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I am hoping someone can offer advice. I am in the uk, 38 years old and presented with severe itching and white patches 'down there' a year ago. My GP visually diagnosed LS, and sent me home with Betnovate ointment and Cetraben emollient. I used it as prescribed - twice a day for 3 months, then once a day for 2 months. For the last 6 months, I have had problems stepping down the Betnovate to every other day. Every time I try, the severe itching is back within 24 hours, plus the stress is causing me to have 2-3 periods a month which just adds to the drama. I've been referred to Dermatologist who said she can't see why LS was diagnosed as I dont have any change in architecture and she can't feel any thick skin, and there is nothing to biopsy. Then got referred to Vulva clinic and doc there said the same and is not convinced its LS, but did say I have to try again to step down from the steroid. She gave me Lidocaine and said to use it once a day in the evening, with Betnovate in the morning for a week, then try Lidocaine once a day with Betnovate every other day. I am still in the first week of 'dual running' and 4 days in I'm back to severe itching but with red rash and pimples front and back which is new. I have emailed the new doc to find out if this is normal or if I should stop the Lidocaine and waiting to hear back as this definitely does not feel normal. Over the last year the things I've tried to stop the itch is epaderm ointment, coconut oil and emu oil but these had no effect; only the daily use of Betnovate stopped the itch. I already have a restricted diet in place, no sugar, regular exercise, for many years prior to getting this and have never had any health issues before this other than the odd cold/ flu in winter. I am currently waiting for my aloe vera gel to arrive, but I was wondering if this is what everyone (appreciate different people all have different experience with this nightmare) with severe itch experiences when trying to step down the steroid? Does the itching ever stop? After a year of suffering, I only just got my head around this thing and felt like I was in a good place, and now I am back to square one, its very heartbreaking and hard to start from scratch again to get a diagnosis. I know a lot of ladies have felt the same over the years and this forum has been a lifesaver for me. Thank you for reading/ listening to me whinge.
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