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New diagnosis and I'm struggling

Posted , 9 users are following.

Oompa
Oompa

I have been diagnosed with fibromyalgia, after seeing various medical professionals for over 3 years, had various treatments, paid thousands to a chiropractor, and tried so many meds. Now because there's nothing they can do it's fibromyalgia. I work full-time and my employer is not supportive at all, I'm in pain I just can't describe and feel like my life is not worth it. I have thought about death lots in this last year, and nobody understands how I feel. I guess I'm just trying to reach out, I hate the pain I hate my life!

0 likes, 22 replies

22 Replies

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  • sam6990
    sam6990 Oompa

    Posted

    Hi there,

    I know how you feel. I was diagnosed with fibromyalgia a couple of years ago. When I was first diagnosed the pain and the collapsing as well as the ibs was just horrendous. I thought my world had come to an end. I'm only in my forties and to top it all, my bladder stopped working and have since had to self catheterise, which I can promise is no picnic!

    I have learned to take each day and to just be grateful each day. Things will improve for you. There are different meds that your GP can prescribe to help you. There is amitriptyline, gabapentin and pregabalin just to mention a few. Hang on in there!! Things will improve so much.

    Good luck.

    Sam x

    • Oompa
      Oompa sam6990

      Posted

      Hi Sam6990, it is so overwhelming reading these comments, I have been on the meds you have mentioned increased the doses and still nothing. Ive had injections, acupuncture, even paid to see a chiropractor. Nothing. I don't know if it's all related but I feel the urgency to go toilet is so bad I'm so close to wetting myself and this scares me, I have no love life, no children, I have nothing, and it's horrible. I know there are people worse than me and my life, but it's hard and I struggle to cope.

  • sadie1980
    sadie1980 Oompa

    Posted

    Welcome to the group !

    My name is sadie and I'm 36 I was diagnosed in Jan of this year after two years of non stop pain which happened after the birth of my third son ! I thought I was going mad and the pain was all in my head ! Which obviously it wasn't ! I wanted to end my life on a few occasions and went to the doc for help which referred me to a mental health nurse ! Which did not help at all. I'm now on quite a few meds and to be honest my life I can get threw. Meds are not for everyone but pregabalin has made the constant everyday pain not go but put it to a minaum. When I have a flare up I do have dif meds like tramadol, zapain but when the pain is at its worst unfortunately I do have to take oramorph which I have to be bad to take it !

    This group saved my life believe me it's so nice to have people who understand you and what your going threw. My partner who says it's the lazy deiase and that if I exercise more it will go ! What a idiot ! We are no longer together as this drives me mad !

    I have three children 16,12,2 all boys and I do work 32 hours a week ! I'm a payroll and accounts manager which is not physical but my mind sometimes goes blank lol which is not good when I'm processing pay!

    Anyway you life is worth it all are lives are worth it ! We are amazing 😉 we live with it everyday but we are still here we should all be proud x

    • Oompa
      Oompa sadie1980

      Posted

      Sadie1980, I get foggy mind too, I asked work for reduced hours and they refused, I even look for new jobs but it's so hard. I work in a college as a tutor working with challenging young adults and enjoy my job, but like any jobs it comes with its stresses, I suggested how I could be supported but even though my role has an assistant, that assistant is not allowed to support, even though they are aware of my situation. I just get the feeling they are looking to get rid of me. I've thought of going on the sick but don't want to let my students down. I hate this

  • sue21108
    sue21108 Oompa

    Posted

    Dear Oompa, I am so sorry to hear how hard finding things at the moment and it is a moment even though it might be a long one.   What I can say to you that the wonderful people on this site are so supportive. When I am struggling I pop on here and it helps so much to have people with the same problem and understanding.  I am in pain all the time usually I can cope but today I feel like crying but on the bright side I went to the cinema yesterday with my daughter and grandchildren. So the days when I feel not to bad I try to do something the days I struggle I TRY to go easy on my body and rest.    You will get your ups and downs but we are all here to listen to you. Take care and sending gentle hugs   xxx
    • Oompa
      Oompa sue21108

      Posted

      Thank you sue21108, I want to be able to do everyday things, but I go to work with a brave face and when I'm home all I want to do is sit and do nothing but even that's hard to do.

  • jennet74774
    jennet74774 Oompa

    Posted

    yes, you poor thing, but as other have put, we are all hear to help each other.  I hate pain and sometimes hate my life but I look at others and realise that there is always someone worse than you.  My best friends husband has been unwell recently and has been diagnosed with chest cancer.  I was such a blow as he is the most energetic/fit person I know, really healthy with his eating etc.  I realised that although we all have to deal with the pain, at least I dont worry about every scan etc. like he does.  I dont know how I would cope with that every day on my mind - I know this sounds funny but just seeing him a couple of times a week really helps me to try and deal with my situation with positivity.  Doesnt take away the pain but at least gives you some hope for the future. 

    ?We are here for you, dont give up and when you feel down, talk to someonesmile

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