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Hi Linda, Ses and Everyone!

Well hope you feeling a bit better soon Ses. Hi Linda good to hear Ray is feeling a lot calmer now! Must make you feel better. I know how you feel with lack of energy. Feel like I am working on half power. :cry: Not too good at the moment with bad throat, full of cold and headache.

I am a bit confused at the moment. Its not too do with fibro but with my thyroid cancer. I went to a clinic eary in January this year 2008 where I didn't see my consultant but someone else. All was well and he discharged me from clinic with follow up appointments with my gp. I had been doing this. Then just before Christmas received a letter saying I have a clinic appointment on 16th January this year. Rang his secretary to find out what was happening as thought I had been discharged. She rang today and said I still need to see consultant as when you have thyroid cancer you have to be seen for life. I was led to believe that after 10 years you were discharged.

Now I need to go to the appointment and talk to the consultant who did my operation to see what is going on. Why was I discharged if you are suppose to go for life. It has worried me a little as recently had some thyroid bloods done and was told to take 150mg. Of course I don't mind going once a year but wouldn't you think with something like cancer they would get there facts right. Good job it is not long before I go. :cry:

Sorry about the moan but it does annoy me when you think you haven't got to go anymore and then told on the phone you have out of the blue.

It makes you feel a bit suspect as if they aren't telling you everything.

Well hope you get some rest Linda and recharge your batteries. Hope everyone else is ok.

Love Tess x x

hi tess and everyone

What a shock that must have been tess, its so annoying cause they play with ur mind and when ur ill u have plenty time to let that wander.. at least jan is coming fast so u can have a list of questions for them..

Well i hate this time of year but with the fibro its making it worse, im listening to family telling me there going to clean there houses and spring clean incase visitors arrive... i really wish i had there enegy to clean my house, and to greet visitors, im a bit down today even though i did sleep last night though didnt the night before so maybe im still tired physically and thats how i feel like this today..

My husband john has to work new year so is a 6pm till 4am tonight, sons are away partying so its just me and kerri (15) i would want to go to bed around 10 my normal time but she wants to wait and bring in the new year, it just makes me sad, one cause i dont have all my family round me and 2 cause i remember all my close loved ones that are no longer with me :cry: .happy new year to u all.. best wishes for 2009 xx di xx

Hi Di

Was a shock like you said when you are not feeling well anyway if plays on your mind. :cry: You are probably feeling down with lack of sleep as well. Don't worry to much about you cleaning the house as long as someone is there to help you that is important. :cry: You do miss it when the children are not around on New Years Eve. My son Chris has just gone off to Leicester and staying the night. Only just left but coming back in a min as forgot his towel :roll: My daughter invited us to her house for a party but with feeling not to well going to have night in on our own.

Happy New Year to you and all your family. Lets hope it is a lot less painful for us all next year. :lol:

Love Tess x x

Hi there everyone, my pc is having to see the doctor :lol: so I am on my hubby's while he is at work...... Luckily Mike may be able to fix it so I thought i would see how everyone is? xxx

What a shock for you Tess, bless you hun I bet you have been at your witts end xxx well luckily they are still keeping an eye on you to ensure you are getting the correct dosage....... as Thyroid treatment is, so that is why you have to continue with your Consultant as due to your cancer they do have to ensure your thyroxine is correctly taken xxx pretty rubbish they didn't explain things to you instead of you getting a shock in the post...... not at all professional when they told you were discharged!!!!!

Well Di xxx You are probably as Tess says fatigued and as Fibro effects us more so this time of the year with the cold weather do not worry about the house work xxx it will get done eventually xxxx when I am having a bad flair up I just put things away and straighten up I do not stress about it as it is not worth feeling like crap as we all know that if we do do things we feel it later and so I leave it until I feel better........ if it is getting you down ask your daughter if she could do a bit, I do, and she does when she knows I can't manage it!!!!

