New man on the forum
Posted , 6 users are following.
Hello all
Just thought I would introduce myself, I’m Richard aged 38 married with 3 kids and seem to be one of the few men on this forum, but I have yet to be diagnosed with Fibro or M.E.
It started in June this year after a RTA, I went to the docs after the terrible pains in my limbs wouldn’t go, feeling tired and achy, depressed. The doc ran loads of blood tests and I was diagnosed with Underactive thyroid and high cholesterol.
I was a bit shocked at this because I’d never had anything wrong with me before, but I looked it up and thought, oh well sounds like the pills will sort me out and I’ll go back to living a normal life. But I don’t seem to be getting any better, in fact I would say I’m now worse.
I’m currently on all sorts of meds which include the usual, Levothyroxine, Tramadol, Amitriptyline and Simvastatin for my cholesterol. It’s a wonder I don’t rattle when I walk! (That’s when I can walk).
My doctor now seems to think I have Fibromyalgia or M.E, but like many on this site I’m having to go through all the tests, which seems to take time. The docs been really good and does seem to have some knowledge and understanding of this condition, after all I’d never even heard of it until he said that he suspected that’s what was wrong with me.
Looking back before the RTA, I had been under a great deal of stress with work and personal life but being wrapped up in it all, I think the adrenalin must have kept me going. I can now see that I already had some of the symptoms, feeling low, tiredness all the time, lethargic, loss of memory, emotional (I hate to admit this but I could cry at the most stupid things)
I just feel rubbish all the time, my legs and arms are the worse, aching constantly and I’m unable to sleep properly due to the pain being so severe that I can’t get comfortable. I can’t walk for more than 20 metres without having to stop and rest.
To date I am now waiting for an appointment to see a rheumatologist after being discharged from Physiotherapy and seeing at Orthopaedic surgeon who both said that I needed to see a rheumatologist and that they suspect Fybro.
I can’t believe how my life has been turned upside down in such a short period of time, 12 months ago and had lots going for me and was really active with walking my 2 dogs and running a paranormal group had a great job and family life, now all my spare time is sat feeling sorry for myself in pain and tired.
Work has been really good with me and understand that I can’t get up sometimes in the morning so have allowed me to work flexi time to fit in when I feel well and have made loads of adjustments for me so I can carry on working.
My poor wife has been great and understands that I feel rubbish and knows when I’m having a really bad day. However the worse thing is that I feel such a fraud sometimes. I seem to have bad days, then I have what I call wave days, these are days when I’m up and down. One minute I feel fine and think thank god I’m cured, (you know like just after a cold) but then the next minute I’m in great pain again.
I seem to suffer from the pain in my legs constantly which effects my walking, but I feel worse when it’s in my arms too, I can’t even hold the phone to my head on my bad days, all I want to do is just lay down. I then get depressed which seems to make it worse, so I end up going to bed and writing the day off as a bad one.
Anyhow, I’ll sign off for now has I seemed to have gone on a bit, just glad to know that there are people who understand how I feel.
Richard
0 likes, 113 replies
paddy
Posted
I wish I knew why everything happens to us??? Must have been really bad at some stage to deserve all this hassle
Ray said this morning he wondered if we could have just one day without any problems? It`s really getting us both down now 
I`m struggling to cope physically and mentally :!: Electric all sorted now, it was a problem due to the fact house next door had been empty for a year, don`t really understand what happened.Lol
Glad you had a good weekend, Tess, I`m really envious of you going to Land`s End, we haven`t had a holiday for over 12yrs, since Ray had his heart attack, and we had promised ourselves we would go to Land`s End this summer. Suffice it to say with all the hassle we haven`t managed it :!:
Well must go and get Ray from physio now, so hope everyone else is ok and Di enjoy your rest at the cottage, you deserve it :!: Anyone know if Ses and Lindy are ok??
Linda
Squires
Posted
Good to hear you have got your electric sorted out.! That takes one worry away for you Linda.
Hope you do manage to get away somewhere soon. :lol:
Haven't heard anything from Lindy or Ses in a long time. :cry:
Got lots to do this week and can't get motivated. :cry:Claire back from holiday now and taken Tinkerbell the rabbit home. :lol:
Tess
Squires
Posted
Hope you are all doing ok today. I am still recovering from being away at the weekend with all the travelling. Trying to catch up ready for going away again on Monday. Can't seem to get motivated. :cry: Not been sleeping too well with Stu on nights.
