New diagnosis and I'm struggling

Just remember that you're not alone...We walk the same unpredictable path everyday.

Hugs🤗

Welcome to the site. Everyone here knows and understands your pain and frustration. There are good days and bad. This is a place to vent as well as to get advice.

Most of us are elated when we get diagnosed at first because we have a name for it and now people will realize we are not crazy or making it up. Then reality sets in. People still don't understand what you are going through. While the testing phase and habitual doctor appointments has ended you now have to find a treatment plan that will help you. We are all different and you will read about different meds, supplements, and treatments here. It's like getting a diagnosis. You have to keep going until you find one that works for you. Don't give up. We are here if you need us!

Oh you poor dear! We all can understand your anguish and pain. But please don't take this as a life sentence! It is a manageable condition and you will definitely find ways to cope. I have had this condition for over 30 years now and I can still find things to be grateful for in my life despite trials and disappointments. You will have better days, I promise you. Flare ups often come after some extreme stress or emotional upheaval. Please remember that there are people in your life who genuinely care about you. It is true that in the business world, bosses usually do not show genuine compassion or empathy. They just see a production issue and profit. So don't get discouraged because of your boss's insensitive attitude. Many with FM have to face this situation. You are not alone as Emma mentioned sweetie. So many are struggling with this chronic condition among other issues. Just try to be kind to yourself and be balanced in your expectations. You must recognise your limitations. You need to realise that this is a chronic condition like many others, such as Lupus, etc,  and you need to state that as a fact. It is recognised in the medical journals and the research is going on. So never apologise or be afraid to state your needs and limitations. Inform yourself regarding any program or govt assistance that can help you in this regard. Never despair my dear! Things always seem dark when we are in pain and feeling worthless. We all go through those times. But this too shall pass. Just take good and gentle care of yourself as you would a beloved friend. No doubt you have lived through some very trying times in your life and many distressing situations like many FM sufferers. The body can just cope with so much. So not surprising that we end up developing these kind of conditions. You can do this! One day at a time. Never presume that things will not work out. Life has many twists and turns. Tomorrow is always a brand new day. Sending you some warm gentle hugs! Maggie xx

Hi Oompa, I understand everything your talking about. I have also had feeling of suicide because the pain is unbearable. I have 3 kids and a husband and I thought about how me taking my life would effect them. I cried out to God because I had a strong feeling of suicide. I look up scriptures to help me. I read (My soul find rest in God my hope is in Him.) This verse helped me. I also ask for referral for a psychologist and was referred christian counseling to try to seek ways to help cope with pain. I wasnt look for a pill but ways to cope and someone to listen. The pain is horrible but your life is worth it. What gets me through is knowing someone is worse off than me with no limb, not able to take care of themselves. I use inspirational music so I sing through my task the pain is still there but it occupy my mind. I use scriptures to encourage me. It's depressing going to the doctor office and being in pain 24/7.

I was in pain and working for almost 1 yr before diagnoses. I was working full time and had to stop working because I weak. I tried aqua and physical therapy and I was still in pain. Never lower than a 5. I was of work from Nov 2014 to Aug 2015. I worked at a job last stressful but I was still in pain I was give Cymbalta, Lyrica,Gabapentin. Not effective. i was diagnosed with fibromyalgia in Aug 2015. My Rheumatologist referred me to the pain clinic I had steroid injections, butrans patch which help for about 1 month with some pain. I been on Norco, fentanyl patch you name it. Still no pain relief. I worked in pain using icy hot and biofreeze which helps cool the area. I had to use it a least 2x a shift. Still in pain. All my test are normal . Shows at little inflammation. I tried stay active and exercise regular and again had to icy hot just to exercise. Stay horrible pain all the time. Pain in neck, shoulders,back,hips, knees, inner ankles and heels. If cold my hands are stiff and painful. I have been in constant pain 24/7 since Nov 2014. I want scream and cry. I feel miss understood. I feel like the doctors are insensitive and not hard enough. All my doctors are giving up on me. Read my recent discussion and you will see why.