I do hope you are coping Linda too hun as you are probably fatigued due to the constant care of yourself and Ray xxxx do hope Ray is having an easier time too bless you both xxxxx

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[b:e9e51ae013][color=orange:e9e51ae013]ALL the best everyone and I am hoping 2009 is a good un hugs to you all xxxx[/color:e9e51ae013][/b:e9e51ae013][/size:e9e51ae013]

Hi Everyone!

Thanks for your support. Will let you know how it goes when I see consultant on 19th January. Going at long last as well to see about the tendons in my toes on 22nd January. Funny how all appointments seem to come so close together. They are both at different hospitals in Peterborough. Luckily Stewart is on rest days for both appointments so won't need to book any time off work to take me. :lol:

Still really full of cold and sore throat. Been sneezing non stop for the last few days. Had a takeaway last night as only Stewart and I here and watched couple of films. Did manage to stay awake in between sneezing the night away. :cry:

Well hope you all had a good New Year's Eve. :lol:

We want less pain and more good days in 2009! :lol:

Love Tess x x

[color=red:3fd8f2eb49][/color:3fd8f2eb49][color=red:3fd8f2eb49]HAPPY NEW YEAR EVERYONE [/color:3fd8f2eb49]:!:

Poor you Tess, what a shock it must have been. Sometimes I think we are just statistics to them, not people with real feelings :!: Hope all is well.

Di, I often talk about spring cleaning...... but that`s as far as it gets :!: I didn`t do any last year and it doesn`t look like I shall do much more this. When I finished work last easter I had this idea that when I was not working I would catch up with all the things I had got behind with :!: Well, thats all it was, an idea. I try to convince myself that its not a problem but it is, it worries me that I can`t look after my house etc as I want to. Just never seem to have the energy, as my dear old gran would have said, \"the heart is willing but the flesh is weak\" :!:

Hope you are ok Ses, and feeling better than you did before Xmas.

Love Linda

Hi Linda & Everyone!

Thanks Linda go see them on the 16th Jan will let you know how it goes. :lol: It is difficult when we can't do what we want around the house.

I get frustrated at times as well. :cry: Don't let it get you down too much.

I thought once I stopped looking after Molly would have lots more time to do things. Like you sometimes feel like doing them but haven't got the energy. Since I have had my cold the last few days my husband been looking after me and doing some jobs. He is back at work tomorrow but feel better than I did. Just keep sneezing every few mins. Don't mind that too much was worse the other day when had a bad headache as well. :cry: How did your daughter get on working in the hospital. Is she ok now as she wasn't well. :lol: My daughter was working as well but more on New Years eve and day.

Hope you are feeling a lot better now Ses and Ethan. I hope Ethan has a lovely birthday. Can't remember whether was tomorrow or on the 3rd Jan. Bet he is really excited. :lol:

Well hope every one else is ok tonight and take care.

Love Tess x x

hi linda,tess,ses and everyone

Well didnt sleep well at all last night pain in legs started feet started burning so i still saw the clock after 4am.

got up this morning and felt no to bad. but as the day has went on i have got grumpier and grumpier didnt have energy to cook dinner but felt forced into it so was that tired i could not eat any , but im not feeling really hungry but no energy to go and make something then there is the dishes so it all seems so much work... im sitting here with hot water bottle on hip and deep heat on left upper arm, im typing but im getting pains in my fingers so im going to go now...

hope all my good friends are feeling ok today, so sweet dreams folks..

di xx

HI there my dear friends......

Well Tess I do hope your cold subsides soon as additional ailments we do not need!!!!! I hope you are wraped up too making sure you can fight this xxxxxxx I am sitting with a hotwater bottle too Di it seems to be my only relief!!!! with the muscle rub I feel like I have been in a boxing ring today so fatigued too......... My Gp phoned me up on Monday to get an up to date liver function test as it is always high so I will be back at the doctors next week??? I had the blood test the next day so they must be concerned about them previoulsy as the last doctors ignored them..... makes me wondered if it is related to my raised sed rate??? does anyone else have blood readings showing inflammation in their sed rate and liver function abnomalities???