Well hope you all have a good day!
Tess
richard1971
Posted
Got my rumo appointment through for a week on Friday, I've been ringing everyday for a cancellation, but nothing. I really can't cope with this much longer, the more I stress over it the worse I get.
Linda, I fully sympathise with you, my life seems like everything just goes wrong all the time. I think we must have done something bad in a previous life or something. Just glad you got your power back on.
We're having problems with our water at the moment, just had a massive water bill (metered) water company are saying it's right!!!! I beg to differ! I think we're paying for the street! £840 does anyone else pay anything like that? I wouldn't mind, but we're really carefull.
I really hope everyone else is OK?
Speak to you all soon.
A right fedup Richard
Squires
Posted
Sorry you are feeling really fed up! :cry: Know what you mean about with the doctor and think you are getting on his nerves. I had being going backward and forward with different things for over seven or eight years and not getting anyway. In fact one doctor at the surgery was so rude to me and said it was my age and go away and get on with it.
I was so distressed wrote to the surgery and complained. The practice manager more or less sided with the doctor concerned and didn't take it seriously. Cut a long story short I took it to the top the Ombudsman and because the Health Care Comission failed to ask a question that was relevant to the case he got away with being rude to me. I did however have the satisfaction of knowing I did make him worry about his behaviour towards. He is still at my doctors surgery but I never go to see him. :cry: I did however see a different doctor who took me seriously and was the one who got me sent to see Rheum. The rest is history. Going back to my complaint the doctor who was rude had written in my notes that I was obsessed with my joints. As I had complained was able to read my notes and what he had written about me. :cry:
If you find your doctor is not taking you seriously go see another one. :cry: You have the right to do that. If I hadn't I would still be going back and being a nuisance. :cry:
It is good you have heard about your appt for the rheum. I do hope they can finally let you know what is going on and it is fibro. It does help to know that there is a name for all the things you are feeling. You still do have to deal with the illness and learn to adjust and try and fit it in with your daily life. Bu it makes things better to know someone is taking you seriously. :lol:
We are not on a meter so don't know whether that is right for your bill to be that high. :cry: Is there anyway it can be checked?
Hang on in there Richard there is light at the end of the tunnel. Just try and take one day at a time. I wake up most mornings feeling rough and feel down and have to give myself a talking to and get motivated. :cry:
Always harder sleep wise for me when Stewart my husband is on nights as that always disturbs my sleep pattern.
Keep going and I am sure when you have seen Rheum you will hopefully feel something more is being done for you.
Tess
Lizy
Posted
Just popped in to let you all know things are not good for us at the moment my husband has been suspended from work and will most likely loose his job. Personality clash with his boss. :cry:
We are worrid about the fact we won't be able to pay our mortgage.
Richard that does sound a lot for your water is that for the whole year?
Our gas bills are always really high!!!!!
Wishing you all a better day.
Lizzy
Squires
Posted
So sorry to hear your news. I do hope things sort themselves out for you. What a worry that you could all do without. :cry:
Come and talk to us and get things off your chest if you are worried. Might not be able to do anything but at least we can listen.
Sophie my granddaughter who will be one on 30th of this month is now walking. She seems to small to be walking and her feet were not big enough for the first clarkes shoes. She has got a softer pair from Clarkes that Claire bought her for her birthday. We have given Amy some money to buy her some clothes as she has lots of toys. We are going away again Monday but will be back the day before her birthday. :lol:
I do hope everything gets sorted out Lizzy and will be thinking about you!
Hope everyone else is doing ok.
Tess
paddy
Posted
Oh Lizzy I`ve been down that road with my son, he was only 20 and took the blame for something the manager had taught him to do wrongly. The manager left the week before knowing it was going to be investigated :!: It all came out in the wash as they say, but dreadfully worrying for everyone, worse so in your case cause you have a family and household bills to worry about :cry: Hang in there it will all sort itself out in time. Like Tess said come on here and get it all off your chest, we can listen and sympathise if nothing else.
