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Never ending problems

Posted , 9 users are following.

jon54193
jon54193

The pain never ends, results come back clear and everyone around me thinks I'm complaining about noithing.....I need help, I need a diagnosis, I'm so tired of this.....doctors keep telling me it's a functional problem mixed with fybromalgia, excuse my french but BULL**IT! Not sure what to do next but one thing is for sure, I can't live teh rest of my life like this...

 

1 like, 168 replies

168 Replies

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  • jon54193
    jon54193

    Posted

    Are there any stories of ppl on here getting better/recovering from all these symptoms? I'm dreading to think what the result of mysymptoms will be in a few years if they don't clear up. I'm almost crippled...
    • Ruthie49
      Ruthie49 jon54193

      Posted

      I want to know the same Jon, has anyone ever got better from unexplained pancreas symptoms like this? Can you eat much at the mo? I take co-codamol and mebeverine but it doesn't always touch it.
    • jon54193
      jon54193

      Posted

      I really wish somebody could HEEEEEELLLLLLLLLLLP! Every part of my body hurting tonight!.....I can't do this...
    • nataliefranc
      nataliefranc jon54193

      Posted

      😔 I'm sorry your in so much pain. It's just so frustrating having no real answers. We only get one chance at life and seems so unfair we are having to deal with this! Just want to feel normal and enjoy life and my 3 young children without pain and worry! I hope you get some relief and some sleep tonight.
    • jon54193
      jon54193 nataliefranc

      Posted

      Hang in there Nathalie - those kiddies neeed you...

      Hope you have a good night too...

  • nataliefranc
    nataliefranc jon54193

    Posted

    Mine completely went away for just over a year about 2 years into this and I really thought I was cured for good. About 2 weeks after having my daughter via section it returned and has become worse this time. She's almost 3 now and I'm still no better or any closer to a diagnosis
    • Ruthie49
      Ruthie49 nataliefranc

      Posted

      Sorry to hear you are suffering Natalie. Is it mainly the pain with you or do you have any digestive issues?
    • nataliefranc
      nataliefranc Ruthie49

      Posted

      It's mainly the pain and the bloating, full feeling. Occasional heartburn. I'm practically always constipated which I'm hoping is a good sign that it's not cp as I never vomit and never get oily lose stools

      Natalie

    • Ruthie49
      Ruthie49 nataliefranc

      Posted

      I think that is a good sign Natalie. The bloating might be unrelated. Have you heard of costochondritis? It might fit your symptoms as I've heard it can affect the lower ribs as well as upper. Might not be, just came to mind.
    • nataliefranc
      nataliefranc Ruthie49

      Posted

      No I haven't I will look it up thank you. I've been told splenic flexure syndrome but not sure about that. Mine is worse the day after alcohol whatever it is!
    • Ruthie49
      Ruthie49 nataliefranc

      Posted

      I've wondered about splenic flexure too but would it be so regular and daily. Is your pain daily?
    • jon54193
      jon54193 nataliefranc

      Posted

      I'm grabbing some beers tonight. There's nothin gwrong after all! smile
    • Ruthie49
      Ruthie49 jon54193

      Posted

      Good luck Jon! Let us know how you get on. I would love to relax and have a drink but too scared!
    • nataliefranc
      nataliefranc jon54193

      Posted

      I'm tempted to have a drink tonight too! I just dread the spasms and worry the next day!!
    • jon54193
      jon54193 nataliefranc

      Posted

      you get spasms if you drink? Immediately? I had some drinks last night, felt amazing, felt great this morning and then crap all afternoon....
    • nataliefranc
      nataliefranc jon54193

      Posted

      Sometimes I get a burning feeling in my mid left back whilst drinking but usually the next day is when I feel the stabbing pains mainly under left boob, left side and back. Also get spasms just under left rib, twisting pain. If I don't have a lot to drink it's usually there first thing in morning when I wake (no pain in night) if I drink lots it comes on after lunch time next day, almost as if I have no pain till it wears off! It's never horrific and I can get on with my day just panics me and makes me anxious which makes it worse! Sometimes I can drink and feel nothing though but not often!
    • manda1030
      manda1030 nataliefranc

      Posted

      please try not too sweetie. I was told drinking even one more time could kill me,,,, I know it is hard. Best of luck to you all.
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