Need advise!! Feel very stuck!!!
Posted , 8 users are following.
A while ago I was told I have osteoporosis after an x ray but my gp told me I couldn't possibly have it I'm too young at 42,despite having a spinal injury years ago.Anyway I had an awful experience Saturday which resulted in me getting an emergency MRI which again shown I have degenerative bones in my spine.I work 12 hour shifts at a desk...I went to work today but after three hours was in agony...do I need to admit defeat and look for another job??? I have been told to get benefits but I don't want to do that...do other sufferers claim benefits or work with osteoporosis??? I feel so confused :-(
2 likes, 62 replies
Handbrake julia42786
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Until you know more about your diagnosis it's really difficult for you to make an informed decision about your Job. Can you discuss your issue with your boss and explain your painful condition at work. Ask your Dr as Anhaga suggests with a relative or friend with you to investigate further the reason behind your X-ray.... until you know what is causing your problem it is really difficult for you to know how you can improve your situation or at the very least take steps to stop things from getting any worse.If you don't feel your dr is being supportive you should ask to see another Dr .hope you get the support you need stay strong and stay strong for what you need we are all rooting for you 🤗
pam33148 julia42786
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There are things you can do at work that may help. Periodically, as you feel the need, get up and walk around. Also you can steady yourself at the end of your desk and do squats. You can also sit on a chair that doesn't roll and bend over between your legs as if you were going to pick something off the floor in front of you. Check on the web for therapy exercises for lower back pain. It will strengthen the muscles in the lower back. I live with lower back pain with compressed discs up and down my back and arthritis. It's not so much the opteoporosis that is causing pain it's your other back condition. Obviously, your gp needs to send you to an orthopedic doctor. They are more likely to understand what you are going through.
If your gp doesn't want to help you, get another one. Could you tell me where you live?
kathleen65757 pam33148
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Walking is safe so long as care is taken not to fall.
I have bulging discs and arthritis in my back too and I find I am very limited with exercise. I have some nerve condition going down into the sacroiliac and find the pool is best for me. I also use a wheeled walker.
I am 71.
Anhaga kathleen65757
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julia42786 kathleen65757
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julia42786 Anhaga
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Anhaga julia42786
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kathleen65757 Anhaga
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In the pool I cover exercises for the knees and shoulders as well as the back. I use a noodle and dumb bells as well as keep moving walking or cardio type exercises.
I feel a freedom in the pool that I cannot achieve out of the pool. It is a very warm pool especially for rehab.
kathleen65757 julia42786
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clive_65635 julia42786
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only now come across your post, i feel the doctor is wrong saying your too young, i was diagnosed and im a 46 year old male and mine was discovered on an xray but that maybe just because it was multiple vertebrea fractures, as for giving up work,if you can handle it carry on,i wish i could but the pain got too much, unfurtunately im now on benifits first time in my life, was getting ESA but they have stopped that telling me i could work in a wheel chair, so now claiming jsa all of £73 a week lol
But you also have to consider if you carry on working will it make your condition get even worse
julia42786 clive_65635
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clive_65635 julia42786
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only now come across your post, i feel the doctor is wrong saying your too young, i was diagnosed and im a 46 year old male and mine was discovered on an xray but that maybe just because it was multiple vertebrea fractures, as for giving up work,if you can handle it carry on,i wish i could but the pain got too much, unfurtunately im now on benifits first time in my life, was getting ESA but they have stopped that telling me i could work in a wheel chair, so now claiming jsa all of £73 a week lol
But you also have to consider if you carry on working will it make your condition get even worse
julia42786
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Well .... after all the kerfuffle I am now out of a job ... feel very low and I'm getting no support from my gp ... I'm petrified I'm going to be forced into another job when I believe and feel I need to come to terms with the conditions I have and start my physio and also maybe learn pain management before thinking about trying to look for another job....I have always worked even though I've been a single mum of 5 .... so I'm twiddling my thumbs while trying to cope with the pain..I will be phoning the benefits agency on Monday morning to apply for pip ....which I don't think I will be eligible ??????????????????
Anhaga julia42786
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This doesn't sound good, although as you said you really had trouble performing your duties so in the long run it may be a blessing in disguise. Cold comfort today, I know.