Thanks for asking Tess Ethan's birthday is 02/01/06 so he is three tomorrow!!! :lol: got no money so not having a party..... got a few discounted stuff from Woolworth's so that was good we spent £40 worth of stuff for £10 spiderman lighting slippers and shoes and three pairs of pants...... he is having a guitar and iggle piggle hat and scarf, Olivia bought him a sponge bob hat and scarf and he is getting an aeroplane off his grandparents not sure what else he is getting....... but he does seems to know that it is birthday somehow??? :lol: I just hope I am feeling less aching tomorrow for his birthday ???

Yeah I know what you mean Linda about ........

[quote:bef33fd909] had this idea that when I was not working I would catch up with all the things I had got behind with Exclamation Well, thats all it was, an idea. I try to convince myself that its not a problem but it is, it worries me that I can`t look after my house etc [/quote:bef33fd909] yeah you try to plan things and then wham you hit with the flu or your shoulder doesn't work or your hip is in so much pain and it goes on and on!!!! all we can do is take one day at a time and hope we will get it done eventually just harder when we have to care for ourselves and others??

Anyway everyone hip hip hurray for 2009 and I wish everyone a healthier year xxxx

Hi Ses, Tess and everyone,

[color=blue:6ac237e274]HAPPY BIRTHDAY ETHAN[/color:6ac237e274]

Things are not quite as bad money wise for us now kids are grown up Ses, but well remember their early years, when Ray had just had his accident. I made all ann`s clothes for several years by buying remnants of material :!: Had to be so..... careful.

Thanks, Tess, Ann does seem to be improving, just very fatigued :!: We can sympathise with that. lol Had a similar virus at begining of 2008, finished up having a brain scan and all sorts, but concluded it was post viral fatigue, so guess its a kind of relapse.

Well, keep getting backache, not had that before, and wiered pains in my fingers, when I pick things up etc. Going to Matalan today with son and daughter, but can at least sit in car and leave them to it if I get tired :!:

take care all

Love Linda

Hi Everyone,

Id like to wish everyone a good and prospeous 2009!!

Tess, sorry to hear ur not feeling too great. My cold is just starting to clear - had it since Christmas Eve. But, to my joy, I got a diarrhoea bug 3 days ago... :lol: woohoo....aint I the lucky one... Not to worry.

I hope all goes well with ur hospital appt. Im sure it will.

SES, I hope ur little Ethan has a good birthday and ur feeling better. Nothing worse when ur feeling crap and trying to put on a brave face. Connor`s birthday is next month, he`ll be 15. Where does the time go huh? I remember his 3rd birthday.. Im sure Ethan will be happy enough with u all around him....don`t worry bout a party. I totally here u on the money thing.....January is a scunner of a month. All the bills come in... :evil: Things are so much better for me financially since Ian and I got together...what a difference it makes. But, I was on m own for 10 years....struggling....robbing Peter to pay Paul month to month. Gets u down at times.

Di, I hope ur feeling a little better today and not so sore.

Linda, hope u and Ray are well and glad his tablets seem to be helping. Enjoy ur shopping trip.

Oh, I got my appt in for hospital...it was initially for the 23rd Jan....but as I have to teach that day...I had to change it to the 13th Feb..(Friday the 13th.. :shock: hope thats not a sign... :lol: ) Unfortunately the classes I teach can`t be rescheduled....and no one else can take them for me. Hey ho....another 2 weeks won`t make a difference. I have to say Ive not been too bad actually. The worst thing for me is my right arm....the pain that shoots up it into my elbow is horrendous at times. And it feels like I don`t have any strength in it....even to lift the kettle is painful. Sleep pattern is still a bit disturbed....but not as bad as it was. So, we`ll see what the consultant says in Feb.

Take Care All

Catch up soon.

