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Nerve Block

Posted , 7 users are following.

buggyboys
buggyboys

I sprained my ankle,hair line fracture on the Fibula torn tendons and legaments back in Jan of 2013 have been dianoised with RSD and Dr. wants to do a Nerve Block I'm scared to death thinki g about a needle in my back and I've heard it doesnt always work

What are your thoughts ??

                                              

 

1 like, 16 replies

16 Replies

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  • Ginagirl
    Ginagirl buggyboys

    Posted

    No different than an EPidural for childbirth.  If it helps worth a try at least once ..
  • slebby33
    slebby33 buggyboys

    Posted

    HI BUGGYBOYS! I HAVE CRPS WHICH IS CAUSED BY A SOFT TISSUE OR NERVE INJURY.RSD IS NOT CAUSED BY A NERVE INJURY,SO I THINK YOU NEED TO QUESTION YOUR DR ON PROPER DIAGNOSIS! I AM BEDRIDDEN NOW,MINE STARTED AS A CUT ON MY LEFT FOOT CAUSED BY NOT WEARING SOCKS AND LACES BROKE THE SKIN.I HAD CELLULITIS,MY FEET SOOOO SWOLLEN I WAS SHUFFLING RATHER HAN WALKING! I PUSHED EVERY PAIN BARRIER UNTIL LAST APRIL 7TH WHEN STOOD UP TO GO TO LOO! I PASSED OUT AS SOON AS I STOOD DUE TO THE IMMENSE PAIN! YOU MUST PACE YOURSELF NOW,PLEASE DO NOT END UP LIKE ME! I AM 42 ON SATURDAY,AND CANNOT EVEN TURN OVER IN BED.IT SPREAD FROM 1 FOOT TO THE OTHER,,THEN MY HANDS STARTED TO SWELL,BECOME RED AND SOOO PAINFUL ESPECIALLY RUNNING THEM UNDER WATER.DUE TO LATE DIAGNOSES,AND BELIEVE IT OR NOT STILL NO TREATMENT,THERE IS LITTLE HOPE FOR ME.THIS DISEASE IS A NEUROLOGICAL DISEASE,WHICH,WITH GOOD TREATMENT AND SUPPORT,(THERE ARE MANY SUPPORT GROUPS FOR US FOLK,I JOINED THE CRPS/RSDFIGHTERS ON FB.THEY ARE SO SUPPORTIVE AND HELPFUL,340 MEMBERS TO GIVE YOU THE ANSWERS YOU SO DESPERATELY NEED) THE BASIC THING TO THIS CRPS IS THAT THE PART OF BRAIN AFFECTED IS SENDING WRONG PAIN SIGNALS TO WRONG PARTS OF OUR BODIES.IT CAN ALSO ATTACK THE RESPIRATORY SYSTEM/DIGESTIVE SYSTEM,UROLOGICAL PROBLEMS,PROFUSE SWEATING,ATTACKS THE MAJOR ORGANS.DAILY VITAMIN C CAN HELP A LOT.TRY TO STAY AWAY FROM ICE AND THE COLD ON THAT BAD LIMB HUN,IT IS NOW YOUR ENEMY! THERE IS A CHANCE OF REMISSION,BUT RARE.IT CAN SPREAD BY FURTHER INJURIES OR STRESS,THAT IS FACT! EVEN IF YOU HAVE BLOOD TESTS,ONLY ONE ATTEMPT WITH A PEADIATRIC NEEDLE,YOU DO NOT WANT CAT SCRATCHES,ANY KIND OF INJURY PLEEEEASE AVOID.I SUGGEST YOU JOIN A SUPPORT GROUP.YOU ARE DEALING WITH A DISEASE THAT SCORES 42-46 OUT OF A POSSIBLE 50 ON THE MCGILL PAIN SCALE! CHILDBIRTH IS 35 OUT OF A POSSIBLE 50! NOW YOU MAY HAVE SOME CLUE OF WHAT YOU ARE DEALING WITH HUN,NOT GOOD EH! BUT YOU SHOULD TRY THE BLOCK AS MANY WITH THIS DISEASE ARE GLAD IF THEY CAN FIND ANYTHING TO EASE THEIR PAIN.I AM SOOOO SORRY YOU HAVE THIS MONSTER DISEASE HUN,I REALLY AM.I HOPE ALL GOES WELL FOR YOU,GOOD LUCK MY LOVE,LOVE SLEBBY33XXX PS,WHAT MY FOOT LOOKED LIKE WHEN SHUFFLING!!          
    • Kevscar
      Kevscar slebby33

      Posted

      I am sorry but you are wrong RSD is the old name for CRPS, there have always been two variations Type 1 and Type 2 although there are 2 different Type 1's
    • slebby33
      slebby33 Kevscar