Richard, sorry you`re having a rough time of it, but you do have the right to see another doctor in the practice, and it should be with no questions asked :!: Hope things get sorted at your hospital appointment next week, it certainly does help when you have a name for what is wrong, I don`t know why but it`s a pyscological thing I think :!:
Really really exhausted today, so have had a lazy day as I have to go to Mum`s again tomorrow for a meeting with social services, I think I`m worrying about it deep down :!:
Well Tess enjoy your time at Land`s End and Sophie`s birthday.
Linda
Squires
Posted
Thanks we are hoping to spend sometime in Bude, Tintagel, both in Cornwall and then on to Lands End.
Yes can't believe Sophie is nearly a year old! The time has gone so quick.
Saw Molly the other day and she looked so grown up in her new uniform.
Hope all goes well for you tomorrow with your mum. Will be thinking about you. :lol:
Lizzy how are you feeling now. I hope things get sorted out soon for you.
Tess
SES
Posted
I havent been to good with personnel stufff, my daughter left home 14 weeks ago, and my ex has brainwashed her, I am devastated...........I have all sorts of bother tooo, doc said I have an enlarged uterus, and fibroids, but not doing anything as they are not severe enough...... and since Tuesday I have this dreadful cold like flu...... anyway just wanted to say hi to u allll and sorry I haven't spoke to u all, Love to u allll
Going freezing cold now after sweating cobbs before :cry: Hope u have alll had a better time of things xxxx
Hugs to you all xxxx
SES x
Squires
Posted
Good to see you back Ses and hope you feel a lot better soon. :lol:
Thought I would just pop on and see how everyone is doing.
Going to cornwall tomorrow and be away until week Tuesday and leaving really early so won't have time tomorrow to see how you all are.
I woke up really early this morning with a lot of pain in my back and legs and couldn't get back to sleep. :cry: My legs have been feeling really stiff in the mornings now with the cooler weather.
Lizzy I hope you are ok and your husband has been able to sort out something about his job.
Linda I hope you got on ok when you took your mum on Friday and it wasn't too upsetting for you. :cry:
Di I hope everything is ok with you. When do you go to your cottage for a break.
Richard I hope things are getting a bit better for you. Also that your rheum appt goes ok. I know it is a little way off but will be thinking about you.
Brian hope you are ok and do come back and talk to us all.
Well all take care and big hugs for you all.
Tess
Squires
Posted
Forgot to say I prtivate messaged Lindy! She is ok but have had a few personal things to deal with. She says hello to everyone and will hopefully be back on soon.
Tess
Squires
Posted
Hope you all keep ok and not in too much pain while I am away.
Will catch up with you all when I get back.
Been busy busy busy! Time for a rest now a nice roast dinner. Got to be up about 3.45am so we can leave at 4.00am. Will take us about six hours to get there. Going to try and do three and stop and have some breakfast and rest for couple of hours. Let some of the rush hour traffic clear and then do rest of journey. Don't think I shall last out three hours so have a stop in between no doubt.
Keep going everyone!
Tess
Lizy
Posted
Richard I see the Panthers won this weekend :lol: I hope you have had a good start to the week. :wink: Wish you all the best at your Rheumi appt. I know its hard but I try and set myself little treat/targets to get me through the week.
Tess I wish you a good break, hope the weather stays good for you.
Ses take care things do have a way of sorting themselves out. Sending you big huggs.
Linda I hope life is treating you a little better and that you are relaxing and pacing yourself :wink:
Di hope you are well. Has the pain eased a little?
I'm trying to collect together as much info as possible for my visit to the specialist in London next week.
Take care everyone.
Lizzy
paddy
Posted
Hope you`re all doing ok :!: Nice to hear from you Ses, sorry you`re having so many extra problems, you certainly don`t need them :!: I know that from my own experiences :!: I completely burnt myself out a few weeks ago trying to cope with other problems and it was dreadful :cry: Do take care and chat to us when you can, a problem shared is a problem halved and all that :!:
Hope all goes well with you appointment Richard and you get some answers to your problems. Lizzy thinking of you when you see your specialist, fingers crossed there is something that can be done to help. I find this whole pacing thing so difficult, no matter what I do I`m still exhausted :!: I guess that means I`m still trying to do too much :?: :?:
Well enjoying a rare hour on my own as Ray is at physio so just doing nothing :!:
Linda