Lindy...x

Hi Ses, Linda, Lindy, Di & Everyone!

Thanks Ses & Lindy sure will get over this cold soon. Not been sneezing too much today so far. Just got my eye dripping for no apparent reason at the mo and pains in my right knee. Yes I hope you are taking it day by day Di and don't let things get on top of you. :cry:

Happy Birthday to Ethan and hope he has had a lovely day so far. Don't worry about a party I am sure he will be happy with his lovely gifts from you all. It is so difficult when his birthday is so close after Christmas. We can't plan these things so have to go along with them. :lol:

My sed tests never show any inflammation when I have them done. Even though I have swelling around both knees and ankles Ses. Linda it is really weird the funny pains we suddenly get and disappear as quick. I had that we my knee the other morning couldn't kneel on it to get into bed as hurt so much. Then a few hours later it had disappeared. :cry: Pleased to hear your daughter Ann is improving. At least today you don't have to drive and can rest a little more while you are out.

Its good you got your appointment with the consultant Lindy on 13th Feb Friday. Are you superstituous! Not sure if spelt that right. Hope it all goes well for you. I have appointment with physio on that day and he asked if I still wanted to go being friday 13th. I said I would still go. I must admit I won't walk under a ladder and am forever touching wood. I even do it when I am in with the doctor lol. :roll:

Well keep smiling everyone!

Love Tess x x

Hi there Tess, Linda, Lindy, Di and everyone else xxxx

I am so sorry that your daughter hasn't been too well Linda, I must have been braindead or something and mis read the posting???? Hope she picks up soon as that is all you need to attend with, as you have enough to cope with hun xxxx I am so mentally exhausted so please excuse me xxxxx I do hope Ray is feeling much calmer and you are relaxing better, enabling you to cope with your pain too xxxx thanks so much for your well wishes for Ethan along with everyone else, we had a lovely day...... he is rigged out in clothes and shoes and he has got night garden set and he was happy to blow the 3 candle, playing his guitar and making lots of noise!!!!!

Sorry to hear you haven't been to god too Lindy, as nothing worse than that this time, being unable to eat the good grub!!!! my shoulder is in agony and my arm feels as there is no strength too..... sometimes I wake up with no feeling..... so I kind of understand....... my flare up of fibro is playing havoc at the moment I can't lean forward too as my spine is having a bad day too, so sick and tired of one thing after another!!!!! :twisted:

I do hope you are ok Tess, hopefully you r cold will come to an end shortly xxxxx Blood tests are very unpredictable I think so who knows what it all means, I will ask the doctor next week????

I do hope Di is ok too xxxx

Lots of hugs and kisses

xxxx

hi lindy,ses,tess and linda

just catching up on ur posts, i was thinking about ethan ses and what u said about no money, im like that this year and my daughter needs new school stuff u feel guilty when u cant provide for ur kids but i always think back to when i was young and although i know my parents didnt have much money i can only really remember birthdays from when i was about 12 lol..

i hope everyone is not in so much pain, im feeling the effects from taken down the tree and decorations today.

I tried to find out about when i can get a steriod injection again in my left arm/shoulder but been told i need to go back to the rhymatolidgy dept so will have to wait for app for that to, but im getting less and less use out of it. I have started to worry about my appeal again which is on the 26th jan, i just feel we deseve some reconition for our suffering.. anyway. less moaning and i hope ur all well

luv di xx

Hi Di, Ses, Tess and everyone,

Di I know just how you feel, started taking my decorations down and I`m having to do it a bit at a time and rest in between :!:

Thanks ses and tess for your thoughts about ann, she seems to finally be recovering. Has got four days off work now, so is giving her room a good tidy. A bit like us though she`s doing some each day.

Don`t we get some funny things with this fybro :?: My right hand has started going really cold when I use the computer mouse, wierd or what :!:

Well back to the decorations only got the tree left to pack away, cleaning will have to wait until the morning.

Hope everyone is ok

Love Linda