new page fibro friends x

Hi Linda & Everyone

We do get some strange things with this fibro. My right knee was hurting really bad last night and I couldn't walk on it very well. Overnight every time I turned over in bed my knee hurt. It hurt when I woke up in the morning but then suddenly got better lol. :roll:

Still need to take all my decorations down yet. Got the boxes out ready today ready to put them away. Then Amy, Molly and Sophie came and was too late then as was time for tea. Will try and do some tomorrow and have them all down by Monday. :lol: My son has another week at home and then back to Uni this time next week.

Well hope everyone else is ok today.

Love Tess x x

Hi there my dear friends xxx

Hi Di, I do know what you mean bout your shoulder Di as I have had no full usage of my left arm/shoulder since last week and is getting me down!!! I forced myself to get the decorations down today but did a bit at a time as the window I did in the daytime due to the snow effect and I got awful nerve kind of pains when I was cleaning the window it was scary...... I can hardly move, bend down but this has been like this for days due to spine pain and hip pain???? lucky I only have to use that much elbow grease once a year lol, we took the tree down after the lottery but the ceiling decoration are getting taken down tomorrow as it has got too late due to all the clutter!!!! my tree is in about 50 parts so took ages and that was before the baubles and tinsel!!!!! :roll: I have not heard form my appeal yet and I am so wondering how long it takes after it has been picked up by the commissioner to decide on an appeal date, I hope you have all your consultant reports sent to them and all additional information that may help your case, as it has to be seven days before your appeal date xxxxx????

Yeah Linda I know what you mean about your hands going numb whilst on the PC....... I am having a bad flare up at the moment and every part of my body is painful it seems....... I am off to the doctors again next week to see the doctor about my liver function test as it is always raised including my sed rate????? I don't blame you hun getting the cleaning done tomorrow as Mike pulled the sofa's out and mopped behind them and there was lego and all sorts been kicked under it..... thanks to Ethan :lol: so hard to keep it tidy and clean with a 3 year old and it is amazing how it gets like that as it was last pulled out xmas eve??? obviously the laminate floor was done more or less every other day since but so ashamed it was like that today??? we could definitely do with some home help???

So nice to hear you had visitors Tess xxx and your Son is still home, hopefully helping you xxxx Yeah as we were cleaning the window my mum in law phoned checking on how we were and I was so determined to get the windows cleaned as I was sick of looking at them........ so I was stalled as she hasn't been to well as she has got what I had I think on xmas day???? I was so fed up as I haven't been right for weeks and I haven't eve been to my mums house due to not having my own transport and relying on taxi's which we cannot afford?? luckily my dad has a car and we are going to see him tomorrow which will be a nice change from these four walls!!!!! I do hope you get things sorted out by Monday Tess as it does kind of get you wound up if things are not done, I get myself in a pickle alot of the time...... even though we are to pace ourselves........ My brother is is doing his master degree in accountancy in Preston Uni and as he went back to his digs today I won't see him tomorrow....... I just wish I could have followed my dreams in career in the financial industry, so gets me down, but my memory is kind of useless the joys of Fibro eh???

Anyway my dear friends I do hope you all are having a good day? I do hope Helen is ok too as we haven't heard from her for sometime? Bless you all and gentle hugs to everyone xxxx

Hi Ses

Finally got all decorations down now. Just got Christmas Tree to take down and outside lights. Left them up for one more day for Stewart as he really likes the lights. :lol:

My son is also at Preston Uni Ses and he is in his second year doing tv/film production. He is going to do an extra year and go into teaching. If he went straight into tv film production industry would start at the bottom and be on a low pay. So decided to go into teaching first and then use his degree in tv/film later on. Wants to get some money together first to pay off loan and move either to Preston/Manchester.

I hope you had a good day visiting your Dad.

Well take care everyone.

Love Tess x x

HI Tess,

Yeah it was lovely seeing my dad and step mum....... I had a lovely dinner there, so was nice...... we got home and Mike was taken to work and we still haven't got the ceiling decorations down so I think we will be doing it tomorrow now as there is no way I can do it so when Mike is in the mood he said he will do it tomorrow and so the boxes are on the landing ready to go back in the loft!!!!