I've been reading through this thread and wondering if you have more going on than the pain from bones. For several years I blamed my aches and pains on osteoarthritis (which I do have). But eventually I was diagnosed with an autoimmune disorder (polymyalgia rheumatica) which I'd never heard of before. My x-rays in fact showed that the osteoarthritis I've had for about thirty years had not in fact progressed much at all. The pain was from a completely different disorder which has nothing to do with bones. Has your doctor done any investigations to confirm that your pain really does originate in your bones? Perhaps it is muscular (fibromyalgia) or vascular (polymyalgia) or any one of a number of myalgias (myalgia means pain).
I've also read recently that some of us take too much calcium in relation to magnesium, and upping magnesium and being a bit more careful not to overdo calcium can sometimes help with pain. That's why soaking in a bath with Epsom salts can be helpful - we absorb magnesium through our skin!
Anyway, fingers crossed that you find a solution through these problems and you are soon feeling better.
julia42786 Anhaga
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My gp hasn't done anything at all other than refer me for physio and constantly writing me prescriptions for painkillers.....at the moment it's my discs that are causing me more pain .... but as for medically I've had nothing ..i don't know how else to do anything because they make me feel like I'm wasting their time...but this pain is real and I'm getting rather upset about it all now .
kathleen65757 julia42786
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My only exercise is in a specially heated pool for people who are doing special exercises or disabled. It is heated to 38 degrees so is very warm and therapeutic.
My husband is my carer and we can structure a happy existence for ourselves.
I am lucky I am not young. So my heart goes out to you.
We have children and grandchildren.
I do not know what to tell you. You really need help and I could advise you if you were in Australia but someone who lives near you on here could suggest people to contact for help and advice.
julia42786 kathleen65757
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I'm sorry to hear of your personal discomfort. ...I also have grandchildren and I was quite pleased that I had them while so young but that's not been the case due to my pain....imm going to start swimming again and might invest in a hot tub...
Feels like everything is over for me but I know that's not the case.....it is unfair though ... but ... I must try and keep trying to get the help I need ...
clive_65635 julia42786
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I can totally relate to your problems, I gave up my work in December because of pain, started claiming ESA, had my assessment they stopped my ESA because in their opinion I'm able to work if I get myself a wheelchair to move around, the assessment is a joke I was sat down for 97% of the time so it didn't really test the pain I get in, now having to claim JSA and having to apply to work I no I can't do, so just stuck in limbo, am in the process of appealing against the ESA decision, I've just had a pip assessment but like ESA their points system doesn't cover pain so this is also hard to pass, it's a bloody nightmare trying to get people to realise how much pain your in, I wish you all the luck with your situation, it's good to come on here and talk about it to people that understand
julia42786 clive_65635
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Oh my that's worried me even more ?? it's hard enough trying to make people understand the pain....because you look physically well they tend to be apprehensive when your explaining ..... but like I said this pain is real and it's horrid it makes me cry...and I have a high pain threshold...I gave birth to 5 children with no pain relief at all..yet I can't cope with this pain....I don't know what I will do if I have to continue to look for work..and be faced with them pushing me into jobs I cannot do
clive_65635 julia42786
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I'm sorry if thats worried you even more, have you put in a claim for ESA? if not when you do get as much evidence and help as you can, it's seems like to me if your not terminaly ill it's difficult to claim anything, I'm worried like you about being pushed into work I'm unable to do, I'll just have to tell the truth at interviews and tell the employer I'll need to rest alot while I'm working, some how I don't think that will go down to well, just hoping my appeal against ESA will be overturned and I can claim that again first time in my life I've been out of work, but like you the pain is just too much now and I'm still youngish, keep us up to date with your progress it's a difficult and hard situation to be in.
julia42786 clive_65635
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I'm ringing to claim today .....I dint think I will get it either which annoys me as I know people who claim it falsely ??
clive_65635 julia42786
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Yea tell me about it, my neighbour claims it and he doesn't seem to have problems cutting grass going up ladders and going on holidays, yet here's me get in pain if I walked to the local shop only 100 yards away, you should at least be able to claim ESA easy with your problems, if you get the form sent to you get help from the citizens advice in your area to fill it out, they can point out things to put down, if asked to send evidence get as much as you can from your gp and get family and friends to write down how they have seen the change in you.
clive_65635
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julia42786 clive_65635
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julia42786 clive_65635
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