new page fibro friends x

Hi Di and Everyone!

Good to hear from you! I hope you got the rest of your Christmas shopping finished. :lol: It is really hard for us all with Fibro because to other people we look fine. If we had a broken leg they could see we were not. :cry: It is the same for my daughter with her crohns when she is ill no one can see all the inflammation in her stomach and bleeding and think that she is well. :cry:

It is difficult with going away and staying at other peoples houses. My trouble is not soo much the pain with the fibro its the irritable bowel that spoils it for me. :cry: That is why really if we can we will visit someone and stay over but take our motor home and I can relax more. :cry: We can only do that if there is enough room on someones drive or near their house lol :cry: Also I feel like not going out when I am feeling really tired and wonder how I will get through the evening before wanting to come home and sleep.

Well I hope you have a restful day tomorrow Di after your shopping. :lol:

Ses I do hope you and Ethan are feeling a bit better and get on ok on Friday. Sinnusitis isn't very pleasant as the headache is horrible and you feel so sick. Thats how I feel when I get it. Nothing seems to take it away. :cry:

Keep Smiling All :lol:

Love Tess x x

hi all my good friends

thanks for replying tess, thats good u have motor home at least u can get out and about... i have spent all morning crying.. after my shopping yesterday(although i felt ill when out shopping) i came home and was really sick had to go to bed..i have woke up this morning and i feel i really dizzy..i called for doc app but cant get one.. so doc called and said it was a virus.. it has got me so upset.. my blood pressure was so high on fri that doc put me on blood pressure tablets and i told her that, and imfeeling the wooshing noise in my head again today and feel so dizzy even lying down. its one week to christmas and im dreading it im suppose to be going to my sisters for dinner and i just hope im ok for my familys sake.. sorry for feeling sorry for myself folks but i really do feel so unwell...

hope ur all well.. good luck tom at doc ses xx di xx

Hi Di and everyone,

Sorry you are feeling so awful, Di, I have high blood pressure too and when I was diagnosed doc said if meds were started to high it made things worse. So had to go really slow and biuld dose up. Also the first med I had made me really sick and dizzy and had to be changed. So don`t let them fob you off I know it`s hard when you feel so rough to find the energy to have a fight with them but do try and see someone before christmas. Worrying about how you`re going to cope won`t help either.

It`s when I talk to you and Ses and hear how you suffer, I realise that although I sometimes feel really sorry for myself I don`t suffer as much as you two do. I have to say though that I think that has partly something to do with having a good GP. Thank God :!: I don`t know how I would cope, with all Ray`s problems if we didn`t :!:

Well, Ses I hope your doc`s app went ok today and that you and little Ethan are on the mend. We have so much to cope with with this condition that colds and things like that are just too much to manage on top of everything else.

Feeling really stiff today and pains in my back (that`s where the fibro started two years ago) Like you Di, I am thinking how will I cope with christmas :!:

well take care all, talk later

Love Linda

Hi Everyone!

Well my left ankle has been playing up all day today! Feels really sore to walk on. Not sure what is going on with it. :lol: Feel really sore today as well. Sorry to hear Di you are feeling so rubbish. I do hope you will be ok to go to your sisters for Christmas. Try and remain positive and will be thinking about you. :lol:

Well Linda I hope your stiffness doesn't get you down too much. :cry:

Hope you got on a doctor's ok today Ses and are feeling a bit better both of you now.

Well think I am just about ready for Christmas now. Just got to try and do some ironing tomorrow.

Hope everyone has a good night sleep.

Love Tess x x

hi tess and linda

thanks so much for u replying to me.. i got my husband to come up and talk with me tonight and i broke my heart over how my life is now. i feel i have not got much of a life.. can i ask u all........... do u think i should maybe stop all my tablets( pain killers ect) to see if its side effects im having, i told my husband i would rather be dead than stay like this forever so i am now just clucting at straws to see what will help.. but i do now feel better getting it all off my chest with him. im lying here in bed on the laptop after getting my food shop off line for tomorrow as i know im having some sort of flare up at the moment .. i told hubby i felt so alone in this illness and he needs to listen to me more even if he sees it as me moaning, i look at my family and see how this illness effects them and thats where i start to get all emotional..

on another note.. does anyone know how u go about getting some sort of home help or will i have to do it myself and pay..or can the doc put u forward i really feel we would all benefit as a family if i get additional help.. lots of luv.. di xx

Hi Di & Everyone!