Well I am in so much pain again I had to put a brave face on at my dads as I cannot lean forward and as I got up from the sofa I didn't know whether I should laugh or cry, so I've just dosed myself up with the meds again which are not obviously working!!!! but what can one do!!!! sit here with a hot water bottle continuously!!!!

I do hope your son becomes another Stephen Spielsberg and is able to treat his mum with all sorts of luxuries and so you are pampered and well looked after :lol: anyway hun I do hope you are having a better day than me???

love and hugs xxxx

Hi Ses

I do feel sorry for you being in pain all the while :cry: It seems never ending for you with you having to struggle everyday. Got all decorations

sorted now. Just about got finished when Amy arrived with the girls.

Molly back at school tomorrow.

Lets hope Chris does become a film maker and I can dream of all the luxuries that come with it. If not will have to win on the lottery lol. :lol:

Well take care and get plenty of rest.

Love Tess x x

Hi, Ses, Tess and everyone

What a lovely thought, Tess, that your son might become a film maker :!: Hope he would be famous too :!: Sorry your cold is still not better, some of these bugs are taking an age to clear this winter, not good for us at all.

Ses, I know what you mean about putting a brave face on things, I do that when I visit my Mum, and then take days to recover :!: I think I`m still recovering from xmas and new year, I`ve slept every afternoon for the past week, and am still exhausted all the time. When I got up this morning I could hardly move for about two hours, I was so stiff. I think thats the worst its ever been of a morning, good job we had no apointments today :!:

Its two years this week since I was first really ill, leading up to my diagnosis in the April. I still don`t think I`ve really accepted that I am ill, I still think at times that its all in the mind and if I really made an effort I could get myself mobile and back to normal. Then I try to do something that a few years ago I would have done easily, and I realise I can`t, so then I think that It`s not normal. I still feel really muddled about it all, and I`m not sure if this last paragraph has made sense :!: lol

Well take care everyone

Love Linda

hi linda

yes yes yes ur last paragraph did make sense lol... i feel like that most days and still feel i cant understand why am ill.. i try to do things to push myself like things i did before and then realise its not going to be.. but i dont have answers to why we are like this, i have lost a lot of faith in things to so dont think that helps..

Has anyone heard from Helen bit worried cause havent seen her on, its not like her to have a post on..

Hope ses, lindy and tess are all well today and not suffering to much with all this cold weather...

luv.. di xx

Hi Everyone,

I hope this finds you all ok and not in too much pain.

Its back to reality with a bang for me....back to the grind of work..

Im with u on the numb hands malarky....ditto.... :roll: still got a painful right arm...but not much else...thank the lord.

Weather is bitterly cold. I guess its the same all over. Was reading online that the big freeze is to continue. (Thank goodness for central heating.. :lol:

Take Care All,

Catch up soon

Lindy..x

Hi Lindy, Linda & Di

Yes it does take a lot of time for us to get use to this fibro thingy. We have to just do what we can now. :cry: I must admit I do think like you Linda and Di what I was like before this illness. :cry: Can't go back unfortunately so have to do what we can now and take each day as it comes. :lol: Although it is really frustrating at times. :cry:

My cold is on the mend now but not started back on my exercises yet! Going to get back into them on Monday when my son is back at Uni. Was going to do them at the weekend but got my son and his fiancee staying for a couple of nights. :lol:

Been really cold here last few days and have had bad pains in my knuckles on my hands and knees hurting. :cry:

Well hope everyone else is doing ok. Hope you now have your decorations down Ses. :lol:

Love Tess x x

hi all my good friends

Well i got up this morning had my cup of t and thought...oh i feel ok today hope its a good day then with a bang i suddenly felt so fatigued and then the pain started all over so had to go back to bed.. got up around 2 and have been on the couch since(as i still want to be part of my families lifes), its ok saying we have to get used to this illness but im sorry i cant, d dont know what i can do about it or if i will ever get used to it, i still wake up everyday hoping that i can have a good day and be \"normal\" for a day and remeber how i used to be... got my hot water over my left arm and another on my left hip..oh what a life eh....

anyway i will stop moaning and hope tht none of my good friends is suffering like i am today..

luv di xx

HI there my dear friends .....

