Need advice , please!

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I saw a new GYN this week.  She took many cultures.  I am waiting for results.  She recommended Osphena.  I am waiting for delivery.  I also saw a urologist and she thinks my burning issue is gynecological.  However, she is doing a cystoscopy at the end of August to rule out a bladder issue.  She gave me samples of Toviaz for incontinence.  The vulva burning has gotten worse.  I can hardly walk with this terrible burning.  I am using a baking soda wash which helps for a short time.  Can anyone suggest what I can use in the vulva to alleviate this burning?  I started taking Pyridum but so far it is not working.  Thank you.

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  • Posted

    I'm in Scotland, but have had this condition for 5 years, after countless different medications, the one that lets me life a normal life is Dermovate Ointment, ( clobetasol propionate). The vulva area goes very red when ointment is applied, but within 5 minutes all is calm.  After every 'wee' make sure all residue is removed. I use a wet flannel to dab  clear, because toilet paper tends to stick. Hope this helps, X 

    PS. A pea size amount of ointment does all area...

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  • Posted

    Well if you read all the discussions about this you will see there are so many of us with the same problem. I think most of us find no matter what we try we need to eventually go down the estriol road or something similar. We are all different but one thing is the same the constant burning and stinging is very annoying and constant bathroom trips are very sore and sleep disturbing if you are up during the night. 

    Good luck with what your doctor has advised and let us know how you get on. 

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  • Posted

    Hi Maryann,

    I am in the same boat. I have been unable to work today the burning is so bad. My journey sounds similar to yours. I had the scope already. It was clear.  Pyridium did not help and I think that is for short term use. Starting on topical estrogen now. Trying desperately to find something that works. Just know you are not alone. 

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  • Posted

    If you are using baking soda baths (which I also found helped a little) make to moisturize after. I am currently using organic coconut oil. 
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    • Posted

      I also use coconut oil - I apply it internally and externally every time I go to the toilet. I also apply vit e oil internally once a day and before I go to bed I insert a key e suppository. I also take (orally) 3g of sea buckthorn oil (shown Tom improve the condition on the vagainal wall cells and the thickness of the vaginal wall). Other things: no underwear and lose fitting clothes; scent and chemical free laundry powder and conditioner; bleach and chemical free toilet paper. In fact I managed on that regimen (and having sex too) for 4 years. But, like Olive said, eventually the dryness (and return of painful sex) won and I now use estriol cream (but still do all the other natural stuff).
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