It was good you could sit down and talk to your husband openly about how you are feeling. That is a good start. :lol:

I personally think sometimes taking so many different tablets the side effects are worse than the original illness. I only take pain tablets when I really need them and ampytripline for the sleep pattern. They are the only two I take for the Fibro :cry: I don't know how much pain you are in as we are all different and so wouldn't know how much pain relief you need to take to make you feel better. You could try and leave off some pain tabs and give it a try and see how you feel. I wouldn't stop any antidepressants tabs you take. Or if you do you need to come off them really slowly or you will experience some horrible side effects. :cry: I would not stop any other tablets you take for other conditions other than fibro. You should consult your dr first. Your pain tabs should be ok to cut back on or stop.

Sorry Di can't help you with your other question as can't advise you on that one. Something I might need to know myself one day. :cry: I think if Ses sees your question she would possibly know. :lol:

I feel quite tired today but never slept very well overnight. My wrists and ankles have been feeling really bad over the last few days.

Well take care and hope I have helped you a little. :lol:

Love Tess x x

Hi All,

Sorry to hear your`re feeling so down Di. As Tess said, its not advisable to stop taking any antidepressants....ur mood will hit the deck very quickly. I think it would be a good idea to speak with ur doctor about reducing other meds (painkillers). Particularly if u feel they aren`t helping much.

Im not sure about the home help thing....but, I think u may have to be referred via social services. Again, speak to ur doctor, he may be able to refer u.

Done a little more shopping today whilst waiting on Fergus (dog) getting his hairdo... :lol: Just the dreaded food shop to do now.

Tess, I hope ur not hurting too much.

SES, hope ur all feeling better.

Take Care Everyone

Lindy...x

Hi Di, tess and everyone,

Di have you had an assessment of your needs by an Occupational Therapist? You don`t need a doctors referal anymore for this. You should find their number under your local social services, ours here is listed under the cambridgeshire county council website. They will come and visit and assess all your needs, for you to be able to deal with everyday things, like stairs, bathing, if you can reach things in the kitchen, in fact you tell them everything you have trouble with. My GP suggested I contact them because I can`t get into the bath or lift saucepans and things. My husband has had several assessments over the years. You may find there is a waiting list, but they will probably answer some of your queries over the phone.

I`m still very stiff and tired probably been doing too much :!: Lol

Well Ses hope you are feeling better today, and that you ankles and wrists are not too bad Tess. Hope everyone is able to get some rest and is not in too much pain.

Love Linda

Good morning to you all. I am sorry to read that you are struggling in various ways but don't you find it is the time of year. Everything gets worse because of the extra demands on us in addition to our everyday routine.

I went to the ME clinic yesterday and the consultant was not happy with me. I have had blood tests for auto immune disorders and I have to go for nerve conduction tests to rule out Carpal Tunnel and see why my brain is not picking up messages from my hands. He also agrees with my GP and Chiropractor that Fibromyalgia is also having a part to play. I have quite a few tender points.

I picked up Max Dog yesterday evening and I feel like I have red hot rods through my wrists today so this is going to be it for my PC use for a day or two.

I will pop in and see how you all are again before Christmas.

Can I just add, if you are fortunate enough to get DLA, do try and budget for a cleaner out of it. I have one fortnightly and justify it because the DLA is there to help me and this really helps. She just does the heavy stuff that I cannot do - hoovering, bathroom, changing beds, floors.

I cannot relax if the house is mucky, and if I cannot do it I feel even worse. Not only does Becky keep the house clean, the fact that she is coming helps me to relax mentally as well.

alicia... thats what i need just someone i know can come in and do the stuff i find really hard.. did u employ her on ur own?

im not house proud but i do like to have my house in some sort of order and because of this illness my standards have had to drop but i feel if i had someone in now and again i could cope with the guilt of not having my husband come in from a 12 hour shift and do housework..

hope ses is ok not heard from u in a while.. how did the doc go?

well my headache has lifted a bit today so im now going up to santas grotto(my bedroom floor ) lol to sort out all the parcels think i will put my mp3 player on and sing till i cant anymore lol...

so once again my good friends thanks for being in my life xx

luv di xx

Diane, I was walking my little dog one afternoon and I saw this car outside a house with 'DOmestic Cleaning' and the name and phone number. As I was typing it into my mobile phone this lady came out of the house and I had a chat with her. she came round to see what I needed doing and I have had her for about 6 months now. I pay her £27 a time and she comes once a fortnight. You can probably locate similar services through your local free newspaper. I have seen quite a few in ours. :D Good luck with that.

