Posted , 12 users are following.
Just wondering what people are taking/doing for fatigue?
Absolutely wrecked tired all the time regardless of how much sleep I get!
No energy, have to push myself all the time!
Thanks.
0 likes, 21 replies
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EileenH goggi
Posted
The answer to fatigue in autoimmune disorders is not to push yourself all the time. It is pacing and resting appropriately. Google the spoon theory by Christina Miseriando for an allegory.
The fatigue is due to the autoimmune disorder - and it mostly makes your body feel as if it has flu. There is no medication that will relieve the fatigue - that is a question of adaptation and lifestyle changes. It often helps to rest BEFORE you get so tired - some people plan a midday nap if they can, but even a lie down in a relaxer chair may be enough.
I can't put external links - but if you go to this post on another forum:
https://patient.info/forums/discuss/pacing-in-chronic-illness-some-useful-links-that-explain-it-and-how-to-do-it-516000
you will find a couple of links to leaflets about dealing with fatigue in chronic illness, the second is particularly good. It doesn't matter that the label is for another autoimmune disorder - the concept is the same.
Vit D levels are often low in autoimmune disorders, it isn't known whether it is cause or effect, but having it checked and put right is a good start. Then you may be able to rule that out as a reason. Anaemia is also common in chronic illness - get that checked out too.
A supplement dose of 400IU vit D is nothing like enough for most people and definitely not for for someone with a chronic illness. 2000 IU is what is recommended for everyone here where I live - in sunny Italy where people spend a LOT of time out in the sun. 80% of the population is still vit D deficient! But you need to have the level checked first - to be sure you don't have anything that makes you have a high vit D level. It is unlikely - but it does happen.
goggi EileenH
Posted
Eileen, thank you so much for your very comprehensive reply.
I've downloaded the documents in your post on the other forum and will read later, will also read about the spoon theory.
I'll increase the Vit D dosage after my next clinic visit.
I'll also try to adapt my lifestyle as best I can.
Thank you again.
treezsh goggi
Posted
goggi treezsh
Posted
Thanks Treezsh,
I'll certainly give that a go - everything is worth trying in my opinion. I'm sure I've seen it in my local pharmacy.
Many thanks for replying, I'll let you know how I get on with it.
EileenH goggi
Posted
Do remember to check with your pharmacist that it is OK along with whatever medication and other supplements you are on. That applies to everything - even when you think it is natural and so harmless - sometimes they aren't good mixed with other things.
mary76396 EileenH
Posted