she start to understand it’s potential.

      The laser treatment represents a whole new way of treating patients, and at present the NHS model does not readily accommodate someone receiving a regular and perhaps hour long therapy from a doctor. However, there is progress as a result of the evidence – seeing is believing, and the UKITL is delighted to report the following:

      Following in-depth training with Prof Gordon Farmer, a number of consultants have adopted laser therapy as part of their treatment of patients; the therapy is part of pioneering work at:

      Norfolk and Norwich University Hospital – oncology dept

      Northampton General Hospital  – stroke and cardio unit

      Leicester Royal Infirmary   – oncology and stroke unit

      Addenbrookes Hospital   – oncology and neurology units

      Plymouth Hospitals   - oncology unit

      We look forward to further adoption in oncology units and stroke units around the UK

       

    • Posted

      Hi Gerry,

      Thank you for the warning, i do appreciate it, I will speak with the nhs pain clinic when i go and see what they say about it, as far as what ive seen online they do use this LLLT in private physio, sport recovery clinics, that doesnt mean alot as an osteopath claims to cure most things but made my situation worse however they must see some benefit to people to keep using the tools.

      I think the problem is the normal NHS drs dont do anything particularly helpful (in my experience) 6yrs on and all ive had is various anticonvulsants and facet joint injections which were useless not to mention BAD side effects  from the pills and physio who give up on you if ur not better in 6 weeks. It leaves people in a desperate situation who will try anything, however as many scam things there are out there some things do seem to provide benefit as much as Dr prescribed things. Accupuncture used to be known as a quack thing but now NHS provide the service.

      One thing that makes me seeth is the pain dr i saw was so needle happy that he said he would do the cervial facet injections (comes with side effects including possible paralysis) he basiaclly said if i didnt have them he would not help me at all. I also told him about sphenopalatine ganglion block which is basically numbing a ganliion in your face and it can be done either injection through your face or swabs left in your nostrils for 45 minutes, he again wanted to do the injection and not the pain free method if the neck injections didnt work. At no point did he mention lidocaine patches which have great reviews and barely any side effects from what ive read. I had to read that for myself in an American book and when i questioned GP they are available from the pain clinic.

      I read an old book by Vernon Coleman called how to stop your Dr killing you which was quite an interesting insight into how drs are trained, the guy has a major air of disgruntled'ness but its a good read and confirms the way ive come to think about Dr's (they dont think for themselves, have major god complex's and its run like a business, not a service to help you). The best healthcare proffesionals ive seen are either trainees, or lower level jobs such as nurses, physio's etc.

    • Posted

      Yes,  it's all true and regretable.  The services are not up to scratch for our condition,  and it's little wonder we become skeptics when everyone else can't praise them enough.  It's a by-product of lack of appreciation and knowledge about C/S, unfortunately.  Still and all,  when it comes to fixing a broken leg,  or having a brain op,  or just having dental work,  I know I'll always choose the accredited professionals,  because they are legally accountable for any misdiagnosis or treatment mistakes.  Outside of the NHS supported services,  there is little accountability, and profit tends to be the most common  motivator.  Where treatments are perceived as doing little harm,  even when they are unsuitable,  there are many charatans out there only too eager to cash in.  I'm not saying that's the case with the Laser treatment,  but it should be a consideration before anyone makes what is ultimately a personal choice.  I think 'safety first'  is always a good leveller,  especially when the frustration of the failure of normal treatments kicks in.  It only takes a minute to make a decision,  but it can cause years of regret if it's a bad decision.  The implications shouldn't be overlooked in favour of some desire for the Laser treatment to be the right treatment.

      One thing I don't get about Laser treatment,  and I know little about it,  is this....if it only deals with the pain (the symptom),  and not the cause,  how can it affect future re-ocurrence of symptoms.  And if C/S is known to manifest as re-curring pain 'phases',  how can they tell if the Laser has been effective,  or if the C/S has just settled down.  It's very open to having any results misinterpreted by co-incidence, just like a lot of other treatments for C/S.  But,  it's not my money,  so I guess my skepticism only applies to me.  When it comes to 'placebos',  I'm more inclined towards chocolate !

    • Posted

      Chocolate is good! I think the laser promotes blood flow etc to the area to help heal damaged tissue but I don't know a lot about it to say for certain. I did just speak to a local physio clinic and she did say that it's only 1 tool in treatment, basically giving me the impression that although it is a valuable tool it's no miracle cure and reserved for patients that perhaps can't have accupuncture or who have metal in them, I certainly wasn't left feeling like this will be the answers to any prayers but in all honesty if she gave me that impression I would have thought it was more about my money than my health. She said if they don't think they can help they will say so and the cost of the sessions for overall physio aren't to much so it's worth a try. I will be very cautious of any manipulation which they also offer as I've had that before and it flared stuff up.

      i will post back if they use the laser on me and if it has any effect good, bad or ugly!

