New Member, Saying Hello.

drink lots of water take the meds which ones are you on?.....changes in barometric pressure more than .3 per day effect me....everyone is different good luck

Welcome to the group.  Everyone has different symptoms.  I don’t know why you have to have a second MRI.  They usually do this to rule out other issues.  You need to see a Neurologist for confirmation.  They will do balance testing, caloric testing.  Salt intake is huge most people use a 1500mg diet.  In the US they use Dyazide for daily treatment to control the fluid, they also use Valium when having a episode.  Serc is a medication that is used but not approved in the US because there is no evidence that it helps.  But several patients find this drug very helpful.  You need to find a good Dr that knows about Menieres- several do not understand this disease.  Unfortunately there is no cure but as time goes on, the episodes will lessen.  Hope this was helpful you just have to find what works for you.  Good luck

Hello Shafaqatali. I’m sorry to hear about your MM diagnosis. As someone else has mentioned in their reply, this disease is different for everyone, so what works for me may not for you; hence, you may need to subject yourself to some trial and error. I will say you need to consider diet seriously and it is not salt but sodium. The 1500mg number is something to aim for or lower. I only say this to rule it out completely. I didn’t take it seriously at first, but it did make a difference. Proc seed foods are loaded with sodium as is a lot of restaurant food. Water is important as well, and it helps to add exercise to your daily routine. Keep up posted and good luck. 

Hello Shafaqatali. I am in U.K. and betahistine is the medication prescribed here. I am currently on 24mg x 3 per day and I am almost symptom free apart from background tinnitus. I play sport several times a week and do a Pilates class as I am sure this helps maintain balance. Hopefully my medication will be reduced at some point but I’m relieved to be as normal as possible. I had hearing loss before diagnosis so controlling attacks is important to me to prevent further loss. As other members have mentioned you need to find an ent doctor who specialises in vestibular disorders and follow a low salt diet. Good luck. 

Hi Shafaqatali, I have had increasing problems with vertigo/nausea and also found Betahistine through these conversations. I was able to get a prescription filled in the US but had to have it compounded which is not covered by my insurance. I'm currently taking 16 mg 3X a day. It has made a world of difference for me. I have considerable loss of hearing in my left ear that has improved slightly since on betahistine. I have had the steroid shots in my ear but seemed to get worse after the 2nd and 3rd one. Good luck to you. This site has been a wonderful resource and source of encouragement for me as I hope it will be for you.

MRI confirmed there is no brain tumor, so doctor said, it must be MD. taking betahistine 3 times a day, feeling better now but noise is the ear is not going away, my doctor said to reduce the salt intake but did not say drink lot of water.

is there any way to check if that liquid in the inner ear has reduced to normal limit?

I did notice dehydration few months ago but ignored and stress as well but things are fine now.

I have also noticed that I got skin allergy after lawn mowing, I never had any allergy before, Is this something I should discuss with my GP?

Betahistine works for some people, not for me. Changing diet also works for some people - however at various times I have given up alcohol, cheese, chocolate, caffeine and cured meats, made zero difference for me! Lowering salt likewise no difference, but it may work for you.

I had my first vertigo attack in 1998, and the remained widely separated until 2008 when I was diagnosed. Now 20 years on from the initial attacks I've been going through months of severe vertigo, the worst it's ever been, and my usual drug cinnarizine seems to no longer work for me. I've had 3 steroid injections in my inner ear, and am back at ENT next week to discuss gentamicin injections.

However in the last 20 years there have been long periods (several years) where I have been totally vertigo free and had an absolutely normal life. All I can suggest is positive attitude, make sure all your friends know what happens when you have vertigo (so they're not alarmed if it happens), and keep regular ENT appointments - if it gets worse don't be afraid to keep asking for different treatment!