Well I have been in pain from head to toe and dito Linda [quote:3f1ac69a29]its two years this week since I was first really ill, leading up to my diagnosis in the April. I still don`t think I`ve really accepted that I am ill, I still think at times that its all in the mind and if I really made an effort I could get myself mobile and back to normal. Then I try to do something that a few years ago I would have done easily, and I realize I can`t, so then I think that It`s not normal. I still feel really muddled about it all, and I`m not sure if this last paragraph has made sense Exclamation lol

[/quote:3f1ac69a29] I know exactly what you mean I cant even go to the local shop with out feeling pain later!!!!!

Thanks for your well wishes Tess, unfortunately I am feeling no better and so i am off to see the Doctor Thursday, I may ask if I can get a tens machine as none of the meds are working??? I do hope your cold has gone now hun and enjoying the peace and quiet :lol:

Well Di I feel I am on overdrive as I am unable to goto bed due to the little one...... I feel like my whole body has been in a boxing ring or something, just hoping the doctor can help a little????

I do hope everyone is having a better day than me, I hope Helen is ok too as we have not heard form her xxxxx

Hugs xxxx

awww ses, i hate it when someone is very sore and it seems ur struggling at the moment.. i was awake most of the night with burning in my feet and left legs but i had a new symptom last night, it was pins and needles right down my left leg but mostly affecting the bottom half from my knee down it was a very strange feeling and i wasnt even leaning on it to have caused it to be like that...

i see myself luckier than u ses because i dont have a little one to look after and can if i need to go to bed but its the guilt i feel when i do as i hate the look on my families face when they see im in pain... phoned down to doc this morning to see if he has sent away for my steriod injection he said i have to get from the rhymatolidgy but he just sent it away today..oh aye so he did eh... so god knows how long i will have to waitll

ses i use a tens machine it doesnt take the pain away completly but just makes u think of the pain the machine is giving u so i guess with it being a different kind of pain it does work then so give it a go and see how u feel...

hope everyone else is coping with this cold weather and not in to much pain.. di xx

why was my post have to be approved by a moderator...anyone know?

anyway bad night again last night had to wake hubby up to go and get me pain killers as i was that sore i couldnt get out of bed.. so im up this morning covered in deep heat cream and loaded with pain killers.....

What do u all use to help with the pain?? any suggestions would help.. is anyone on that new drug..lyrica (ses did u say u tried it?) im on tramadol diclofenic and paracetomol but i now find they are not working.....

hope u all are well today and not in as much pain as i am in...

luv and hugs di xx

Unfortunately Diane, you started the post of with awww .... the system picked it up as a web address

OOOOOPPPPPPPPPs Di xxxx

Ah Well I went to the doctor today and he said I have a raised liver function test once again and he is sending me to a Specialist Rhuemotologist as he mentioned Autoimmune Hepaitis and so he is making sure that I am checked properly as my liver function has been raised for ages along with the sed rate., and this Consultant can look into everything ..... So I have been made an appointment for next month, with the main doctor thankfully........ last time I saw this obnoxious person and she said I was over weight and had mechanical back strain........ but hey I am still in pain all over from head to toe...... and hey its still not just in my back...... I saw her in 2006 :twisted:

Anyway I did mention the tens machine and I am going to have to see about buying one....... but until I can afford to get my boiler fixed this doesn't look likely!!!! Phoned a corgi Guy whom I know and he said I could be paying anything from £70 to £260 if it's the part he thinks it is, as I explained I googled the problem previously...... my heating works but the hot water doesn't flow fluently as it should I am lucky if I get hot water for about one minute and then it goes luke warm???? He is a genuine guy so I know he knows what he is talking about he said for instance one part could be £30 and another could be £220 so just what I need after Christmas!!!!

I do everyone is having a better day than me, hugs sent to all my dear friends xxxxxxx Di, Tess, Linda, Lindy, Helen (I hope she is ok) and everyone else Hugs to you Chimera too xxxx