Neck pain, dizziness, light-headed...help!

Hi ,

I am suffering all these from 14 months . I was diagnosed with brain cavernoma and the docs confirmed my symptoms are not related to cavernoma . So after 14 months I have realized that we need to follow one thing holistically for 3 months and then shift to a new process , it's not going to be fixed in 7-15 days time and needs a lot of patience . Dont worry much and have your anxiety under control .

Check for

Any vitamins deficiency 

Neuro mascular massage ( check for scm muscle)

brain Ct scan 

ear test (vng test ) 

eye checkup by a ratinalogist

Vertical heterophoria

Try medicines for sometime from doctors but make sure u don't get addicted . 

I just started getting Dizzy about 2 weeks ago when I stand up(sometimes) and when I strain my neck(most of the time). I finally started my search to find a solve after the simple things have not worked(Drink more water, stop taking supplements, air purifier etc.). I dont think my situation is as severe as what I have read in here, but maybe I can be used as a trial balloon for some to solve one of, what appears to be multifaceted conditions. I don't have neck pain. I do get headaches often, which I am almost positive that are caused by vision and can be fixed by getting a new prescription. I will try, after reading here, cutting out caffeine and salt. I have noticed my heart rate seems to be higher than I think is normal(just an assumption/not measured) and maybe its perception after others have suggested it may be high blood pressure.  I get dizzy when I put stress on my neck like when I lay down(only as I am laying down) or when I am under a sink putting in a new faucet, laying on my side and using my muscles to hold up my neck to see what I am doing. I have the feeling(Not medically trained in the slightest)  it is a blood flow to my brain issue. I will see a doctor this week and post my results.  Any recommendations will be appreciated and responded to if warranted. Where is HouseMD when you need him?    

Tiny I too have a similar situation.  Although I have been at it for about 17 years now.  I am currently under the care of your nose and throat Doctor Who is making sure it’s nothing simple like an out a place crystal in the ear.  Other is therapy continues to realign the Crystal and inner ear,  it’s becoming more apparent to me that it is more of a blood pressure problem, through a constricted vein in my neck. I may ultimately have to do next surgery to  solve my problem. Other like any medical procedure. I highly recommend addressing all of the easiest and least invasive procedures first. .  I would recommend that you possibly see a neurologist and or an orthopedic surgeon that specializes in spinal surgery.  But of course only after you’ve seen your ear nose and throat doctor. You certainly don’t want to go under the knife if it is something simple.

I wish I could enlighten you! Had the same symptoms for 3-4 years now and no relief. I joined in hopes of finding anyone with a diagnosis!!!

Hi..iv had dizziness nausea migraine n vomiting fr 3 years now so believe me wen i say it hasnt been easy at all! Iv seen loads of docs..bt not cured yet even tho symptoms r reducing over z yrs..i did a specific stretchg mvmt wth my arm in 2014 n thts wen all symptoms occurred! An ENT surgeon is a gd optn..tell z doc to do Epley manoeuvre..this can help..u can also tey specific neck n back exercises frm a physiotherapist or kinesiologist..n u can also c an osteopath..all these help..iv tried almost evg smtmes acupuncture may help also..gd luck

Hi everyone im sorrry everyone feels like this and i can totally relate iv been like this for 12 almost 13 yrs weak dizzy shakey feel like im going to ass out sometime do and or fall down i saw so many specialist and did so many test and they all told me i was making this up its all in my head yada yada yada no one would believe me

IE:

had a heart monitor for a month

Ct scans mris

Blood work

And so much more

Finally a doc of my parent took my chart read the HUGE thing front to back n had me come in said he was going to order 1 test and if i passed out he knew what it was so i went to the test it was a Tilt Table test a table they strap you to and tilt you fwd while taking your BP they also do iv ro speed heart rate if needed like a stress test. Anyway long story short i passed out went back to doc for result I have

Neuro Cardiac Syncope basically my Bp is always low (my norm 90/60 ) when i go to sit up- stand up from laying down or sitting my blood pools in my legs n feet and sosnt have the circulation to pump back up my body to my brain IE all the symptoms including passing out. I am to eat alot of greens and increase my salt intake if they tell me 1 more time to increase salt i might as well eat the salt shaker lol. There are 1 meds to take for this but they made me realllllly sick so i cant take them so iv just been dealing with this for almost 13 yrs iv learned my body i know when im getting weak to sit same with dizzy and oh also i feel like my heart is beating so fast and hard but it never showed on bp or heart monitors nothing.. so basically just learn your body n adjust to it it dose wipe me out especially the next day i could sleep for days n not feel rested just a 10 min episode and the days when im busy n try n push threw those are hard n i regret it later but its life n i just push threw.

Anyways i hope this helps someone if you have questions plz email me i dought ill remember this pg to come check responses

Good luck to all hope you feel better

Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

Hi Everyone,I hold like to find some answers if I can. I was in a car accident in 2014 I was hit in the rear and after sitting there for a bit I felt pain going up my shoulders to my neck. My daughter was with me and called a ambulance they came and put me in a neck brace and off we went. The ER doctor ran a X-ray and came back and said everything was good. When they went to take the brace off and sit me up everything started spinning the doctor said it was because I was in the brace and laying flat for so long. They had me just sit for a few minutes then they told me to stand up and I said everything is still spinning the doctor told me it will go away and had me walk where my daughter was in a room down from me. I got there and was holding on to anything I could my husband and daughter could see I wasn’t good. My daughter asked if I wanted her bed to lay on but the doctor said no she needs to sit. I sat there waiting on my daughter when I couldn’t  do it no more and asked my husband to take me to the car. The drive home was awful to say the least. I didn’t get any better sick to my stomach and the spinning just didn’t stop.i went in and seen my doctor two days later he said I had vertigo and gave me some medicine for it and said it will be better in a few days or so. Well it didn’t and in three weeks I went to a different hospital ER and they admitted me I was in there for a week they did a ct scan, seen a neurologist and a few other test. This had turned my life up side down. They had me go threw physical therapy and dizziness and balance therapy and they did some test to. That did help on my neck but not so much on the dizziness. It was more like how to deal and live with it. I have some days where I’m not dizzy at all and could go for months with out it. Then wake up one morning and here we go again I talked to my doctor and he just said I might have to take the medicine everyday so I did and still have reoccurrence of it. I did find that I have a messed up neck c1 to c5. I have right now where I have pain in my neck and goes up to the bottom of my head just past c1 and if I turn my head just to the right I get this feeling of being light headed or a little dizzy and a really weird feeling like a thud or nerve spasm it’s really hard to explain.I have tried to talk to my doctor about it but he just brushes it off. I really don’t think I have vertigo but I just not sure what to do. I just want to be fixed and have my life back.

Hey Tiny2010 Did you ever get your issues resolved? Its been 3 years

I've been having BPPV for 2 yrs. I've gone to the PT for the Epley (approx 30 times), the ENT, had a MRI and Chiropractor. I stumbled across a Crainologist in the Los Gatos, Calif area. After a hour

consultation with him, i opted for treatments. He immediately relieved the pain across

my right jaw, the burning sensation across the back of my neck, made a neck adjustment

and for the first time in 10 yrs i could turn left. He told me I was a Clencher and had TMJ.

The frequent BPPV episodes were most likely from the pinching of a nerve from my neck

to my ear. He didn't think the pinching of the nerve was permament. I see him once a month for touch ups. I still had periods of a floating sensation and had one vertigo issue in the past 4 months

as I woke up in a bad position. I use a rolled up towel under my neck for support at night. My next

choice is acupuncture.