      Posted

      I AM AWARE THERE IS TYPE 1 AND 2 CRPS.RSD WAS KNOWN FROM CIVIL WAR,OR CALLED CAUSALGIA! THIS DSEASE IS WRONGLY CALLED RSD BY A LOT OF AMERICANS AS RSD IS NOT CAUED BY A NERVE INJURY,CRPS COVERS BOTH!  THIS DISEASE IS CALLED COMLEX FOR A REASON,AS IT IS JUST THAT.........COMPLEXED!THANK YOU FOR OUR INPUT KEVSCAR,I JUST HAVE SO MUCH INFO. ON HIS DISEASE,I TYPE THE BASICS AND HOPE SOMEONE LIKE YOURSELF WILL HEIGHTEN MATTERS THAT I HAVE MISSED.MY 1ST DUTY IS NORMALLY TO RELIEVE STRESS AND WORRIES FOR OUR COMRADES.I WISH YOU SINCERELY ALL THE BEST KEVSCAR,LOVE SLEBBY33,XXXXXX
  • buggyboys
    buggyboys

    Posted

    Thanks for responding I am so sorry to hear about your pain and what it has done to you especially at such a young age. This is such a terrible disease the worst part is not to many people know about it. I have had two Dr.s diagnosis me with it,  one was the Dr. Workman's Comp sent me to for a second opinion and my Pain Management Dr.

    I would say half way down my left leg to my toes is affected, the mostis my foot and ankle. It is a stabbing , throbbing ,burning tingling and ankle turns a blue and red color    

     

    • buggyboys
      buggyboys

      Posted

      sorry dont know what I did

      my ankle area gets so cold it feels like its burning and so hot it feels like it's in a pot of boiling water

      I cant walk any distance, also my blood pressure is off the chart was at 

      239/136  they gotten it to 158/98

      I guess my next step is a Nerve Block which I have read works when given early I got hurt in Jan 2013 and diagnosed May 2014 by workmans comp and diag. Aug of 2014 by my Pain Management Dr.I'm scared to death to get one, my back is about the only part of me that doesnt hurt so bad

      Any Suggestions ??

    • slebby33
      slebby33 buggyboys

      Posted

      ASK FOR A KETAMINE INFUSION,IT COULD LITERALLY GIVE YOU YOUR LIFE BACK.MINE HAS SPREAD TOO FAR FOR SCS IMPLANTS,OR ANYTHING ELSE! A TOP CRPS DR WILL KNOW ABOUT THIS! GOOD LUCK BUGGYBOYS,LOVE SLEBBY33,XXXXXX
  • buggyboys
    buggyboys

    Posted

    SLEBBY33

    Hope you have a Happy Birthday and may all your wishes come true !!!

    You will be in my Thoughts and Prayers

    • Kram21
      Kram21 buggyboys

      Posted

      Hi,Sorry to hear about your condition, I think the block is worth a try even if it only gives some short term relief, constantly badger the pain clinic for referals to other specialit's as well, I think one mistake with crps treatment is consultants waste a lot of time guessing how to treat it instead of getting you to see someone who knows what they are doing. That's just my opinion
    • slebby33
      slebby33 buggyboys

      Posted

      DEAR BUGGYBOYS.THANK YOU SOOOO MUCH FOR THE "HAPPY BIRTHDAY" WISHES.YOU HAVE NO IDEA HOW MUCH THAT MEANS TO ME HUN.I HOPE YOU ARE HAVING A LOW PAIN DAY,(LPD!) AND GETTING THE HELP AND SUPPORT YOU SO DESPERATELY NEED.TAKE CARE MY LOVELY,NEED OUGHT,JUST SHOUT! LOVE SLEBBY33,XXXXXX
    • slebby33
      slebby33 Kram21

      Posted

      HI KRAM21,ITS SLEBBY33! I TOTALLY AGREE WITH YOUR COMMENT.THE FASTER THE DIAGNOSES AND FASTER THE TREATMENT,THE BETTER THE OUTCOME,EVEN REMISSION A POSSIBILITY.SO MANY DR,S KNOW SO LITTLE ABOUT CRPS/RSD THAT THEY TRY TO "BLAG" THERE WAY OUT OF A VERY SERIOUS DISEASE.IT ATTACKS NOT ONLY LIMBS,BUT INTERNAL ORGANS TOO! RESPIRATORY,DIGESTIVE,URILOGICAL,CARDIAC.IT MAKES ME SO ANGRY THAT WE ARE LEFT TO SUFFER LIKE "DOGS!" ACTUALLY A DOG WOULD GET MORE HUMANE TREATMENT! LOL! REMEMBER GUYS,TRY TO WEAR THE COLOUR ORANGE THIS MONTH,AS NOVEMBER IS CRPS/RSD MONTH! TIME TO SPREAD AWARENESS,AND STAND UP FOR WHAT IS RIGHT! I THOUGHT DR,S WHEN QUALIFIED SWORE TO "CAUSE NO HARM" WERE THEY JOKING AT THAT POINT!! LOL!! TAKE CARE PEEPS,NEED ANYTHING,JUST MESSAGE ME.LOVE SLEBBY33,XXXXXX