    • Posted

      Hi Charlotte

      I'd be happy to read your report back if you go ahead.  I'm actually fairly open to the idea of exploring new treatments,  just never at the expense of a reasoned approach which puts patient issues/interests first.  And if it does help with your symptoms,  I'm sure there are many on here who would also be glad to hear,  so they can make their own decision.  I hope it works,  because that bodes well for everyone.....and would put my skepticism in its proper place.  Don't be afraid to ask their opinion on long term effects,  and analyse their response carefully before committing.  Any evasiveness in their response should be cause for reflection.

      Otherwise,  good luck.  I'll look forward to reading your appraisal.

    • Posted

      Hi John

      Thanks for the info.  I'll do some research,  now my interest has been tweaked.  Somebody has to do the awkward questioning,  not just accepting on face value......I hope you'll appreciate that.  There's no medals for being a thorn in the side,  but if the Laser treatment is as good as suggested,  a little pre-skepticism won't hurt its potential.  I have to admit I'm a bit perplexed why it hasn't been mentioned previously in C/S forums,  but,  I suppose everything has to start somewhere.  Seems a bit like the 'cold' laser treatment has crept in the back door without anyone noticing.  I need to do some research before deciding whether to raise a flag !

    • Posted

      No probs Gerry,

      when I first heard of Laser Therapy I weas a bit skeptic myself

      but I was prepared to try anything as my pain was so bad

      if you google LLLT and NHS there are lots of consultations/reports going on and from what I've concluded I think its only a matter of time before its offered on the NHS

      pity its took word of mouth for this treatment to get around

    • Posted

      Read the article.  Interesting.  It must have had preliminary testing on long tertm outcomes for them to use it in cancer treatments at hosp.  Definitely worth investigating further.  Good luck with your visit.
    • Posted

      Hi John

      'but I was prepared to try anything as my pain was so bad'

      I know the feeling....and it's not just the pain,  it's also the social/work implications that accompany the pain.  C/S can be very 'heady',  the way it affects so much of what is normally taken for granted...and it constantly affects interactions of all sorts.  Difficult to define,  and difficult to explain, leading to dismissive responses.  All these issues really only help to boost the cultural negative overview we must contend with....and that certainly doesn't help with pain toleration in any sense.  The battle is fought on many levels,  so to speak.  

      Personally,  I know I can exaggerate my own subjective perception of pain when I'm aware that I am contending with someone else's denial of my experience....and that's something I think about a lot and try to unravel ,  because it seems like I'm allowing a 'default' attitude to govern my toleration levels.  When the meds don't work,  it's all too easy to adopt a 'try anything' approach.  Understood.   But, to me,  isn't that a bit like allowing the failure of the meds to call the tune ?   I'm not suggesting an alternative 'mindset' remedy,  but I'm inclined towards questioning why my normal rational approach to anything is being dominated by the failing treatments created by others who don't even have the same experiences.

       Just thinking out loud on the philosophical aspects that affect us.  

    • Posted

      I read a paper that explained soldiers with chronic pain suffered far less than mere mortals due to the extensive training they had received from the army as they had a superior brain when it came to controlling thier own pain, perhaps you would be interested in reading Dr sarno's book which is on amazon for a few pounds and is about retraining your mind or also something called the TMS recovery, free info and free audios on wiki again to retrain the brain! 

      I dont think its failure of meds on thier own moreso the failure of NHS and the way Dr's initially deal with pain. If chronic pain is partly a mindset and as people theorize a link between a fear of the pain and the onset of the same pain then Dr's should have CBT available on emergency appointments, when joe blogs goes in to his GP complaining his pain from "insert injury here" has exceeded 2/3 weeks then he should be rushed to CBT intensive course to train in how not to let the pain get worse. Surely as much as this would cost it would save thousands of pounds as chronic pain is probably one of the most costly areas of the NHS. If the NHS did yearly mot's on thier patients to check vitamin levels etc then that again would probably prevent alot of problems, people with low calcium, low vitamin d etc are more prone to bone degeneration, lack of vitamin d has been theorized to be linked to MS, its certainly been linked to fibromyalgia. Vit B12 is linked to nerve issues, iron is linked to heart problems and a whole host of others. Unfortunately these tests are not available until such time you feel sick enough to get to a DR by which point damage could well be permanent.

