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new format - I'm confused!

Posted , 8 users are following.

beev
beev

Hi all

I have just found this new format. I do wish things would sometimes stay the same. Are you all still out there? I feel abandoned as I rely on you all so much. Where are the emoticons etc??? HELP.

I am back on 2.5mg every day now and ESR back to normal. Planning to stay on that for a month then start the slow reductions again.

Did you see my post on old forum Eileen? About my ESR going way down low before suddenly going high?? Any explanations anyone??

Beev

0 likes, 26 replies

26 Replies

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  • Nefret
    Nefret

    Posted

    Got hiccups again Mrs. O?

  • EileenH
    EileenH

    Posted

    Nefret - if you can't get your head around this site with your background what hope is there for the rest of us?

    MrsO - you need a bit more water with it - or maybe a bit less - who knows! And yes - I used to find this forum such a nice quiet sensible place to come to compared with the other forum. How things change.

    Beev - as you see, we are still here and it is getting better (all things are relative!) . I really find myself screwing up the courage to drop in for a look though and postponing it as long as possible.

    Eileen

  • beev
    beev

    Posted

    Well - spose the one benefit is that we are all drinking more alcohol as a result. Thought it was an NHS site tho - and aren't they supposed to discourage drinking???!!!

    My daughter is at home for a while and this is encouraging me to become even more of a "lady who lunches" - had a glass of red at lunchtime today too!

    Hicc

    Beev

    Beev

  • Nefret
    Nefret

    Posted

    Think I have just about got it sorted..............but the password problem is sooooo annoying.

    I'm just too ancient to enjoy change for the sake of it, but as you say, Eileen, it's all relative!

    Beev - a glass a day keeps the doctor away (I wish).

    Catie

  • carolk
    carolk

    Posted

    hi like everyone else have had a really difficult time getting my password sorted in the end a man called alan at the patient sevices dept had to sort it for me, i find the site difficult unfortunately i dont drink so i am hitting the cake and biscuits until i get used to it ,so lets hope i adapt before i get even fatter than my steroid filled body is at the moment carolK
  • MrsO-UK_Surrey
    MrsO-UK_Surrey

    Posted

    I just like writing to Nefret really!!!!

    Your names are all over my Inbox but I'm scared to post in case I embarrass myself by hogging it again!!

    MrsO

  • Lizzie_Ellen
    Lizzie_Ellen

    Posted

    The only good thing about this site at the moment is that everyone seems to be struggling with it, not just me!! As you say Mrs O I found this site used to bring out the sober, sensible side of me, but like you its causing a few grey hairs, a few grey hairs, a few grey hairs - love it!! And may I join you in a few flasses of the red stuff Beev (hic) and maybe the cakes and biscuits Carol? The sad thing is that its so confusing, the people who really need to discuss their problems are being hijacked by the likes of me who simply can't be doing with the constant signing in etc. etc. I do hope it doesn't put anyone off - we're not usually this moany (are we?). Hopefully normal service will be resumed soon.

    Love from Lizzie Ellen xxx

  • MrsO-UK_Surrey
    MrsO-UK_Surrey

    Posted

    Dear Lizzie - you never fail to make me smile whatever site I find you on. Now I'm greying even faster - a member of the support group has 'phoned and said he has tried to e-mail me but it's returned undelivered! I've had a friend here this morning and we've been 'fiddling' so I'm now off to research it and just hope I haven't done anything stupid, but then knowing me.........!!!!

    We must keep persevering on this site - do really hope there aren't worried people looking for support and giving up because of the complicated set-up.

    Do hope you're feeling better now, Lizzie.

    love from Shirley(MrsO)

  • Mrs_G
    Mrs_G

    Posted

    Im here at last !!! i really didnt have the time or patience to struggle with it a few days ago

    Anything i could say about this site is unprintable There was nothing wrong with the other one It isnt supposed to be a work of art it is just supposed to be there to help people find help !! Not getting fed up trying to sign on and give up ! Thank goodness for the other forum !!

    Beev I remember you cant take the uncoated tablets so have trouble reducing with only 2.5 at your disposal Im glad you are going in the right direction now and hope things improve for you

    Rosemary

  • BettyE
    BettyE

    Posted

    I've just come back after going off in a bit of a huff a week or so ago. Glad to find I'm not just unduly incompetent. Havent read anyone welcoming the new set-up yet.

    Agree with Eileen that this used to be the formal place to come and the format matched it. I wonder whether the powers that be have an explanation other than the " new is better"? It doesn't follow at all.

  • mrs_k
    mrs_k

    Posted

    Just think, we have all conquered 'steroid brain fog' or 'treacle brain' fog.

    And we are getting there. Give yourselves a pat on the back for perserverance in the face of insuperable odds.

    We made it in spite of it all. And most of us are Silver Surfers.

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