New to AF and worried
Posted , 8 users are following.
Hi
I have recently been diagnosed with AF after suffering with it for quite some time. It was my GP that insisted the hospital redo some tests. I was put on Adizem and Warfarin. I had a bad reaction with the warfarin and ended up in hospital with a really fast heart rate!!
They changed the warfarin to Apixaban. I was ok on this for a while then I started to get really bad tummy pains and my stools became black. I stopped the Apixaban. I saw my Cardiologist last Monday for the first time and felt as if I was being a pest and that he had better things to do. The whole appointment was about 7 minutes. He went through my meds and told me about the blood thinners. He went on to say that he wants Jane to see me to see if he should do an Ablation. Who was Jane? not a clue!. The ablation I had heard of but not sure exactly what it is about. He suggested I look on his 'youtube' for an explanation. I asked how long this would take, who was Jane etc and yes you guessed it look on his 'youtube' end of appointment. Sorry I needed to get that off my chest!!!!!!
At the moment reacting to the Adizem, really bad bloating, gone up a dress size in 5 weeks, unable to get a good nights sleep and breathless. Just looking for support really!. Thanks for listening
0 likes, 20 replies
Guest Denny
Posted
I am so sorry for your experiences. Stay with a good support group. Things will get better. Many people who have an ablation really are satisfied with it. There are those of us who are not candidates for it and must push through it more. Stay in touch. Also heath unlocked has a very active a-Fib site.
Denny Guest
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derek76 Denny
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Was he a cardiologist or an EP ( electrophysiologist ). EP's specialise in heart rhythm disorders. There are three types of ablation did he say which one for you to have. .
Denny derek76
Posted
He is a cardiologist so judging by what people have said Jane could possibly be a EP? And no I wasn't aware of different ablutions. The only place I can look for this is on his YouTube. Perhaps worth a look? Thank you
suzanne48640 Denny
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Denny suzanne48640
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progtodd Denny
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Add others have already said, see an EP! I had really bad afib and had a cryo-ablation two years ago and couldn't be happier! Good luck!
Denny progtodd
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suzanne48640 Denny
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I've had two ablations, the first one not successful but the second one was. Remember that even if your first one isn't successful, the success rate of it (no matter) how small is cumulative towards the next ablation. You are never cured of a-fib, but you can hope to go into remission and get off most of your meds (possibly with the exception of blood thinner depending on your CHADS2 score). Remission is different for everyone -- sometimes a week, a month, years or more. Meds ultimately stop working and the longer you have afib the harder it is to get you into remission so it is important for you to see the EP and have the surgery asap if you are a candidate for it. Even if 'Jane" is an EP, you still need to get a new cardio doc because he will be responsible for your long term after after the EP is finished. Good luck.
ranijarar Denny
Posted
Sorry about your experience with these medicines.. Ablation is the good option in AF, I did radeo frecuncey ablation when I was 34 years not succeed again I had AF after 2 year ..then again in 2016 when I was 42 years I did Creo ablation, until now Im good AF not recorded I got sometimes only fast sinus rythum ... no heart medicines or blood thinner only crestor 10..
For blood thinner if apixaban was not good with you go for Aspirin or Jaspirin ..
Thanks with Regards
Rani
Denny ranijarar
Posted
i think perhaps Ablation may be a good option if I am a good enough candidate for it. Unfortunately I have had an ulcer (not the bacteria type) and have a really sensitive tummy. Most meds upset me so I do struggle. Even my thyroxine I have to take in two doses during the day. At the moment I am not taking anything so really need to look into that a bit more.
jason1098 ranijarar
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We are all delighted at your recovery however your experience of treatment is only relevant to you, there are so many variables involved that no two patients will be the same.
To become a Cardiologist takes at least 5 years at Medical School followed by a further eight years of post graduation specialisation training followed by at least 5 years as a doctor in a cardiology unit so we are looking at anything up to 18 or more years of training.
This training is what enables them to prescribe Apixaban and they should be the ones that are listened to not random blokes on the internet making stupid suggestions about over the counter drugs.
I will say again that I am delighted you have made a recovery but this message board is a forum for support and discussion, not medical advice from unqualified enthusiats.
derek76 jason1098
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derek76 Denny
Posted
Also read up on the vagus nerve and AF as digestive problems can trigger AF via the vagus nerve.
jason1098 derek76
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derek76 jason1098
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On a Forum like this doctors do not give free consultations so one only looks to the experiences of others with similar problems. However Denny's cardiologist gave her little more than a Youtube address to go to.