       

    • slebby33
      slebby33 Kram21

      Posted

      YOUR SOOOO RIGHT ITS UNBLIEVEABLE! IVE LAID HERE BEDBOUND FOR 2 YRS WITH NO TRATMENT.MY LOCAL EX PIN CONSUTANT KNOWS OOO LITTLE SHE NEEDS RETRAINING! NEVER FEEL FEEL AFRAID TO REPORT SUCH DR,S TO GMC,IT,S YOUR BASIC HUMAN RIGHT!,ALL MY LOVE AND BEST WISHES,NEED OUGHT,JUST SHOUT! LOL!,LOVE SLEBBY33,XXXXXX

       

  • Kram21
    Kram21 buggyboys

    Posted

    Hi again, Ask your gp or consultant about a trial of IVig they may be able to get you on it and it looks quite promising compared to a lot of treatments they try.
  • slebby33
    slebby33 buggyboys

    Posted

    HI BUGGYBOYS! THANKS FOR THE HAPPY BIRTHDAY,YOUR VERY SWEET,THANK YOU.BACK TO YOUR NERVE BLOCK! DO NOT BE SCARED HUNNIE,I HAVE A DEGENERATIVE DISC DISEASE STILL! ALONGSIDE THIS MONSTER CRPS! I HAVE HAD NERVE BLOCKS 15 STEROID EPIDURALS,AND WIRES ATTATCHED TO MY SPINE TO STOP THE SCIAICA! I HAVE HAD NO LONG TERM OR SHORT TERM PROOBLEMS WITH THEM AT ALL,THE DRS WHOM DO THESE ARE HIGHLY SKILLED AND KNOW WHERE EVERY NERVE IS IN YOUR BACK,IF YOUR WORRIED IT WILL BE PAINFUL ASK YOUR DR TO SEDATE YOU! PLEASE DO NOT GO ON WITHOUT TREATMENT HUN,THE QUICKER THE DIAGNOSES THE FASTER THE TREATMENT,THERE IS A BETTER CHANCE OF REMISSION,OR AT LEAST HAVING SOME QUALITY OF LIFE!  DO NOT END UP LIKE ME,BEDBOUND AND IN A RIGHT STATE DUE TO NO TREATMENT AS YET AND I HAD MY 1ST DIAGBOSES LAST NOVEMBER!I ONLY GOT TO SEE A NEUROLOGIST LAST FRIDAY.HE WAS GOBSMACKED WHEN HE GOT A REPLY TO HIS QUESTION,"HEN IS YOUR NEXT APPOINTMENT WITH THE PAIN TEAM???" I SAID "IVE NEVER HAD ONE,ONLY SAW A PAIN CONSULTANT ONCE WHOM SAID I DIDN'T HAVE CRPS.WELL,THAT PEED ON HER FIREWORKS! HAVE A LOOK AT THAT GROUP I MENTIONED ON FB.THEY WILL SUPPORT YOU NO END,EVEN TALK TO YOU BY MESSAGE WHILE YOUR WAITING FOR YOUR BLOCK! I THINK THE PEOPLE THERE ARE SO SUPPORTIVE AND LOVING,AND VERY EXPERIENCED.YOU NEED SUPPORT HUNNIE.EVEN WIKI SAYS US CRPS SUFFERERS TURN TO SUPPORT GROUPS FOR HELP,THIS IS NOT NICKNAMED THE SUICIDE DISEASE FOR NO REASON BABE.IF YOU NEED ANY MORE ADVISE,PLEASE LET ME KNOW.I AM VERY UP ON THIS DISEASE AND COMPLICATIONS NOW! TAKE CARE MYLOVELY,LOVE SLEBBY33X
  • yvonne_33997
    yvonne_33997 buggyboys

    Posted

    It depends on your touch sense , are you very sensitive to touch , do you get pins and needles in your limbs and digits, if yes then I share your concern. Sometimes the needle stick is enough to flare up CRPS in that area, even if its been pain free previously. Ive read mixed reviews on nerve block, mostly on the negative sadly. Thats the downside of this condition, no two people get the same results from treatment. Only you can decide , it may be a case of listing pros and cons and go with the bigger list. Best wishes
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