       

    • Posted

      I'm not so sure about the 'chronic mindset' being responsible for chronic pain,  rather than the condition manifesting the painful symptoms and the mindset evolving naturally from that.  For sure there are some who will exaggerate or even imagine their symptoms just because they have been led to believe that's what will happen.  But they are a small minority,  deluded by the culture they accept,  and that shouldn't reflect in a negative way on conditions which actually do manifest continually, or chronically,  with real pain.  This is the problem.,..both groups exist,  and the culture is a little wanting in separating their respective needs.  One group needs mindset altering,  and the other group needs mainstream medical treatments.

      The trending tendency today in Neuroscience is to attempt the re-education about pain first, perhaps to separate the wheat from the chaff,   and that could be a huge waste of time for anyone with a condition which requires more direct attention.  So, I think that method of approach victimises anyone with a 'real' chronic condition,  and delays the treatments in favour of first sorting out any unwarranted doubts.  I think that is evidenced in the long protracted referral system,  where we might get to see a consultant after several weeks, and perhaps several pre-tests.   It looks like a system that purposely delays because that allows time for minor issues to resolve naturally ,  but penalises 'hidden' chronic conditions where more immediate attention might be required.  The overview seems to be...'If they're still complaining in a months time,  we'll have a closer look'.  And I think that's an overview which is peculiar to our own precious, supposedly best in the world,  NHS.  Over-riding the patient presentation for difficult to define conditions has become a bit of a habit,  in the same way that trying to get a GP appointment has become a test of wills.  Yet another Blairite inheritance !

      RantRantRant...sorry.

    • Posted

      Hi Gerry,

      I didn't mean a chronic mindset causes pain but they say that a pain which starts after an injury or just on its own then becomes chronic when we become so aware of the pain we are fearful of the pain which enhances a negative loop and a never ending cycle. I am not sure I whole heartedly agree with this theory however this is what Drs say, the Dr gave me the paper on the soldiers who combated their pain more effectively because they had a mindset to do it. He said that the nerves feedback to the brain and when u become so aware of your pain or dread it becomes a viscous loop. What im talking about is if that is their final answer on chronic pain with no visible cause then they should put their money where their mouth is and intervene with behavioural therapy on an emergency basis, this could help or surely it could prove to them that their theories are incorrect and they are just passing the buck. I do believe a persons outlook does add to a cycle of pain whether that's positively or negatively however I have spent months before laying in bed at night telling my brain that I'm not in pain in the hope it might take the same view if I repeat it enough and unfortunately it didn't work for me!

      What would be good is if they offered a quicker pain relief system, pain supposedly perpetuated more pain hence chronic so surely if they relieved your pain quickly and efficiently from day 1 not 2 years later when they finally send u to a pain clinic we might all have a better chance. During which period thy could investigate for the cause which I believe in most cases there will be but its just not picked up by current methods of testing.

      I bet any Dr who lived with his wife, daughter, mother etc and saw them in the kind of pain that people are living with daily would treat them very differently, I would assume they would have a plethora of tests, the best meds with the least side effects and any beneficial procedures there were.

    • Posted

      And possibly also,  a cabinet in the bathroom with an emergency supply of morphine  for the rough days !

      I see what you're saying now,  about the mindset loop.  I've actually been debating online on some Pain Science sites,  about the new 'emergent' theory of pain, arguing that it relegates the presented patient narrative of pain as insignificant, compared to the requirement to deal only with the obvious.  The 'emergent' theory, I believe will have consequences in the future for those with 'hidden' chronic ailments...i.e.  having to prove their integrity of narrative before being offered treatments.  Science fiction nightmare,  as I see it.

      Regarding the mindset loop/continuance....yes, that can happen with some patients with a vulnerability to patternising their default behaviour.  The illusion tests (rubber hand / nail in boot / mirrored hand etc) are being cited as evidence that we are all vulnerable to believing that an imagined threat can actually  cause pain.  I don't agree with that.  I think illusions cause 'illusionary' pain which can be easily rationalised away....unlike your efforts to think real pain away.