HI there, Di, Tess, Linda, Lindy, Alicia and everyone else xxxxx

Thank you all so much for you thinking about me...... I have felt so sickly and the headache is put my concentration in tatters due to the Sinusitis....... my right hands gone numb and so I am going to have to type with one hand........ Ethan has a chest infection so we are both on anti-biotics hopefully we both will have finished them by christmas day????

Well Di sweetheart, I had loads of side effects with the meds.........my breathing was effected I felt totally like crap more so on the tablets as I did without them......... anti-inflammatories seem to affect me too, so I came off them along with the amitryptline........ the only thing though with the amitryptline you get horrible side effects coming off them even though I did it slowly...... very nauseous I can recall anyway......... now I take the lyrica in a morning and a night and tramacet through the day (due to Tramdol being stronger and having a two year old) and tramadol at night........ the only thing now though I feel these give me no effect and I have started with ibuleve gel on my OA effected areas....... the pain does not go away at all and yes it gets me down a lot of time but I do recall feeling a bit better emotionally as I just except the pain is there and I have kind of excepted it......... strange I know, but it is the only way to cope to except it!!!! I do honestly think though the amount of tablet I was on would not be good as surely they would all interact with one another....... it seems logical to me!!!! Do ask your doctors advice though Di xxxx

I do hope you are feeling better Tess with your ankle, have you tried the Ibuleve gel...... it does help a little :? Irritable bowel yeah I have that too, I have to be so careful with what I eat as if I eat something too rich I am very nauseous and in trouble, so I would be bothered about visiting over christmas due to this also :roll: Yeah the Sinusitis is awful no matter what tablets you take to get rid of the headache nothing shifts it........ doctor wouldn't give me Sudafed due to my meds I am on, so she gave me the anti-biotics to clear it up so I am so hoping these work????

I do hope Linda Alicia and Lindy are also having a better day too xxxxxx

[color=red:cab54f5401][size=18:cab54f5401]Bless you all and I hope we all have a lovely christmas by a warm loving house full of loved ones that helps us forget our pain xxxxxxx[/size:cab54f5401][/color:cab54f5401]

Hi Ses and everyone,

So good to see you back here Ses, have been wondering how you were. Hope you and little Ethan feel well enough to enjoy Christmas, he must be getting excited :D

I too felt the meds were working against each other, certainly the HRT, boy did that take some getting off of :!: I don`t take the anti inflamatories either, only for a few days if I have a very bad falre up. Both my GP and the pharmacist said not to take Tramadol with amitriptylene, don`t know why :?: So I`ve never had Tramadol. I feel so much better since changing my anti-depressant in August, the Mirtazapine, certainly didn`t suit me or was working against something else.

Hope you are feeling better today Di, you certainly have a rough time of it, and like Ses you have a family to look after. Don`t think I`d cope with this condition and children, it`s hard enough looking after Ray :!:

Hope Tess and everyone else is coping with the Fibro and Christmas.

Love Linda

Bless you linda xxxx,

I am getting my hair done tomorrow as my mum is paying for it for my christmas treat....... I never pamper myself so I am looking forward to this especially when I have felt like cr*p!!!! Ethan is so hard work too and I was in tears today as Mike had gone to work at 5 and as his shifts have changed he is so much hard work after tea time......... he is swearing too which is so upsetting he calls everyone a stupid bitch and I have been trying to tell him to word it different like stupid girl/boy......... I think this is due to the girls having words with each other!!!!! Anyway I am ok I suppose but I was very upset by him today...... I think it maybe due to the cold weather not being able to play out in the garden and so he is kind of frustrated.......... You are a credit to yourself Linda, looking after yourself and Ray at the same time, it must be so much hard work for you too, most of the time Ethan goes to bed at 8....... on a good day........ so we do get a relief as such, just at the moment the terrible tows have hit big time!!!!! I am excited still though for santa coming!!!!!

Bless you all and sweet dreams everyone, I do hope everyone has a good night sleep too xxxxxxx

Take care x