      I'm coming round to thinking there may be a way to rationalise actual pain,  and by so doing, possibly increasing toleration levels,  because the pain fear factor is reduced...if you know what I'm getting at ?  For instance,  we can see an injured hand, and rationalise its possible healing prospects....therefore we tolerate the pain easily.  We can't see internal injuries,  can't forecast healing prospects...therefore the pain fear factor goes off the chart...it's uncontrollable, and the perception of pain follows obediently. Simply knowing the dynamics of the injury should reassure us and help settle that fear of the unknown factor,  but like you say,  that info isn't always given to us by those who control the investigative technologies.  They keep lapsing back into 'The less they know the better' mentality,  without apparently realising that we're exactly the same as them,  and we can handle the messy details.  Some of us take pride in knowing the details,  especially when we have to do the rationalising ourselves....or be left flounderting in the medicated confusion they usually offer.  I'm sounding like 'Disgruntled with C/S' now  !   Perhaps a little mindset re-education wouldn't hurt too much !

    • Posted

      PS....

      Last few days I've been reading the blog posts of Dr. Michael Negraeff.  He's a respected Canadian Pain Specialist....I came across him on Body in Mind site.  He has a spinal condition himself,  and wheelchair bound.  I feel a real resonance with how he wants to change professional attitudes to chronic issues,  from entrenched dismissive to engaged enquiring.  He's a breath of fresh air.  If interested, just google his name and read some blogs....there's a great vid as well of a recent lecture.  We should get behind people like him if we really want to see improvements in the culture....he gets my support,  and I'm Mr SuperSkeptic.

    • Posted

      Thanks Gerry I'll definitely look that Dr up and read some of his blogs, It's very interesting what u say about being able to see a cut heal for instance where as pain coming from something deep inside and imaging tests not necessarily giving a clear picture what is wrong no doubt causes a problem with the loop situation. if someone told me your pain will end in 2020 I think I could deal with the pain much better, that would purely be down to gaining some control, knowing something rather than being stuck in limbo land. I think some form of control is what patients need to stay strong and positive all the time. When you feel like a bystander in your own health it makes you more vulnerable to negative moments and infuriation with the system!
    • Posted

      Absolutely.  And that's a huge problem with anyone trying to come to terms with C/S.  The same defensive defaults don't apply, as with normal injury/disease,  leaving us vulnerable to the downward spiral,  seemingly with little to grab hold of to steady ourselves.  It's a real problem which sometimes becomes the main issue.  I'd always try and advise anyone with C/S to try and rationalise the 'cause and effect' of referred symptoms,  just to help with gaining some little control over what happens.   For myself,  when I got on that cycle of thinking about the symptoms in that way,  some sense was restored,  after many years of the usual frustrations,  and a more positive overview evolved in its own time..  It's difficult to say that to someone who's experiencing the worst phases,  because I remember when something like that might have sounded shallow to me.  But,  it does have an effect.  Small understandings can offer up minor improvements, and sometimes that's all that's needed to open up self-manageability options.  I still always feel that some offence can be taken from that seemingly over-simplification kind of talk,  but it's worth the reputational risks.
    • Posted

      PS....

      Just been thinking about the 'soldier' analogy you mentioned.  For sure, a wounded soldier might tolerate great pain,  and they do,  because they know the whole country, and its resources, are behind them......and their injury occurred for a good cause (hopefully)....and their injury is usually obvious.  I sometimes wonder how that 'fortitude' works for them when they are injured in a crisis with muddled political justifaction,  like on the streets of Belfast,  or even if they get accidently injured on a training ground in Dorset,  or are attacked by some looney terrorist as they walk down the street in London.  It must seem pointless and depressing.....more like anyone trying to figure out why they have C/S imposed on them out of the blue.

       I remember my Mum saying to me,  as she took me to the dentist when I was a 10 year old..." Just think what it was like for those poor prisoners in the concentration camps",  maybe because I had recently said something.  And it worked,  but only because the pain also disappeared after treatment.  If there is no reassurance about a 'healed outcome',  the metaphors simply don't work like they normally would.  A 'healing expectation' mindset,  and a 'no healing expected' chronic mindset, are two very different things,  and any comparisons can not only lack resonance,  but can actually feed into the 'chronic' mindset in a frustrating negative manner,  because outcomes will be continually defied in reality.  I think it's best to accept the chronic overview as soon as poss,  because,  if things can't get much worse,  they can only get better ( not too sure I can support that statement,  but you probably know what I mean !) .  Chronic tends to have a negative cultural undertone,  but really it just means ' over time, with no known resolution',  and basically we already know that.

       There's a movement afoot to change 'chronic' to 'persistent' to soften the negative undertones,  but that makes absolutely no sense to me whatsover.  'Persistent'  quite obviously means that an issue had a  'resolution expectation', and it has 'persisted' beyond that date.  Chronic has no 'resolution expectation' attached,  so a chronic patient can't reconfigure that into a less threatening overview.  Another example of mindset altering nonsense, perhaps !

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